<p>Well, this day is finally over, and it’s been a doozy. </p>
<p>Have you ever had a day advocating for a sick loved one, where you are the conduit/communicator/re-communicator with doctors, PAs, nurses, pharmacists, billing folks and insurance processors…not to mention the sick loved one (in this case, my mom and trying-to-cope dad)?</p>
<p>That’s been my day. I won’t even try to describe the various occurrences, set-backs, communications, and developments…too tangled a story.</p>
<p>I’ll share the outcome as of tonight, though, because that’s the good part. Mom’s resting/sleeping comfortably, nausea/vomiting FINALLY under control (Rx I forget name of (ond-something) – Blueiguana, they didn’t want to try Promethazine because of her asthma, but you were right: my asking for it started the right conversation and led us to something that’s working. THANK YOU!)</p>
<p>Pain is also under control with Tramadol (non-narcotic so easier on the stomach) AND pain patches (Lidoderm).</p>
<p>I was with Mom and Dad (and my new best friends, the docs, nurses, pharmacists, etc) all day. I feel like we’ve come through a war, but all is well this evening and I hope it
continues through the night.</p>
<p>Fog, I was sorry to learn of your mom’s cancer. My mom’s situation pales in comparison, and I hope your mom is doing well. I’m only a half-hour away, but your suggestion about making notes for my dad was very helpful. I have them set up with a notebook – separate page for each med, labeled at the top with what it’s for, and dosing instructions. Then space for him to log what she’s taken. I got them started, and they said it was a huge help. Thanks, fog!</p>
<p>Pepper, thanks for your post, too. Gotta tell you all how much it meant to see your words of encouragement and empathy here. My parents, though elderly, have always been extremely independent and self sufficient. This was the first time they’ve REALLY needed my help on something like this, and they needed it in a big way. All through the day, one or the other of them would keep thanking me and saying how they just couldn’t have managed this on their own, especially the sometimes complex communication process with all those who had a role in resolving the situation. The whole thing required a project manager, and that’s where I came in.</p>
<p>I’m so glad I’m nearby and able to do this for them. I’ll never be able to repay all they’ve done for me, but this was a small way of giving something back.</p>
<p>My thoughts tonight are of families, and how important it is that we take care of one another…this world can be a very scary place if you’re elderly and sick, and have no one to take care of you.</p>
<p>One final word…we did ask (on Thursday when she was diagnosed) if my dad should get the shingles vaccine. The answer is, he can’t now because someone in the household has active shingles. But, interestingly, their doc told me, “It’s tough for a lot of us health care professionals to really recommend this vaccine because it’s only efficacious
50% of the time. And even then, many people only get immunity for 2 or 3 years. For us to recommend a vaccine, we’re used to seeing efficacy in the 90% range, and immunity that lasts at least 5-10 years.”. I pass that along just fyi if anyone here is 60 or older and considering the vaccine. (You should also know that, at least here in the Chicago area, they’ve had manufacturing issues and it’s currently out of stock.)</p>
<p>May we all rest comfortably through the night. :)</p>