I also second the Mayo Clinic. They diagnosed, within 24 hours, that my SIL had Stage 4 lung cancer. She had been seen for several weeks at Vanderbilt, and then Simon Cancer Center in Indianapolis fir a couple months. They were fed up at that point and called Mayo. They agreed to see them and had a diagnosis almost immediately. She said that place is a well run machine.
From medscape
https://www.medscape.com/viewarticle/861041?src=par_cdc_stm_mscpedt&faf=1#vp_2
“ Hello. I am Dr Tom Chiller, deputy chief of the Mycotic Diseases Branch at the Centers for Disease Control and Prevention (CDC). I am pleased to talk to you about antifungal resistance, a topic that needs more attention.”
[quote]
The Mycotic Diseases Branch at the CDC is collecting isolates of A fumigatus for US surveillance of resistance. We encourage clinical labs to send samples to CDC.
Please refer to the Web resources below for instructions on submitting isolates.
In summary, we encourage hospital executives and infection control staff to:
Assess antifungal use as part of their antibiotic stewardship programs; and
Ensure adherence to guidelines for hand hygiene, prevention of catheter-associated infections, and environmental infection control efforts.
We encourage physicians and other hospital staff to:
Prescribe antifungal medications appropriately;
Ask their laboratories to routinely determine the species of every Candida sterile body site isolate if it is not reported, and if C glabrata is found, consider ordering antifungal susceptibility testing;
Document the dose, duration, and indication for every antifungal prescription;
Be aware of local antifungal resistance patterns; and
Be active in efforts within your hospital to improve antifungal prescribing.
** Note: Clinical labs can submit isolates of A fumigatus to:
Dr Shawn Lockhart
Attn: Aspergillus fumigatus Azole Study
DASH Unit 40
Building 17, Room 2124
1600 Clifton Road NE
Atlanta, GA 30333**
Wow, thanks so much, guys. The advocate wants to talk to the infectious disease doctor at the hospital, then she will look at all of the information I’ve forwarded from this thread.
I don’t think the doctor has had a chance to tell Mom and Dad yet. 
Believe it or not, the doctor’s PA went in earlier today and said, “Well, I think we can discharge you if someone can take care of the wound for you at home…” This is where I have to self-police; otherwise you would see a string of profanity here. Just yesterday, the doctor told my sister that Dad would need to be hospitalized another two or three weeks. I’m just numb at the lack of coordination we’ve seen the last 8 months.
Wishing your father all the best, @MaineLonghorn. Your stories of ineptitude are mind-boggling.
If Dad can travel get him back home to you. I would have him admitted to Mass General Brigham or Beth Israel as fast as you can. I am at a loss as to how they could leave this untreated for weeks. Appalling. So sorry. You have so much on your plate.
And definitely call the doc from the CDC. He may tell you where to go and who to see from his work.
No suggestions to add, but just wanted to say I hope you find the right people and place for your dad needs to help him get better. I’m sorry you’re all having to go through this.
I like idea of CML consult, and Tasigna manufacturer consult.
I do agree with idea of second opinion at academic medical center like MD Anderson or Mayo Clinic - these will have staff and equipment to run tests, implement latest protocols.
Or bring him to Mass Gen, Beth Israel, etc.
Does he have central line or other catheter? How long has it been in? It would need to be changed out before two or three more weeks to prevent more infections.
.
It’s not easy to be first interesting case. It may be that the PA is filling in for another.
I’m sorry for your situation and your father’s health, and hope he improves.
I too am appalled at the lack of communication on the medical team. No advice. Just sending hugs.
Retired clinical microbiologist here.
Has the exact species of the Candida been determined?
It is critical to know this in order for Doctors to treat correctly.
Not all hospital labs are able to reliably speciate the different strains; new high price tag instrumentation, such as MALDI-tof are needed.
The Candida isolate can be sent to a local reference lab, state public health lab or CDC in Atlanta if needed to obtain this info.
The ‘typical’ Candida, C albicans, has more predictable susceptibility patterns than others like C glabrata.
C. auris, as noted by others above, is the newly recognized Candida.
It can be very resistant to antifungal agents.
MOST hospital labs do not perform susceptibility testing for yeasts/molds.
Make sure the ID doc has requested the isolate be sent for susceptibility testing, it can take up to a week for results.
Sending hugs to you and your family. What a truly difficult situation.
https://www.cdc.gov/fungal/candida-auris/fact-sheets/c-auris-testing.html
What should I expect if I get tested?
