I have no idea if this thread is going to fly. I was posting here for several years before I ever mentioned I had a disabled kid. Didnt feel like talking about it. When I first found out my youngest daughter was disabled, there was a little denial. I thought she was just developing slowly but she would catch up. After the diagnosis, I told my wife, we arent going to talk about this with others. I didnt tell my parents for years. They knew something was wrong, but they didnt know what. We treated my youngest like my other two kids.
I have a 22 year old daughter with an iq of 62. Physically, she is in pretty good shape. When you get a diagnosis like this, the books say the parents feel like there is a death. I wouldnt go that far. Maybe time has changed things and I have forgotten....
I was writing about our latest SSI experience in the retirement thread. (I discovered my daughter had more than $2,000 in assets). I thought this thread would be more appropriate. I was hijacking that thread. Since I already wrote about SSI, I thought I would go this way...
Jobs are a big deal.
My daughter has two jobs. They are both two hours a week. One job is working in a supermarket where she folds plastic bags. Pays about $8 an hour. The other job she just got is at Banana Republic where she organizes belts and does some stocking. Pays a little over $10 an hour.
We were talking to somebody at the department of rehabilitation and I asked, "How many hours a week do you think my daughter can really work?
Ten hours a week was the answer. I agree that is probably right. So that is our goal. This will cut my daughter's ssi benefits but that is ok.
Of course, we have found it extremely difficult to find my daughter jobs. So..we will see how that goes.
My daughter is a very happy person with a great attitude. I work with special olympics a little bit and I see athletes with psychological, medical issues and financial issues that I dont have to deal with it so I feel fortunate about this.
We have issues. What happens to my daughter when my wife and I are dead is kind of a big issue.
Others want to share their experiences?