CAROLYN , CURMUDGEON (child's surgery)

<p>bhg, today is MUCH better! We changed from hydrocone to tylenol with codeine and she is much happier. Yesterday she vomited 4 times. Today-zero. Got to see the x-rays again. Fantastic! Lip is down to normal. Swelling is still bad, bad but not as bad. Now she has turned a lovely shade of yellow tinged with green and a splash of purple from below her ears, all along her jaw and under her chin. Very appealing, in a Night of the Living Dead kinda way. </p>

<p>But her mood is 100% better. Here’s why. Doc unexpectedly took the rubber bands off.:EEK:She had mashed potatoes!! She was in heaven. He’ll try this and we go back Friday morning to check how she is tolerating the effort. He said she could eat cookie dough, eggs, ground up stew. D was ecstatic. I don’t know why the change but he says she is really progressing well. Friday some banding will go back on but she will be able to remove them for eating and dental hygiene.</p>

<p>Again, D had lower jaw only, no palate splitting BUT her lower jaw was moved a lot, and a substantial amount of bone was removed. Looking at the x-rays, her jaw was moved the distance of the entire back molar. IOW, prior to surgery her upper back molars rested on nothing on the lower jaw as those lower molars were resting under the second from the back top molars. He cut out an entire molar’s length of bone on both sides (I assume), and now the back top molars rest perfectly above the back lower molars.Too cool. It is miraculous.</p>

<p>D has some limited feeling at all points of her face and Doc says that’s real good sign that full feeling and sensation will return. It’s going to be O.K. and so will your kid’s surgery. I hope everyone has as good a result as D, but without the vomiting. That’s a little spooky.</p>

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<p>That’s excellent! Sounds like she is progressing nicely. Best wishes for a speedy recovery.</p>

<p>BHG,
Hi, at almost 4 weeks post surgery my daughter is doing really well. Honestly the worst was the first 2-3 days then things started to improve. Swelling peaked at about 4 days. My daughters initial weight loss was dramatic but she was not able to keep anything down and was vomiting for the first 48 hours. According to Dr. her reaction happens in about 1% of his paitents. We ended up going back to the hospital for an IV to hydrate her and get some anti-nausea meds in her. It really helped. As for my coping as others have said you just do. She was in the hospital 1 night and I stayed with her. Unfortunately that starts the sleep deprivation. By day 3 it was like the post-partum period for me, little weepy etc. At home my daughter slept in a recliner semi-upright which helped with the breathing etc. Her upper palate was spread and moved out so it made her sinuses sensitive. She is not allowed to blow her nose or use a straw until 6 weeks post surgery. I know you are worried about your son losing weight. After the first week or so when he can eat whatever you can blend it is easier to get calories in. I have not added vitamins or protien powders to her food but you could I guess. If you have any more questions feel free to email me. Good luck :)</p>

<p>Glad to hear she’s doing so well and eating!</p>

<p>Question for all of you - was the nausea from the aesthesia or just a side effect of this surgery? One of my sons and I have gotten very sick after surgery. We get something in our IV’s during surgery now and viola! No yacking. </p>

<p>As an aside for Curmudgeon, son and gf are in the other room watching Night of the Living Dead. We bought it at Walgreen’s for $1.99. He doesn’t normally watch those type of movies, but I convinced him it was a classic that one needed to watch. He’s not convinced. We also bought The Best of Gumby!</p>

<p>The nausea and vomiting was probably a combination of the anesthesia and swallowing blood. I think both my daughters and my husband are sensitive to anesthesia. When my older daughter had surgery for a hernia she had a lot of vomiting afterwards too. Good to know there may be something they can use to prevent it.<br>
BackHandGrip, you asked how old my daughter who had the oral surgery is. She is 17, will be 18 in August. She missed a week and a half of school. She went back because she was bored stiff here at home. Some kids stay out longer because they are uncomfortable with how they look with the swelling etc. Lucky for my D. she has some great friends who came to visit and let her know she was missed at school. Also since it was the last week and a half before she graduated she really wanted to be there. She went to grad. night at Disneyland but stayed off any “intense” rides.</p>

