Support for LateToSchool

<p>Dbwes thank you very much for posting that, it helps a lot. I still am not well enough to go back to my gym but I am very hopeful that it can be very soon. I am really, really glad though that I went into this is terrific condition…I cannot imagine if I hadn’t…thank you very much for finding and posting that link…</p>

<p>JEM, thank you. I really do sincerely hope it helps others and that it’s not just all about me, which I would find appalling. I do think it does because I do receive PMs from other CC members who are or may be going through something similar. </p>

<p>Plus, I believe that all of the links here are incredibly valuable. There is so much substantive material here and it would be so helpful for other patients. All of Epistrophy’s contributions, and everyone else’s. Perhaps we can figure out something to do with the material, so that a larger audience may be able to benefit? I’ll tell you this much - there is simply no way in the world to get through this without a LOT of support, and, diseases this serious are very hard on real life caregivers. (They’ll never admit it - but it’s hard on them.) CC fills in many, many gaps that allow me to give my real life caregivers a break.</p>

<p>and another</p>

<p>[excerpt]</p>

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<p>[Britain</a> Weighs the Social Cost of High-Priced Drugs : NPR](<a href=“http://www.npr.org/templates/story/story.php?storyId=91996282]Britain”>Britain Weighs Social Cost Of 'Wonder' Drugs : NPR)</p>

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<p>–Walt Whitman</p>

<p>raising money for lung cancer research in Wales</p>

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<p>[Charlotte</a> puts her best foot forward for lung cancer - WalesOnline](<a href=“http://www.walesonline.co.uk/news/wales-news/2008/07/07/charlotte-puts-her-best-foot-forward-for-lung-cancer-91466-21272740/]Charlotte”>Charlotte puts her best foot forward for lung cancer - Wales Online)</p>

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<p>And now for a little humor. Very little.</p>

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<p>–Earl Weaver (long time manager of the Baltimore Orioles)</p>

<p>and another (haiku by Issa [1763-1827])</p>

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<p>(Inch by Inch: 45 Haiku by Issa [Nanao Sakaki, transl.])</p>

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<p>[Ted</a> Kennedy staying active despite fatigue, wife writes | Freep.com | Detroit Free Press](<a href=“http://www.freep.com/apps/pbcs.dll/article?AID=/20080707/NEWS07/80707048/1009/NEWS07]Ted”>http://www.freep.com/apps/pbcs.dll/article?AID=/20080707/NEWS07/80707048/1009/NEWS07)</p>

<p>Looks like Senator Kennedy is taking a page from LTSs book.</p>

<p>Love the haiku in post 3488.</p>

<p>LTS, I hope you are having a good day.</p>

<p>and another</p>

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<p>[NSMC</a> News Item - Detail](<a href=“http://www.nsmc.partners.org/web/press_room_detail/news_item=496d9cb8-6a0c-4b5f-b7fc-22ed2e1ec51d]NSMC”>http://www.nsmc.partners.org/web/press_room_detail/news_item=496d9cb8-6a0c-4b5f-b7fc-22ed2e1ec51d)</p>

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<p>–Jim Elliot</p>

<p>and another (small cell “survivor”)</p>

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<p>[Coping</a> with lung cancer is a struggle](<a href=“20 years after – How did 9/11/2001 change us? - Northeast Times”>http://www.northeasttimes.com/2001/1031/coping.html)</p>

<p>^^^ great find Epistrophy-thinking of you LTS</p>

<p>Thank you; a bit of an intense struggle this week; chemotherapy postponed because of blood counts, but expected to resume next week. My primary oncologist is on vacation this week, and his partner decided to hold the treatment. </p>

<p>He explained to me that if they take a chance with blood marrow, the possibility exists that it may not ever recover - assuming I understood him correctly, I didn’t even know this was a possibility.</p>

<p>Thinking about you and praying very hard for higher blood counts, LTS.</p>

<p>me too…</p>

<p>As am I, too!</p>

<p>Thank you so much; I am sorry to say that it has been a difficult couple of days for me. Yesterday, my primary oncologist’s partner told me that I will never play a sport again (damage from lung cancer and its treatments). It looks like we’re getting to stable disease, but, I am having issues with shortness of breath, to the point where I must rest every ten or 15 steps. </p>

<p>He offered to give me perscriptions for enhalers (sp???) yesterday; I turned him down, but, this morning, things are worse, so, I called his nurse - changed my mind.</p>

<p>Then, a colleague who knows of my condition called - it turns out his wife has perpetual low blood counts. She lives her life house bound, sleeps a lot, works from home (she is a graphics something or other), and is always short of breath. Her blood counts will never be corrected. He told me the way I feel right now, this is her life, with no hope of improvement, ever. She lives perpetually ill.</p>

<p>That was shocking to me. I had no idea such a condition existed, and there is no science to answer it.</p>

<p>Hmmm, that oncologist must not know you very well. Never say never is my motto. If I had to take a side of that bet, I would bet on you playing a sport again. It sounds like inhalers might be a good decision if it can help you with activity. From my experience, not many side effects from most inhalers.
Remember one day at a time.<br>
Prayers</p>

<p>LTS- if you are still looking for potential foods, tapioca pudding is a good one if dairy does not cause you problems, incredibly bland and inoffensive, yet lots of protein in the milk & egg plus some energy in the sugar, and if you want to gain weight, use “fat milk” or even 1/2&1/2.</p>

<p>I’m sorry that the past few days have been particularly rough, LTS. Maybe it’s a good time for some reruns:</p>

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<p>–Walter Bagehot</p>

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<p>–Japanese proverb</p>