They would be honest with your D. I’d assume they have the same ethical codes we do here (most European countries do) that they can only release medical information if the patient approves.
Are they still thinking lupus? Fluid around the heart is a fairly common lupus complication…
Full scan -PET tomorrow of whole body
oh @fauxmaven … hugs to you and your D and her H … and everyone. Good thoughts and prayers to everyone.
Sending hugs and good thoughts for a full recovery for your daughter.
A bit of hope today. She walked 5 minutes without tiring… Her inflammation is down some. She had a full PET scan today. Should get info. THU.
Wishing for the best, fauxmaven.
Here’s hoping she just keeps getting better!
Thinking of you faux and wishing the best for your d. I’m so sorry this is happening to her. I’m sure it’s beyond nerve wracking being so far away.
Has anyone heard of Familial Mediterranean? A possible diagnosis for my D. She is feeling better. Hospital won’t let her go til her CRLs are a lot lower. Lots of things they are looking at.
I have a friend with a husband and two adult children with Familial Mediterranean Fever. I also know a husband and wife that are both carriers and received genetic counseling while the wife was pregnant.
Today D left hospital, but no diagnosis yet! Doing Genetic Studies, which take 2-3 months
I hope she’s feeling better!
Actually, she’s starting to feel weaker again.
Oh, no. I’m sorry to hear that.
Back in hospital, totally depressed. Only the steriods make her feel better.
I’m so sorry, faux maven.
So sorry. I hope things get better for your daughter soon.
So sorry to hear that. 
So sorry to hear that. I hope she gets some relief soon.