<p>I love CC for the same reason, you can always find someone who has dealt with any problem, has a helpful insight, or at least is willing to offer much needed sympathy.</p>
<p>My son is determined to finish up his degree at a university, it may not be the one he attended his first two years. He might eventually transfer to the state university that is only 10 miles from our house. Either way, I am so grateful this drug therapy exists so he can sleep and function as a regular kid. Living on campus wasn’t that much fun for him because he was fighting this constant sleep battle we did not fully understand. And you can’t fix something if you don’t know what the problem is. If sharing his story helps someone else, I am thrilled.</p>
<p>HeartArt: Sorry for the delay; I’ve been away. Don’t give up on the university. My son went back after a semester and summer off. He is about ten hours away and did fine. He also spent two summers on the opposite coast working at an internship with no problems at all. His sleep doctor from home and near his internship monitored his progress together. Good luck!</p>
<p>MomLive: Just keep watching the progression - at least you are aware of the possibility of narcolepsy, which is way more than we were. Good luck to you, as well.</p>
<p>Bumping up…we finally got back with the sleep specialist and he did confirm son has narcolepsy. So glad I had done a lot of research on this prior to the appointment.</p>
<p>The doctor went through the treatment options. Son decided to try provigil. He’s been using Adderall for the ADHD but doesn’t think it helps much. The doctor initially didn’t offer up Xyrem (though he mentioned it) until son said he never felt rested. So he got a rx for Xyrem as well. We are waiting on insurance approval for both drugs.</p>
<p>I do have some major concerns about the Xyrem. Son is living in a frat house this year, sharing a room with his BF and a suite with two other boys. He sleeps in a bunk (though it’s only about chest high on me) and his wardrobe is pushed up to the bed and shelters the top head of the bed, so I don’t think he would fall out.</p>
<p>In addition to the bunk, I’m concerned that son is not going to be able to take it every night nor establish a regular sleep schedule because the frat house is so noisy (moving out is probably not an option this year). I’m wondering if this is going to hinder the effectiveness of the drug and well as cause him additional problems. I understand there is an adjustment period to get the right dose.</p>
<p>We have agreed that he wouldn’t start it until he’s here for his 4 night fall break. I don’t want him to start it in the frat house. I’m trying to encourage him to wait until xmas break when he will be here for a month.</p>
<p>I called back the doctor today to see if there were any other sleep aids he could take in the meantime (Ambein, etc) and the doctor said no.</p>
<p>Any thoughts from those with kids taking xyrem? Is it going to be manageable in a dorm setting? Does this stuff knock out your child to the point they are difficult to wake up in an emergency?</p>