"Drug-induced hemolytic anemia. Certain medicines can cause a reaction that develops into hemolytic anemia. Some medicines, such as penicillin, bind to red blood cell surfaces and can cause antibodies to develop.
Other medicines cause hemolytic anemia in other ways. Examples of these medicines include chemotherapy, acetaminophen, quinine and antimalarial medicines, anti-inflammatory medicines, and levodopa."
I have hemolytic anemia due to an autoimmune disease, as does my brother. I’m currently going through a round of transfusions. At the point of this flare, my hemoglobin was under 6. We have now reached 7.2 and moving upward. It’s not fun. At all. I thought I was going to have a heart attack on the slightest exertion about a month ago, but things are definitely looking up. I’m sincerely sorry you’re going through this. Take it seriously and consider the possibility that there might be flare-ups through the rest of your life (as has been the case in mine). The flare-ups don’t always look the same or start the same way, which is probably useless information except that if you notice strange symptoms, don’t ignore them. You do want to deal with this always as soon as you notice a downward trend because, for some reason, once things start trending downward, the decline speeds up rapidly and brings a host of problems. I’m assuming from your location that you have excellent doctors, but I urge you to make sure they all communicate with each other. Good luck - I’ll be rooting for you!
When I was a child I was hospitalized for close to a month with thrombocytopenic purpura which led to hemolytic anemia. They initially thought I had leukemia but fortunately that was not the case. I don’t know what the treatment was, and it has almost definitely changed in the intervening years, but I still have memories of them doing a bone marrow test. Ugh.
One of our dogs had hemolytic anemia. She went from being an extremely active (to the point of annoyance!) to lethargic and refusing to get out of bed, in a period of less than 24 hours. She was very fortunate that we were able to pay for the recommended treatment and meds, and after a week in ICU at the emergency vet hospital, she was released and lived four additional years. She was on prednisone and cyclosporine for the rest of her life, and had to have her blood tested frequently.
romani, I always tell my d who has medical issues that everybody has something and this is your something to deal with.
But darn, you have TOO MANY somethings going on. Sending you lots of positive energy and good thoughts. I am so sorry that you are having so many issues and do send you all the cyber strength I can.
I ask on here because it is comforting to know that others have the same thing and have managed to get it (somewhat at least) under control. I know that others are sick like me but I don’t know any of them and health-specific forums are too depressing for me.
Waiting is the hardest part. I have contacted my PCP about the hospital tests.
If my energy starts crashing worse than normal, I’ll head to urgent care. Right now I feel like I’m at normal exhaustion levels.
One takeaway is that everyone is different. I have lived my whole life with low levels…and absolutely recall all the finger sticks when I was a little girl…and was able to play sports at a highly competitive level and I still go to the gym, workout and lift weights several times a week. So your experience might not mimic everyone’s experience. Take heart, hopefully they can get you stabilized so you can resume normal activities. My anemia is probably related to my autoimmune disorders although the anemia was diagnosed probably 10-15 years before the hypothyroid and 40 years before I tested positive for lupus. And the good message is that it might only come and go and be related to your other issues temporarily if it’s not impacted by the drugs…sometimes my hemoglobin is in normal range. The only time it was alarming was after my first birth and boy did they rush into my hospital room. Fingers crossed for you!
Romani, I’m also very active and my situation is very similar to momofthreeboys’. I run, kickbox, lift weights, work more than full time and live a busy life, so it will eventually reach a level of stability for you. It sucks now for you, but it will get better. Hang in there, ok?
Yes celiac can develop later. It is one of few or only autoimmune disease (not allergy) that can be triggered. Anemia, brain fog, unexplained osteopenia are all non digestive symptoms related to malabsorption of whatever nutrient involved. Most common symptom of celiac across board is fatigue.
I think things like blood transfusions are scary until you actually have one, and then you feel so great that you can’t imagine why you were worried. I’ve had them twice. I’m also a big fan of IV antibiotics (if you need them!). I had an unknown infection and rather than just try every antibiotic on the market, the doctor went right for the big guns. It was great.
It’s like getting the oil changed in the car; everything just works better with the right oil.
I got an immune suppression infusion every few weeks as treatment for my RA and that doesn’t bother me at all. Needles don’t bother me, infusions don’t bother me, but something about someone else’s blood going in me gives me the heebie jeebies.
That’s not to say I won’t do it or anything along those lines, obviously lol. I’m sure it won’t be nearly as weird as I imagine
Look at it as a life saving procedure. My daughter was a preemie and had constant transfusions from the first hours of her life. I have no idea how many she had over the 13 weeks she was in the hospital.