The problem with all parents is that we assume our kids are normal, because we raise them according to our own lifestyles and values, and of course they fit right in there. The trouble comes when what we think is perfectly normal (and allowable at home) behavior, such as stomping on the furniture or never sitting at a table for meals, runs smack into a community standard that the behavior violates. If the parent doesn’t share the community view, or hasn’t been inconvenienced or bothered by their child’s behavior, he/she isn’t going to respond very well when someone says that something isn’t right.
Years ago, I noticed that my nephew was exhibiting a lot of behaviors common to kids with autism. (And contrary to popular belief, you don’t really need to be a bona fide expert to make an educated guess about this type of thing.) I’d been around enough kids with autism to recognize what I was seeing and I’ll bet many on these boards could, too.
So after some preamble, I asked my SIL if she had mentioned my nephew’s rocking and inability to interact well with other children to her pediatrician.She got very defensive and said that social issues were private and that she never discussed such things with her son’s doctor. So I left it at that. But I was really stunned that she wasn’t concerned that her son wasn’t like his peers. Although he wasn’t in preschool, he did have play dates with other homeschoolers and kids from their church.
Over a year later, she called me in tears because her pediatrician suggested her son might have autism and wanted her to see a specialist. By this point, he was almost four years old! I found it truly shocking that she hadn’t seen anything to concern her and that the doctor had had to mention it first.
Fast forward to us a few years later. All through elementary school, teachers would come pretty close to saying my daughter was “tightly wound,” and “intense,” and suggested things like pottery or yoga classes for her. I always took their advice and signed her up for these things. But I didn’t see anything to worry me at home. She got along with her peers, did very well in school, and had a lot of friends. Other adults complimented us on her nice manners. But the fall of her sophomore year in high school, she was diagnosed with anxiety and depression, conditions that persist to this day, and I now wonder if her teachers were seeing this early on, and I just missed it because she seemed so high-functioning. If someone had come right out and said they thought she was anxious, I honestly don’t know how I would have responded.
Sometimes it takes outsiders to get parents to notice these things.