<p>I think my Dr. will let me stay on Plaquenil indefinitely as long as my vision field tests keep coming out okay but its not working now. I don’t know if it ever did - how do you know if it was working or you just weren’t having flares? It’s only been 2.5 years from an initial flare that started the diagnosis. Regardless, the flares are coming more frequently, more places, and the pain medication is not helping as much. I am in the middle of an episode now and trying to figure out what I want to say to the Dr. this week. </p>
<p>takeitallin - I was hoping I could find someone that actually took it for a while and it worked…all I’ve found is hopeful articles, blogs, a Johns Hopkins study that said it wasn’t any better than MTX (but if it is just as good - that’s better), and a Harvard study that I can’t read but sounds like it does reduce inflammation to some extent.</p>