Support for LateToSchool

<p>^^ADad that made me laugh out loud. That is so true; I have experienced that first hand at various times throughout life. </p>

<p>BunsenBurner, thank you for the article about Marin Morrison - what an example! That’s simply an incredible story of willpower and determination. I understand the drive, too; my life’s work requires no where near the physical effort of an olympic athletic, obviously, but the drive, the incredible obsession and burning interest and desire to do the work is so strong, even when totally exhausted I cannot imagine sleeping late, not even for an extra 10 minutes. I understand exactly what drives her into the swimming pool, no matter how she feels, and against all odds and common sense and even medical advice. I pray she beats her cancer, and that she has a wonderful experience in Beijing.</p>

<p>I’m sure you’ve received great advice about the steroid tapering but I thought I’d share my crazy experience. </p>

<p>On my last few days of steroids, I was at an out-of-town wedding talking with people I hadn’t seen in years. I felt like I was constantly being interrupted and never got to finish a conversation. There was lots of eating and drinking and not enough sleep. </p>

<p>On the last night, I had numerous episodes of sleepwalking for the first time in my life! My husband said I stood in the kitchen and “chatted” with people (who weren’t there). He repeately put me back in bed. I only remember the last time he woke me up. I was in the closet trying to put my shoes on so I wouldn’t be late for a family breakfast get-together. It was about 4am and dark in the closet. </p>

<p>It was really freaky. Hopefully your taper will be incident free!</p>

<p>What wonderful news, LTS! I’m so glad that your doctor is so pleased with your progress, and that you can come off the steroids you are disliking so much.</p>

<p>Here’s a story from today’s Seattle Times about another student athlete/cancer survivor, “Bothell Runner Making Comeback of His Life”</p>

<p>[High</a> School Sports | Bothell runner making comeback of his life | Seattle Times Newspaper](<a href=“http://seattletimes.nwsource.com/html/highschoolsports/2004364759_wyrwich22.html]High”>http://seattletimes.nwsource.com/html/highschoolsports/2004364759_wyrwich22.html)</p>

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<p>[The</a> color of cancer | Freep.com | Detroit Free Press](<a href=“http://www.freep.com/apps/pbcs.dll/article?AID=/20080422/FEATURES01/804220316]The”>http://www.freep.com/apps/pbcs.dll/article?AID=/20080422/FEATURES01/804220316)</p>

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<p>and 142 more</p>

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<p>[The</a> Daily Bruin - UCLA scientists study well-being of long-term lung cancer survivors](<a href=“http://www.dailybruin.ucla.edu/archives/id/20013/]The”>http://www.dailybruin.ucla.edu/archives/id/20013/)</p>

<p>and another</p>

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<p>[Broward</a> County, Fla., Pulls Plug on Power Plants for a Year. | The Miami Herald (Miami, Florida) (via Knight-Ridder/Tribune Business News) (June, 2001)](<a href=“http://www.accessmylibrary.com/coms2/summary_0286-8345160_ITM]Broward”>http://www.accessmylibrary.com/coms2/summary_0286-8345160_ITM)</p>

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Definitely. LTS, your willingness to share your experiences in this open forum is certainly helping more people than any of us probably realize. I haven’t posted a lot on this thread but I’ve read it regularly and you’re an inspiration. ‘Epistrophy’s’ dedication in researching and posted articles on this thread is amazing as well.</p>

<p>I just finished The Last Lecture - a very uplifting book.
Anybody knows if the proceeds go Randy’s family or to the pancreatic cancer research?</p>

<p>Kelowna, I don’t know. I keep an eye on his progress along with several others but I have not read of anything specific to the proceeds. </p>

<p>ucsd<em>ucla</em>dad I am in awe of Epistrophy’s contributions (in information quality as well as quantity) as well and “thank you” just seems so inadequate. It is so comforting, helpful, and inspiring to read the stories of survivors; it is also gratifying to read of efforts such as what Europe is doing. I didn’t realize the cancer diagnosis rate was as high as one in three. I am glad the public sector in Europe has a working plan, and, hopefully we can be instrumental in getting something similar launched in the U.S. Some of E’s links I am finding I must go back to read again and again, and others I print out so I have them to read when waiting for trains, etc.</p>

<p>For today, I feel worse than ever before. It’s hard to imagine getting a good report from the oncologist on Monday and to feel this bad by Thursday, but, I guess that is the nature of this sort of disease - or maybe it’s not the disease but collateral issues - the herniated disk situation has returned, and the pain is simply excrutiating. I am guessing (and hoping) that this was provoked from the week of travel and hauling my luggage and laptop around, etc., vs. something more ominous. So on my daughter’s strong advice I took an Advil, and used one of the pain patches that were prescribed back in March, and I cannot really tell if that is helping, or not. I haven’t needed tp use the patches beyond the first couple days of filling the prescription, so, maybe I will be as fortunate this time as well. </p>

<p>I can with absolute certainty say what does help though - getting moving, and in spite of how much this hurts (to sit, stand, etc.), staying engaged in one’s work, and keeping commitments to others, and not giving this cowardly disease even one inch. The last two mornings it has taken me twice as long to walk from my house to the Metro, because I am in so much pain that I have to walk very slowly; every step hurts. It has also taken everything in me to climb the three series of escalator stairs out of the Metro, but, I do it anyway; I refused to cave to this. I climb over 100 stairs a day. I have discovered that keeping the commitment to physically challenge myself helps enormously, but more importantly, once I am in my office, I become deeply engaged and emersed in my work, and then things start to feel so much better.</p>