<p>Yeah, it won’t be that bad. Keep telling me that.
Thanks Ohio mom, I need that drink.
By the way, how do you sit quietly in the waiting room during the surgery? Fortunately the hospital, large regional, is less than 5 min. from my house. I’m planning to run out and pick up other son from the township tennis program he’s running. Keeping busy may help me.</p>

<p>Well, the surgery is done, if anyone cares. We sat there for hours waiting. Everything went really well. No wrapping, ice . And he can tal, too! Swelling which akes him look like a chipmonk. No tucks or additions to the chin- it wasn’t coved by insurance and will be left to him to pay for later if he wants to do any enhancement. Actually, the guy looks great.
So S came home today from the hospital. It’s a real battle getting liquid food into him. No nausea, not a huge amount of pain. He wanted to go to a party tonight- refused .
How’s it going curmudge?</p>

<p>BHG,</p>

<p>Glad to hear everything went well! Sounds like he’s recovering faster than you ;)</p>

<p>That sounds great,bhg! D has been religious about the application of heat and the Doc said today she looked like most patients did after two weeks. He did not put the bands back on! W came home and says D’s facial swelling is way, way down . Bruising is worse still. Still has a circle of 90% numbness in the middle of and right below the lower lip. Her mood is just now getting better. I think mom saying she looked better helped, and certainly the fact that the swelling is receding rather than increasing is welcome.</p>

<p>It’s great to hear that both kids are on the road to recovery. Hang in there Curmudgeon and BHG.</p>

<p>So glad to hear that all is well with your son, Backhandgrip! Will keep you both in my prayers for fast healing!</p>

<p>And so happy that the swelling is down, Curmudgeon, and that mood is better. Seeing progress IS so encouraging. </p>

<p>What a summer this has been for some of you! Hope for more fun things soon!</p>

<p>Great to hear of her progress Curmudge.
Good luck to your son BHG, sounds as if he will do well</p>

<p>I’m also glad to hear that both your kids are faring well after their surgeries. BHG, sounds like your son is doing better than expected or better than you had feared going into it! He wanted to go out! wow! These experiences must differ from patient to patient. While not as big a deal as jaw surgery, when my D got her wisdom teeth out, she did not have that bad of a time and she went to a sleepover the next night. It only bothered her for one day pretty much. Others have described much worse recoveries. </p>

<p>Curm…I hope your D’s spirits are improving as she is improving physically really nicely. Sorry she had to go through all this but I imagine when she sees the end results, she is gonna be a happy camper. Kinda sucks in the meantime but is worth it!</p>

<p>All the best,
Susan</p>

<p>More good energy going to both recent patients… and to their families! Thanks for the updates, we’ll hope it’s smooth (but sometimes slow) sailing from here on.</p>

<p>Curmudgeon, so glad to hear of her progress. She’ll be fighting in the lane in no time (will you be able to bear watching the first time she goes back on the court?) :)</p>

<p>BHG, we DO care. I have your S in my thoughts – and all I could do was grin when thinking about teenagers. He wanted to go to a PARTY?? Do they have any idea why parents are usually bald and/or graying?</p>

<p>Oh, I appreciate your kindness, all of you. I really really do. I have difficulty with the ‘ghosts’ here. (I’m not understanding communication in ‘Thoughts’- too spooky- does anyone know what I mean?)
No, he’s in bad shape today.Major swelling , sleeping all day. This stuff scares me. This is day 2.
You are all very very kind.</p>

<p>Backhandgrip,</p>

<p>It really is SO hard to watch your child suffer and to have so little you can do about it. Hang in there. It is a blessing that he is sleeping. He will heal while resting. Try to rest, too, if you can! Remember how they said we should nap while our babies were napping? Easier said than done, but do try!</p>