The nurse or doctor will wipe or rub a cotton swab on the skin near your armpits and the area where your leg joins your body (groin). The test is not painful.
The swab will be sent to a lab, and in 1 to 2 weeks, the lab will tell your doctor the results.
If the test shows you are carrying the fungus, then your nurse or doctor will talk to you about the results and what to do next.
What are the odds of this philly health news segment yesterday
[quote]
The CDC is working with public health partners, health care personnel and laboratories to stop the spread. The CDC calls C. auris a “serious global health threat.”
There are 806 confirmed cases nationwide.
The New Jersey Health Department says if you suspect or identify C. auris, contact your local health department and the NJDOH Communicable Disease Service at (609) 826-5964.
[quote]
Ny is disclosing hospitals dealing with Candida Auris,
Mmmmmmmm appears NJ is keeping the list quiet.
New Jersey, New York And Illinois most reported cases.
I was at first mistakenly told it was candida auris, but it’s actually Candida albicans. I’m going to insist that the infectious disease doctor talk to the Invasive Fungal Infections Clinic at Wash U and the CML doctors at MD Anderson, first off. I called Dad and told him to have the ID doctor call me as soon as he shows up today (who knows when that will be!). Dad is in agreement about getting additional advice, thank goodness.
@musicmom, thanks for writing, “Make sure the ID doc has requested the isolate be sent for susceptibility testing, it can take up to a week for results.” I will do that.
I was on speakerphone when Dad’s heart doctor talked to him, my sister, and my uncle. Sis, Uncle, and I were kind of surprised that he didn’t sound nearly as dire with Dad as he had with the rest of the family. Maybe he just doesn’t want to alarm Dad? He really didn’t say much at all until my sister pushed him, then he finally did say that the infection is a “terrible problem.” He hopes to see less infection when they open Dad up early next week. My husband prompted me to ask, “But what if you DO see a lot?” and he said they would have to remove Dad’s sternum bone. !!! I cannot imagine. That’s why I told Dad it’s critical to get more advice NOW, to make sure they’re treating the infection correctly. They are switching to Diflucan today.
@MaineLonghorn. thanks for the update.
It’s really good news that the yeast is “only” C. albicans and not C auris.
Still, it’s good you’re on top of developments in his case.
It will be good to have the susceptibility results to confirm that the switch to Diflucan is on target.
Sending more hugs.
My dad’s advocate will be contacting Wash U and MD Anderson shortly. To our disappointment, the infectious disease doctor at the hospital won’t be seeing my dad today. WTH?!?!?! Can I get any more furious?
Dad just asked if I can fly down to Austin immediately. My sister and his advocate don’t think it’s necessary, but I don’t see how I can refuse Dad’s request. So I’m juggling work/family responsibilities to make it happen.
Today I’m calling several of Dad’s ex-students to get the word out. He has been a mentor to thousands of engineers across Texas, and I think he will be surprised at the response he’s about to get. 
I have just a second for an update.
The heart surgeon looked in Dad’s wound yesterday (it’s still wide open, yikes) and said it looks MUCH better and he was very happy about it.
Then the infectious disease doctor, who I looked up and does seem like a top specialist, came in and said the same. He thinks Dad will be fine. We told him about the heart surgeon’s previous dire prognosis, and he actually rolled his eyes!! He said that sometimes surgeons tell you things are worse than they really are. ?!? Whatever. My sister and I asked him a ton of questions and while he can’t GUARANTEE anything, from his 34 years of experience he thinks Dad is out of the woods. We do have the top doctor at Wash U in St. Louis waiting in the wings. He responded to our emails IMMEDIATELY, like within five minutes! He seems like an incredibly nice person. He gave us his cell phone number! After conferring, we decided we’ll see what the surgeon sees when he looks at Dad in the OR on Tuesday. If the situation has deteriorated, we’ll contact the outside specialist.
So my head is spinning, but it’s good news!! Wow. I will return to Maine on Thursday, the 12th. Then my oldest son and I will return to Austin on the 17th. The rest of my family will fly down a couple of days before Christmas.
Thanks for all your support! I will post this in the other thread, also.
That’s such great news!! Can’t think of a more wonderful Christmas gift 
Another Texan here. San Antonio has a very strong medical community and is closer than other places mentioned. Don’t know what the risks of moving him are, but that trip or one to Houston might be an option. No one specific to recommend, but the medical school in SA could be a good place to look. Hope you are able to find the help your dad needs.
Really glad to hear things are improving!