Support for LateToSchool

<p>Yes, I am also wondering what LTS’s physicians are saying about this.</p>

<p>LTS, are you sure the woman in question is not a physician/radiologist?
From my understanding the way things work in our state, she would have to be.
This of course does not change the matter.
I admire you are so assertive:-)</p>

<p>I misunderstood the nature of the mistake and certainly understand the need for the administrators to be held accountable. I can now see that this is energizing for you and thus a good thing. </p>

<p>I was worried that it would be a drain on the energy needed to fight the bad guys growing in various places in your body and thought perhaps your support group could fight the battle with the hospital.</p>

<p>I am confused about that as well. The lawyer with me Friday, the policy wonk, asked me, how does this happen - is the non-doctor administrator in the department responsible for cost/profit? Neither of us understand and we both want to understand. My doctor simply said “clerical error”, however, it was clear to me that he was rather embarrassed, as well. So part of what I hope to be able to gain understanding about on Monday is how, exactly, the order changed, and who decides - what is the decisioning process? Did the non-doctor administrator make the call, and does this person have the authority to do so? If so, why does this person have the authority to tell a doctor what to do? </p>

<p>I do know that whole brain radiation is a common procedure, however, I have studied the ASCO reports; I’ve read JoCO, I have talked to numerous caregivers, etc., and, I am very, very opposed to this treatment for my condition, as I understand it based on my most recent scans. </p>

<p>Speaking further with the doctor, after the CT staging, I expressed to him even more vehemently my opposition to whole brain radiation. Although he fully supports my treatment choice (as does the neurosurgeon, and my oncologist), he is not in complete agreement with my opinion of the dangers of whole brain radiation. I expressed to him (again and again) my concern about loss of cognitive functioning, etc.; his opinion is that it is the little-understood and under-studied impact of some chemotherapy drugs crossing the blood-brain barrier and causing CNS impairment, not whole brain radiation. </p>

<p>In any case, on Monday, I will have explanations.</p>

<p>Kelowna: yesterday, I verified that this person is not a doctor. Her title though is director of radiation oncology. Odd, that she is (evidently) making decisions for doctors…</p>

<p>Busyparent, I get you regarding allocation of my resources. But it so terribly critical to any chance I have to beating this disease that I have a very high degree of confidence in my medical team. I absolutely adore my oncologist - he obsesses over every detail of my treatment. You should just see the wild notes and chicken scratch he leaves all over every single line item of my weekly CBCs. He positively reacts instantaneously if any one aspect is even slightly off. He demands wet reads on every single scan. Never have I had a doctor obsess over me so closely. I also have a very high degree of confidence in the neurosurgeon, the radiation oncologist, and the peripheral physicians who are in charge of various aspects of my care. But people who lie - and who when caught, continue to lie, and then avoid responsibility - and then blame others - and then try to get out of it with the least possibly amount of effort (“we fixed it all now and it’s all better, o.k.?”) scare the living daylights out of me. I am terrified at the prospect of arriving for my cyberknife treatment and someone “accidently” radiates my brain, without my consent. And if you think about it, how would I actually know the difference? And if <strong><em>I</em></strong> cannot control this off-track train, considering my resources, how in the world does the more average, less assertive patient do so???</p>

<p>“If a lab insists on payment up front rather than going through the insurance billing procedures, they can get away with charging $500 for services that insurance pays $375 for. If the bill never gets sent to the PPO… the patient never knows… and in fact the $500 never gets applied to the deductible.”</p>

<p>The echo may have cost even more than 500 and this was the percent owed. The subscriber needs to make sure that this is what eventually is on her explanation of benefits. Even if the facility participates with the PPO, it can still collect for what they are told is not covered, and it sounds like in this case they called the insurance company to check this. Many PPO insurances have deductibles. Where I live, Blue Cross sells plans that go from zero to 5000 a year deductible.</p>

<p>I do not want to take up this thread discussing the details of insurance billing, which I did for decades, as it will take away from the intent which is to provide support for latetoschool. We could discuss how universal government health insurance is different from private insurance billing, but that too is another topic.</p>

<p>Suffice it to say that I wish latetoschool well, and am very happy that she has good insurance and knows how to handle the hospital administrators well.</p>

<p>LatetoSchool: I think you are completely on the right track. I am so naive that I am utterly shocked that treatment could be changed in this way, especially about something as critical as brain radiation.</p>