<p>Tomorrow is chemotherapy; Monday is my birthday!!! - imagine that, the internist at diagnosis was so certain I wasn’t going to see another birthday. If I had the energy, I would send him a notice. LOL. :)</p>

<p>ADad, thank you for that :slight_smile: - this particular fight is truly just starting, feels like.</p>

<p>Happy Birthday LTS! Don’t forget the wish candle for next year! Cheers!</p>

<p>Listen LTS, a herniated disc gets better faster often with REST. I know in general it hurts to move, but then as you get up and move it hurts less, but the inflammation will not be able to clear as fast doing too much. The walks to the metro and the stairs–there are times that you HAVE to slow down to allow your body to heal. As you wean off of steroids–which are the ULTIMATE in anti-inflammatories-- you may feel lousy in general, and you can have flair-ups of joint/disc pain, as those pains have been “managed” by the steroids. So DO talk to your doctors about using NSAIDS (non-steroids anti-implammatoriy drugs) such as ibuprofen perhaps on a regular schedule during the time you wean off of steroids. And do take care not to overdo. Once you are off the steroids, it WILL get better. I know you want off fast, but too fast might not be so good for your herniated disc, and if it gets unbearable, your doctor might suggest weaning more slowly.</p>

<p>I think the feeling bad in NOT the cancer, but coming off the steroids. The disc pain tells me so.</p>

<p>^^^Sunnyflorida-thank you for that medical advice above, I guess pushing through things, can sometimes be harmful, although, LTS’s spirit is inspiring. </p>

<p>Thought I would share the HUGE front page headlines here in South Jersey regarding the smoking ban in AC casinos. This has been long in coming, and the workers fought long and hard to push the AC City Council to support THEM.
This is a small victory here in AC against this awful disease, and thought it appropriate to share here.</p>

<p>Atlantic City Council unanimous on casino smoking ban, takes effect Oct. 15 </p>

<p>ATLANTIC CITY - A relentless fight to protect casino workers from secondhand smoke ended Wednesday with a historic vote by city legislators outlawing smoking on the resort’s 11 casino floors.
Before a packed chamber of casino workers and anti-smoking advocates, City Council’s nine members approved an ordinance that will clear the smoke from all city gaming floors by Oct. 15. The measure does allow casinos to build separately ventilated smoking rooms that cannot be staffed.</p>

<p>The vote was followed by more than a minute-long standing ovation and chants of “thank you!”</p>

<p>Sunnyflorida, thank you for that, as I have never in my life felt so terrible, and, quite frankly, it scares me, simply because it is very new and unusual. </p>

<p>Monday, my oncologist gave me permission to wean off at the rate of one mg per day for four days, and then .5 mg for four days, and then that’s it. As you might imagine, I wasted no time doing this. Then, late Tuesday, the incredible disc pain started, and, oh, my, this really just feels horrible. I am convincing myself that hauling my luggage and laptop around etc. both to the military installation and to NYC surely must have aggravated things etc. </p>

<p>I will see my primary oncologist again Monday, meanwhile, short term, are you suggested that I do not do the stairs, and the walks to the Metro? I am very worried about degradation of physical fitness…I know that you cannot really give advice over the internet, but, is it better to rest and take it easy, or, is it better to maintain some consistent degree of physical activity? (I have googled this matter a LOT in the last couple of days and it’s too frustrating to try to read through all the messy stuff on the internet.) My instinct is to fight through the pain, and keep up the physical activity. </p>

<p>On a more positive note, my daughter flew to Miami for her young man’s senior recital, was gone a week, came back last night, and she told me that the swelling in my face etc. has gone down a LOT, also, there don’t seem to be any symptoms such as headaches, etc. from the radiation…</p>

<p>I too am happy to see the news re Atlantic City…yesterday, on my way home, I almost appoached two very beautiful young ladies, college age, standing outside a building smoking; I wanted very badly to just speak to them about lung cancer, but, at the last second I lost my nerve…I walked away but vowed to myself that I will try again today, if I see similar people…</p>

<p>My experience with the young women in my office is that they aren’t swayed by the health issues. But they are a bit concerned that smoking might prematurely age them…give them wrinkles, etc. :frowning: So discouraging.</p>

<p>^^ That’s sort of what made me lose my nerve - I didn’t have a planned speech exactly, and I thought, what will convince them? How can I make an impactive statement in the < 30 seconds they might actually listen? What could I say (or DO - whip my wig off in public??? - would total hair loss scare young women into quitting smoking, if nothing else would???) -</p>

<p>LTS: I am so sorry you are feeling so,so terrible. Do call and ask your Dr if they can help. They may prescribe a heavy duty non steroidal antinflamatory for you. I understand your desire to keep up with the physical activity and your fear of losing ground. Any chance you can switch over into swimming for awhile and take it a bit easier until the pain subsides. I would consider asking the hospital for a referral to good medically trained physical therapist.</p>

<p>OOO…so now to the exciting stuff!! A major CC birthday party celebration on Monday for LTS. We will need to do lots of planning in the next few days in order for the cyber event to be spectacular. Any ideas, folks???</p>

<p>crosspost: a woman on chemo whom I met yesterday told me she has decided to go hat free from now on. She wants to be a walking billboard and hopes that the sight of her bald head will inspire just one person to go get a mammogram.</p>