Parents caring for the parent support thread (Part 1)

Thanks for all the support. After venting, I was running like crazy. Got home late last night and spent this morning firing off whacker letters.

Dr. visit was a loss, tried another call to say TREAT HER LIKE A 2 year old get a better sling, and no one called back.

Constipated, check. AL place is on notice to treat.

No “skilled nursing” in her small town. She is in the best facility there is there. Am thinking over moving her, but not sure where. Since she is frail, most people (hospice ones) agree that moving her might be a final straw/shock.

I am not comfortable with private care givers (and she no longer has a “home” to do it in) because THEY need supervision as well. Divorce looms if she is within 400 miles, still an issue.

But I appreciate the suggestions, the place to vent and people who have walked this rocky road. really helps.

All the best, eso. The answer will come and in the meantime you are doing your super-human best. Take care of you, too. I know how hard that can be.

Her being far away is no longer an issue for you to stress about, eso, because I think hospice is right, it’s too late to move her now. Plus preserving your marriage is not a small thing. Honestly, and maybe this is terrible of me, IMO at this point your marriage is more important since its shelf life is longer than your mom’s remaining life expectancy. So I want you to stop beating yourself up about the distance, ok? It creates problems and you’re doing everything you can to deal, and that’s all you can do. ((((( )))))

BUT vent, vent, vent. That’s why we’re here.

Thanks all for the support; I know you all really get the point of the vent.
I really am not beating myself up particularly. INTELLECTUALLY I know her care is more than adequate, EMOTIONALLY though, it isn’t good enough. The main thing I stress over is that someone needs to keep checking in person; the distance isn’t hard except for that! I don’t even mind the drive up (except in emergency). Andit hurts me to have her hurt so badly.

And I am actually thankful in many ways that DH is saving me from her; she could suck out every bit of energy from me both before when she was not demented and now, too. I don’t think he is wrong, I am sorry it comes off as a convenient “excuse” for not doing something I want to do. I wish I could somehow take care of her, but I don’t want to do it at the cost of my life if that makes sense. I wish it didn’t sound quite as selfish as I re-read it, but II know it makes sense to those of you in the trenches.

esobay, we do the best we can. As I have often written here, therapy saved me when the best I could didn’t seem like enough. (((((hugs!)))))

It totally makes sense, eso. Totally. I didn’t mean to be hard on you. And I completely get the intellectual/emotional split. Experiencing it right now with my mom.

Just want to say how much I am learning and thinking about as I read these posts.

My Mom turns 80 tomorrow. In good health - but has severe vision issues and is somewhat helpless as a result of 50+ years married to a controlling paternalistic spouse. My father is not doing well and I would not be shocked if he passed away soon. My sister lives several states away and is a completely selfish bitch. She flew in Thursday night for 4 days - including Mom’s birthday - and already flew out. She did not even stay 48 hours and is missing the birthday. She used weather as an excuse - but forecast for MD for Monday is fine. And frankly - even if the weather worsened and her flight was cancelled and she had to stay an extra day - so what? She has no spouse or children. My parents and my family - we are the only family she has.

My husband suggested I have a serious conversation with her this weekend about our aging parents and how to plan. Now that she has departed without seeing me or even speaking to me - I have all the answers I need.

I have been struggling feeling caught between my husband who wants to move away from MD to a semi-retirement lifestyle in the next few years - and caring for my mother. There is no question leaving her behind is not an option. But it is unfair to DH to say we have to remain here until she dies - which could be another 10 or 12 years!

Now I think the solution is we move and take her with us. I know it will be a very difficult transition, but I think it is the only solution. She has fewer friends remaining in their condo every year - as people die or move. I’m not bringing it up for now - but I feel like I finally have a concept in mind - which helps.

It makes complete sense. Take care of yourself.

So sorry to read about how everyone is struggling to do their best for themselves, their aging loved ones and their loved ones who want their share of time and attention. It’s definitely a tough balancing act. My folks are 86 and nearly 91. They live less than 2 miles away and we are their favorite tech support, yard help, and crisis call. They have 7 kids, all living less than 30 minutes away–most within 5 minutes–but we’re still the first to be called for anything they want or need. It’s good and bad–at least my sibs speak to them and one another, but they are aging.

Eso - you don’t sound selfish. I have realized in the past 2 months that I need to think less about my parents and more about the others that I love. I certainly wouldn’t sacrifice my marriage!

Rockvillemom - I certainly would not move after my parents moved to be near me 2 years ago. When they moved here, DH and I agreed it meant that we could not move while they were still alive.

Hugs, eso.

My parents moved to be near me 20 years ago - primarily to spend time with their only two grandchildren. We never had a conversation as to what would happen as they aged and what our obligation to them would be.

But I have no intention of abandoning them. I don’t like my father very much - very controlling - and nasty if you disagree with him. Mom is a meek dormat. But still, I have a moral obligation to the end.

My sister does nothing - it is all on me. I don’t want to destroy my marriage as a result of this burden. It angers me immensely that my parents have no real plan for the remainder of their lives - they just assume and expect I wil take care if everything.

I like the plan DH and I have come up with to move in a few years to give ourselves the life we want - and take surviving parent with us. Trying to balance all needs.