<p>This is completely insupportable. I think we should have standards that would remove this woman from her job.</p>

<p>lung cancer in TV-land: Breaking Bad</p>

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<p>[AMC</a> » About the Show](<a href=“AMC | Watch TV Shows & Movies Online | Stream Current Episodes”>AMC | Watch TV Shows & Movies Online | Stream Current Episodes)</p>

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</p>

<p>[Walt’s</a> Wisdom - Blog of Walter White](<a href=“waltswisdom.com”>http://www.waltswisdom.com/)</p>

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<p>[Breaking</a> Bad | TV Review | Entertainment Weekly](<a href=“http://www.ew.com/ew/article/0,,20170018,00.html]Breaking”>http://www.ew.com/ew/article/0,,20170018,00.html)</p>

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<p>[Breaking</a> Bad On Demand - AMC TV: Breaking Bad](<a href=“http://blog.amctv.com/breaking-bad/2008/01/breaking-bad-on.php]Breaking”>http://blog.amctv.com/breaking-bad/2008/01/breaking-bad-on.php)</p>

<p>[Breaking</a> Bad - Wikipedia, the free encyclopedia](<a href=“http://en.wikipedia.org/wiki/Breaking_Bad]Breaking”>Breaking Bad - Wikipedia)</p>

<p>I dunno, Epistrophy… I’ve watched Breaking Bad and I absolutely love the show, but I think it presents a blue print of what not to do in response to a lung cancer diagnosis. I can’t imagine anyone making a series of choices more horribly wrong than the Bryan Cranston character, who basically decided to behave as if he were already dead … (though I’m sure LTS might enjoy fantasizing about punctuating her confrontation with the radiation oncology director by flinging a home-brewed explosive around her office…)</p>

<p>Mythmom, as I said… I think this is probably typical – and I doubt that the administrator will get in serious trouble, at least not in the short run. Here’s where the problem lies:
From an interview with Dr. Donald Fuller (2007) [Outpatient</a> Care Technology - Article - Armed and Dangerous Against Tumors](<a href=“http://new.reillycomm.com/outpatient/article_detail.php?id=463]Outpatient”>http://new.reillycomm.com/outpatient/article_detail.php?id=463) :

Quite simply, the administrator probably knows from experience that it is hard to get insurers to pay for the cyberknife… so she changes the order to the procedure she knows that the insurer will cover. When LTS balks… she demands $3K up front – that is enough to intimidate most patients and get the message across. (You want it? You pay for it).</p>

<p>The administrator’s banking on no one noticing or objecting, having already categorized LTS as the type of patient that doesn’t represent much of a risk of financial liability because of the poor prognosis. (In a civil suit, to get money damages, the patient or the family of a deceased patient needs to be able to prove that the malpractice was a proximate cause of the damage sustained – it would be an uphill battle to try to prove in court that the cyberknife would have worked in a case where the whole brain radiation doesn’t… and if the whole brain radiation did “work”… then there would be no “damages”… and even LTS’s own doctor says that you can’t know whether loss of cognitive function is due to the brain radiation or the chemotherapy. LTS can kick & scream, but she probably can’t win a lawsuit for money damages … and the hospital administrator knows that).</p>

<p>calmom: I wasn’t meaning to suggest that Breaking Bad would provide any sort of roadmap for how one should handle such a diagnosis. (Heck, I haven’t even seen the show.) I doubt if I’d look to an afternoon soap opera for tips on how to handle my marriage, either. It just sounded pretty darn intriguing and at least tangentially relevant here, if only from a pop culture standpoint.</p>

<p>I’ve represented plenty of drug dealers in my time. But a mild-mannered-high-school-chemistry-teacher-turned-meth-dealer-after-being-diagnosed-with-lung-cancer? My clients, alas, usually don’t fit that profile.</p>

<p>As to qualifications to be a Radiation Oncology Director… I looked up some job listings on line – MD not required:</p>

<p>Job listing site: [Director</a> Of Radiation Oncology Jobs | Juju Job Search](<a href=“http://www.job-search-engine.com/keyword/director-of-radiation-oncology]Director”>Director Of Radiation Oncology Jobs | Juju - Smarter Job Search)</p>

