<p>I will describe what our school ended up doing for our child. The plan was suggested by a lawyer in a private meeting, but was greatly improved by the principal (I will explain). Neither the school nor our family could figure out a plan that worked because of the complicated logistics of non-consecutive absences, partial days, missing assignments and grades and so on. The only reason we mentioned the lawyer was that it was necessary to describe the source of the plan. Our child was in school with major health problems from age 5 to 15 without our seeing a lawyer (though we certainly had to advocate, sometimes in situations that were actually life-threatening). However, when our child’s situation included being in and out of school, or mostly out, and she was still trying to keep up (the situation described by Curious Jane), we DID need to consult a lawyer. NOT because we were angry, or the school was being obstructive but because we needed IDEAS. Perhaps there is another way, yes, and I was only suggesting this because it worked for us and made everything so easy and so so helped our child (as well as the school). Oh, and this was during high school.</p>
<p>So, every day, at the beginning of the school day, the school nurse went to each of our child’s teachers and gave them a sheet of paper with questions. The questions included “What work was done in class today?”, “What homework was assigned today?”, “Please attach any class materials or notes,” “Please note any missing grades as of today,” and,. as we worked this out, “Please attach any quizzed or tests given.” Eventually even exams were done at home: the school trusted me as a proctor. </p>
<p>The biggest problem was notes from class. For a few days a SPED person who was an aide in the class took notes, but that was against the union rules and job description of the SPED person because a 504 is not under SPED. We compromised so that for the most part, our child contacted friends for notes, but the school allowed the friend to use the office copy machine.</p>
<p>Anyone who has had a child out of school for a week or more knows how hard it can be to keep track of work assigned or missed, and teachers are usually too busy to keep track as well. It is hard to explain the value of the “missing grades” part of the sheet unless you have experienced this, or any of the other logistical nightmares of school absences due to ongoing or chronic illness for a child who loves to learn and wants to keep up.</p>
<p>Initially, the teachers just could not remember to fill these sheets out. Or, rather, they could not remember to notice whether my child was in class or absent. We did not get angry about this, but it was a problem to be solved. The principal’s wonderful innovation was to have the teachers fill out the sheets and attach everything whether our child was there or not! We did not foresee the beauty of this. This meant that there was no administrative hassle in our child going in and out of school as she needed. She could stay home all day, or go up for one class, or go up for one class, come home, rest, and go up for another. This actually ended up maximizing attendance and participation in school life.</p>
<p>Anyway, at the end of every day, the school nurse collected the package of question sheet, notes, class materials and quizzes/tests and if our child was out, I, or my other child, picked them up. If she was there at the end of the day, my daughter picked them up.</p>
<p>The school had a policy that students needed to be in school all day to participate in extracurriculars. Our child loved both theater and music. I talked with the principal and he agreed that this part of social and emotional development was important. Our child was allowed to participate in plays or music performances even if she was not at school. One memorable time, she played in a pit band for a school musical. She lay on the floor at the back of the auditorium due to pain and fatigue, but got up and joined the band for pieces in which she had a part.</p>
<p>This spirit of accommodation has continued through college with obvious differences because college is structured differently. She graduates this month after taking a little longer than classmates, but perhaps enjoying it more.</p>
<p>We could not have solved this without the help of an excellent lawyer whom the school also appreciated. An educational consultant might also help, or even the federal civil rights folks at the dept. of education. You can also google a lot of information. If this were a different kind of problem, I would not have suggested a lawyer, since we went 10 years without. I simply know full well how complicated an ongoing illness can be to handle both for a motivated student and for the teachers who may want to help but have busy days with hundreds of students. And yes, if you have to mention a lawyer, you can do it with a smile.</p>