I promise my sons I will not do this to them.

I’m amazed at how few people actually plan for the later years. My parents didn’t and hubby’s haven’t faced it yet either. I’m hoping hubby’s parents take note of how challenging it is to deal with someone who wants what they want with no regard for others.

I have refused to let it sink me. I am the one who got my mom placed and moved her twice. I am going next weekend while my brother and sister are both away. I am also recovering from shoulder surgery that no one wanted to accept meant I had to take care of me. She’s in rehab right now and very well cared for. The funny thing is my sister was telling me that if it were me alone for a few days without her around and I was anxious I’d want someone there. I said no, when I was having anxiety I went to the doctor and got medication for it. My refuses medication and yet lays in a dark room all day. I am going out of obligation.

She had the first test done for the heart valve replacement. Now she needs to get a catheterization. I just wonder how long she’s allowed to stay in rehab. Everyone in my family seems to be under the impression that it’s a choice on convenience for the family and mom. I know medicare doesn’t see it that way.

eyeamom, you need to take care of that shoulder! and your energy.

I, too, am surprised at some of the lack of planning that I read here. I see it IRL, too. But my mom did a great job of setting things up to be easier. The result of her living with her mother for 20 years and caring for Grandma while she (Gma) died slowly of Alzheimers. Mom had the POA and her trust set up, so it was relatively straight forward to take that over. And she said she never wanted to require us what she did for Grandma. But again, accepting it emotionally is different than accepting it intellectually.

And as everything is in place to “handle”; she just got her idenity stolen and 4 credit cards attempted to open in her name. I hope I have caught it in time. I knew I should have frozen her credit, but it slipped through the cracks. I really didn’t think she would still be here now, actually.

I see two distinct paths - those who plan for their elderly years and those who do nothing.

I have a friend whose mother relocated herself at the age of 78 - while still in great physical and mental health - to an independent living facility - part of a CCCR - near her daughter. By doing so - she was able to choose the facility - do her own downsizing - join the new residence as a vibrant person ready to make new friends and get involved. This is the model that I want to emulate.

In my family - no one is doing this. Everyone lives in their condo - and fights change - until it is a crisis - requiring hasty move/relocation - and tremendous stress on everyone.

Just had a screaming match with my sister. She is a selfish bitch and i cannot believe she bailed on Mom’s 80th bday and I totally resent how our parents are 100% my responsibility. That felt good.

I’m sorry rvm. I had a screaming match with my brother and I now haven’t spoken to him since. Don’t let it go too long being mad.

Well, my mother is still happy with her move. But the extent of “planning” in my family was Gma insisting, all my life, that she didn’t want to be “abandoned” or ignored in her old age, loading me with tales of other old folks who were, building guilt well before its time. And my mother said she wanted to be an ornery, fussy and opinionated elder, allowed to be, based on age. She insisted she would never go to IL or AL, until very recently. (And there she is, 2000+ miles away.) Neither really planned financially, not the way people speak of today, neither was ever fully open about their finances, leaving the rest of us unsure. (Both were lucky, had/have enough, but not the sort of big $$ security some elders have. And, unlike some families, DH and I were never in a $ position to support them extensively.) Add that my mother has long been unwilling to do the things that would help her health- eats what she wants, refuses exercise of any sort, and is reaping the results.

I mention it because, sometimes, the posts, not citing anyone in particular, remind me that some of this is a power struggle. They want what they want. We try to be the good children. In some cases, our siblings can have the leisure to not want to do any more than they have to, because “we” are always the ones stepping in, the default. They don’t "have to " do much when we always pick up the pieces. Even the notion of compromise is tough when we’re always the ones adapting. No one needs to consider our needs when “we” don’t consider them.

Where does that leave “us?” I’m not being selfish, you know I care about what I call, “trying to do the right thing.” But we have to put ourselves and our personal relationships (spouses, kids, friends) somewhere in the equation. Or we won’t make it safely and healthily to our own old ages. And our kids won’t necessarily like what they find, when we’re old. Or their spouses. History can repeat itself.

Dementia adds an awful wrench, I know. And some are only children. But please remember to stop once in a while and focus on your own needs, too. It’s ok.

@lookingforward

Lookingforward, so sorry about this. My dad was diagnosed at 90 with venous insufficiency and we got a referral for someone who came to their house, measured his legs inch by inch, had compression socks with zippers (knee high as ordered by the doctor) custom-made, and came back to the house to show my dad how to put them on and take care of them. They were very pricey ($250) but of course you don’t sound like you’d need this level of service.

For myself, I found various compression knee-highs in the men’s sock department at Walmart (of all pllaces!). They sold Dr. Scholl’s (less compression) and another brand I can’t recall with more. I found a couple of pairs with stronger compression at a CVS. Made by Dr. Scholl.

Also I like this company to order online:
http://www.brightlifedirect.com/
Excellent customer service. Perhaps they could be helpful.

My daughter (adopted; 48 years younger than I am) is a sophomore in college and I am 67. If all goes as planned (she is pre-med and doing well enough that the dream lives on!) it will be many years before she knows where she will be living at least semi-permanently. I already told her that wherever that may be, I will move nearby when the time comes. Hopefully I will still be healthy (mentally and physically!) to do so by myself!