<p>BHG,</p>

<p>It’s day two - the worst. Always. It will slowly then quickly get better. Hang in there - he needs his sleep. The truma of the surgery itself is really hard on the body the first few weeks. Also the anesthesia. As he comes out of it then there will be the narcotics. Some do better than others. If he is sensitive or allergic to either he will have more reactions. Ask the doctors then to change his pain meds and if need be up them too for a few days while he is getting over the worse. Too, invariably he has swollowed a lot of blood that to will make him feel sick to his stomach.</p>

<p>Alls well though, in the end. You should start seeing small improvements over the next few days. It’s always harder watching helplessly. In the meantime, your encouragement and light hugs will do more for him than anything else toward his recuperation.</p>

<p>Don’t forget to take care of yourself too! It does get better!</p>

<p>Valerie</p>

<p>Carolyn, Curmudgeon (child surgery)</p>

<p>To all:</p>

<p>I just wanted to stop in and say congrats to all the S’s and D’s who have come through their Jaw (orthodonture, oral surgeries) with excellent results and are well on the mend after a few weeks of pain and difficulties. To all the parents too; for their anxiety and love for their children in the midst of complicated surgeries and their recoveries. Also, to those that will be going through this surgery later in the summer – I wish you well…</p>

<p>My visit is to give hearts and thoughts to all because I can truly empathize. My children have very small mouths and orthodonture visits and appliances were started when they were 7/8 years old. My D who is turning 29 still wears a night appliance and her chin could use an implant to bring her lower face forward a bit. As a child she went through many oral surgeries and braces for years. Her bite was corrected over the years by exceptionally talented orthodontists. Today however, her teeth have begun to soften and she has now started dental implants to help preserve her ability to eat, breath and lessen any TMJ arthritis or misalignment of teeth or bite as she ages. My younger S started wearing a palate brace when he was 7 yrs old that constantly had to be screw tightened and moved every few days to help widen his upper palate as he was growing. Excruciating. He is turning 20 yrs old and still sees the orthodontist for his teeth and bite placement, along with wearing a nightly brace. But, thankfully, neither one of them had to have upper palate breaking nor lower jaw surgery. </p>

<p>This reminds me too, of when this S was little at 6 ½ months I was getting very concerned because he was having difficulty sitting up on his own. By 7months he was not only sitting up on his own but walking in between the furniture!. I spent the next two months on the floor with him under pediatric and orthopedic orders to teach and encourage him to rock back and forth and then crawl for his motor physical development. When he was nine months old he was running! At this time too, I remember my father came to visit and being an architectural engineer always had pen and markers and pencils in his shirt pocket. On this visit my father picked my S up to put on his lap. Within a matter of seconds the child went right for my father’s shirt pocket and without hesitation or any difficulty took a felt tip pen out of his pocket – opened it and then without any difficulty put the cap back on and put the pen back into my father’s shirt pocket!!</p>

<p>Obviously, my S was moving fast in dexterity and motor function. However, by 13 months he was placed in orthopedic shoes with an iron brace (flat rod) that was attached to each sole of his shoes with screws that had to be adjusted every few days to turn the feet in the shoes to correct a hip displacement and allow his hips and spine to develop correctly without any spinal curvatures or disc displacement in his hip for future walking as he grew. He wore this A frame contraption for 14 months – mostly at night and for only a few hours everyday. Somehow or other, he managed to go to sleep at night and turn his body when he needed to, and crawl and pull himself up when he wanted to! My H and I always knew when he was awake in the morning because we could hear from the nursery right next to our bedroom his A frame shoe apparatus go thump as he turned to stand up in his crib to get on with his day!</p>

<p>Why do I share these stories with you? It is because I truly empathize and to remark on how resilient children can be. It really is amazing to see how brave they can be and inspiring to see their innate spirit of strength to survive and get on with living life.</p>

<p>I remember too, at the age of eleven, when I was first diagnosed with scoliosis and a congenital intervertabra fused disc at the lower back which was not allowing me to be as flexible with my body as someone else’s. At that time my orthopedic doctor felt that I only had another inch of growing to do and felt the curve although curved in a multi S shape from my sacral all the way up into my skull was not enough to do surgery on or even put me in a Milwaukee brace. </p>