<p>Sample listings: </p>

<p>“Must have a strong background in clinical operations (marketing the clinic, handling budgets and medical billing)… College Degree is required and Masters in Health Administration a plus”
[GadBall</a> Jobs | RADIATION ONCOLOGY CENTER MANAGER: Radiation Oncology Center](<a href=“http://www.gadball.com/Jobs/Details.aspx?sid=22&jID=12939169&AspxAutoDetectCookieSupport=1]GadBall”>http://www.gadball.com/Jobs/Details.aspx?sid=22&jID=12939169&AspxAutoDetectCookieSupport=1)</p>

<p>“Degree Required: M.B.A.”
[‘Director</a> of Radiation Oncology’ in PHILADELPHIA, PA posted by Cancer Treatment Centers of America](<a href=“http://jobcircle.com/classifieds/1044443.html?source=xml_juju_080109]'Director”>http://jobcircle.com/classifieds/1044443.html?source=xml_juju_080109)</p>

<p>“Bachelor’s degree from four-year college or university … Knowledge and familiarity with business and financial management of cancer services and reimbursement. … Strong and significant experience with a full range of financial operations (i.e. revenue generation, expense management, budget preparation, cost containment).”
[Untitled</a> Page](<a href=“http://www.allhealthcarejobs.com/aspx/JobPostingView.aspx?ja=juju&jobid=116242]Untitled”>http://www.allhealthcarejobs.com/aspx/JobPostingView.aspx?ja=juju&jobid=116242)</p>

<p>Any remaining questions about what this job entails?</p>

<p>I’m very glad my doctors do not share her view of my prognosis.</p>

<p>Epistrophy, my reply wasn’t meant to attack you – it was kind of tongue-in-cheek – but I had thought about mentioning the show before and decided against it because it is very dark humor based on an even darker premise that may not seem at all amusing to someone actually facing similar problems in real life. And trust me… if you watch this program you will discover that the only consolation you would have as a defense lawyer is that if you could delay things long enough, your client wouldn’t survive until trial. (Note to LTS: that’s because the tv character is not exactly cooperative in any treatment plan). </p>

<p>Basically, the guy will be facing capital charges if & when he gets caught. More likely the script writers will have him die in a dramatic hail of police bullets (suicide-by-cop) if the show continues into a 2nd season - I frankly can’t see any other resolution. Either that or he will have to wake up at the end and discover it was all a dream. (If you want more info, send me a PM – I don’t want to post spoilers, as the entire first-season series of episodes will be rebroadcast on AMC beginning this Sunday night).</p>

<p>Anyway, fans of Coen brothers movies & X-Files will probably like this show.</p>

<p>LTS, I have a feeling that the administrator doesn’t even share your doctors’ view that you are a person. She is probably all about $ signs – you are either an “expense” or a source of “revenue” depending on how well she “manages” your treatment.</p>

<p>Yeah, I think I’ve been living in some fantasy Universe.</p>

<p>Thanks, calmom, for all your explanations.</p>

<p>LTS: Thinking of you as always.</p>

<p>calmom: No, I certainly didn’t interpret your post as any sort of an “attack.” (And my response, re not watching a soap opera for tips on married life, was also meant tongue-in-cheek.) Sometimes, it seems, tone gets lost on the screen.</p>

<p>more lung cancer “survivors”</p>

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<p>[Daily</a> Herald Cancer Survivors](<a href=“http://www.dailyherald.com/special/cancersurvivors/2006/index.asp?id=7]Daily”>http://www.dailyherald.com/special/cancersurvivors/2006/index.asp?id=7)</p>

<p>another lung cancer “survivor”</p>

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<p>[Dance</a> to your health | TimesDaily.com | Times Daily | Florence, AL](<a href=“http://www.timesdaily.com/apps/pbcs.dll/article?AID=/20061115/SHOALS/70611018/-1/SHOALS20&template=printart]Dance”>http://www.timesdaily.com/apps/pbcs.dll/article?AID=/20061115/SHOALS/70611018/-1/SHOALS20&template=printart)</p>

<p>the small screen: another series where the lead character has cancer</p>

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<p><a href=“http://www.nytimes.com/2008/03/13/arts/television/13bella.html?_r=1&ref=television&oref=slogin[/url]”>http://www.nytimes.com/2008/03/13/arts/television/13bella.html?_r=1&ref=television&oref=slogin&lt;/a&gt;&lt;/p&gt;

<p>Epistrophy,
If I am ever in a legal situation where research is essential to the outcome, I want you in my corner. Actually, next time I am at a some big dinner event, I want you in my “corner,” too. What a treat it would be to get to know you. The research you share is, I suspect, merely a manifestation of your compassion.</p>