my diagnosis of advanced cancer: how to help my kids

<p>some progress.</p>

<p>they clamped the NG tube. the idea is, it my condition does not worsen without the NG tube, then they will finally remove it. They don’t want to remove just yet without that confirmation.</p>

<p>I look like an elephant man with the tube sticking out of my nose. First Phantom of the Opera, now an elephant man… What a journey!</p>

<p>Great news, Sunshine. I hope they can remove the tube by the end of the day!</p>

<p>Progress!!!</p>

<p>Have a good day today!</p>

<p>Yay, glad to hear you’re doing much better! Remember, the cc pups are on standby for a virtual visit!</p>

<p>sunrise, I’m so please to hear you’re making progress and finding some relief. I hope you can hit the road soon.</p>

<p>So glad you’ve had some relief. Here’s to a return home soon.</p>

<p>Great to read this …</p>

<p>Sending good thoughts your way, Sunrise. You are a wise teacher and a victor no matter what your circumstances. Whenever I go on this site, I look for your posts first thing. I feel I am a better person from reading your words. Thank you.</p>

<p>Great News Sunrise. Can’t wait for the removal, so that long awaited Asian trip can happen. We know it will. Keep keeping on!</p>

<p>Hope today is a good day!</p>

<p>hoping that the NG tube will soon be a faded memory and you can go home, sunrise. You were smart to go that route though to give it a chance to relieve you.
I know you were so looking forward to being with your son on this special trip back to Asia later this month, and I am thinking of you as you wait it out on that decision.</p>

<p>Well, this is a step in the right direction! Fingers crossed it lasts!</p>

<p>The NG tube was finally pulled out this morning. Oh, what a difference it makes. It’s very high on the list of nasty things to have.</p>

<p>My bowles are on the mend. Still not normal, but at least bearable.</p>

<p>My doctors are not excited AT ALL that I am going to Asia for two weeks. High risk, they say, since my condition may arise again.</p>

<p>Well, everything about me is high risk as it stands now. I’ve got to live a little, haven’t I?</p>

<p>Even without cancer, when will I ever have an opportunity to travel again with my son for two weeks once he starts working?</p>

<p>In fact, as I am going through treatment after treatment that failed, I am even more determined to go. There is no guarantee for me. I have always been a master when it comes to the art of delay of gratification. The problem now is, if I delay for bigger gratification later, the “later” may not happen.</p>

<p>So, to minimize the risk, I have decided to be extra cautious, and once I leave the hospital, I will continue with the liquid diet regardless of how well I feel till I get back from the trip, which is in a month exactly. It may not be easy to stick to it in Asia: the diet does not lend itself well to that kind of restriction, but worse comes worst, I can just drink the protein meal supplement packages I am planning to bring with me.</p>

<p>Funny, today, when I was “walking” on the floor (a lot of patients do that because exercise is good for us all), several people told me I look so good and asked me if I am checking out. Well, that’s the problem: I get no sympathy when I go through the worst stuff. But then again, I guess this is far better than being told I look terrible when I am actually fine.</p>

<p>I have started on the clear liquid diet today, like diluted apple juice, broth, etc. I am SO calorie deficient now (have gotten almost no calories for 5 days now - today’s “clear liquid diet” does not add any meaningful calories), that I asked a friend who is visiting tomorrow to bring me some ensure (meal replacement liquid) with enough protein - tomorrow, I am allowed to eat "not-so-clear liquid, like pureed soup, etc) (my husband condition this weekend was pretty bad, and I FORBADE him from visiting me).</p>

<p>My second room mate checked out. I hope nobody checks in! There are always something good to look forward to. I am in good spirit.</p>

<p>Great news, Sunrise. Have a good night!!!</p>

<p>So happy to hear the good news. Thanks for the update. Always thinking of you and wondering how you’re doing.</p>

<p>Great news! Keep getting stronger. :)</p>

<p>I do not post often but I do come to the board every day to see how you are doing, Sunriseeast.
After reading your posts I am so moved I am always at a loss for words. You are an incredible woman!
I am sending you healing vibes and prayers for your husband , too.</p>

<p>Hi sunrise, thinking of you today. I hope your plans to visit Asia come to fruition. Have a great day! Always moving forward!!</p>

<p>Have you tried ScandiShakes? They’re like Ensure but some think they taste better. They come in vanilla, chocolate and strawberry and made with whole milk they’re about 600 calories. You can flavor them with syrups or fruits. They travel easy - kind of like packs of Carnation Instant Breakfast. Hopefully worth a try.</p>

<p>Sending good thoughts your way, sunrise.</p>