<p>A few years later, two of my H.S. classmates had scoliosis and underwent spinal fusions with rods who were in body plaster casts and bedridden for a whole year to help correct – or should I say – stopped the curvatures in their bodies from getting worse. It was remarkable how they adjusted in that year of being bedridden, then the months of physical therapy to tone up atrophied muscles. Both came out with flying colors and to see them today – one would never know what they went through as teenagers or know they have rods with plates and nuts and screws in their backs.</p>

<p>I however, have a different story. I fell into a category of about 3% who continue to curve after bone growth had stopped. Today they call it adult scoliosis. Through the years I got progressively worse and my bones were starting to degenerate and become arthritic as well. When I was in my forties and the scoliosis curvature was starting to effect my lungs and heart as well as my bladder and bowel along with my ability to walk, I underwent 3 spinal fusion surgeries with instrumentation and then also a lamenectomy and discectomy at the L5, S 1-2 of my sacral back. I am fused from the Thoracic 9 (T9) down to the Lumber(T4). One of these surgeries had an instrument failure – meaning breakage and had to be redone. Another surgery had to be redone because I had two bilateral fractures at the T11 and 12 vertebras behind the rods. Today, I need more fusion surgery down into the sacral area but have held out so far. After all I am well into my 50’s and not the greatest surgical candidate around with Degenerative Disc Disease and osteoarthritis throughout most of my body.</p>

<p>To complicate matters, the spinal curvature up in my skull and oral bite was progressively getting worse with an arthritic disc displacement in the TMJ joint. Orthodontist and oral surgeons wanted to break my upper palate and lower jaw and reconstruct the bones of my lower face. I ended up not having these surgeries but again in my 40’s after years in a dental chair already having my teeth and bite attended to, I ended up in the long run having two major oral surgeries to reconstruct every tooth in my mouth and had 12 dental implants placed to correct teeth and bite alignment.</p>

<p>My jaw is a little off but I feel at my age it is better than having jaw and palate reconstruction. One of my oral surgeons said to me quite frankly – if you were going to have to make your living in the entertainment world – then maybe I would consider doing reconstruction of you jaw and palate. However, your not, so a little misalignment of your lower jaw gives you character – And – what’s more important – the work that we have done on your teeth and bite already has improved the mechanics of its operation and has lessened the arthritis in the TMJ. Today, I wear a night appliance to keep the arthritis in the TMJ joint as flexible as possible.</p>

<p>The point of my stories are that children who have to endure these kinds of orthodontic and orthopedic surgeries – although painful – in the long run fair much better than older adults whose bones stop growing and remaking themselves at 35 yrs old.</p>

<p>I empathize and applaud those teenagers who must face these procedures, but I mostly cheer them on for their young recuperative ages for long term improvement results.</p>

<p>For all the parents, this is such a wonderful support group on CC to help all get through the rough times, and then later have a place to high five when success means the worst is over.</p>

<p>To Your Children!</p>

<p>Valerie</p>

<p>Yep. BHG, day two sucks bigtime . As does day three (I’m sorry!). But about day five things start getting better. At day nine (today) D had me drive her 200 miles to buy two really cute fallow deer fawns for her to bottle raise. (Dad, Dad, it’s my last summer on the ranch. It’s the last time I can raise anything in forever!! Please, Dad. It’s not that far. Huh, Dad, please? You know Dad, I just got out of the hospital.;)) Hang in there BHG. It is so worth it. D has decided she does NOT need a chin implant and is becoming less horrified by her puffed up face. “See Dad. A chin is visible. Huge and puffy but identifiable as a chin.” She’s back to her normal sarcastic self.</p>

<p>Valerie; I have to hand it to you. It sounds like you have endured so much! I’m really glad modern medicine has helped you ! That is so fine! It’s stories like yours which inspire folks. I have heard of scoliosis and the havoc it causes. I will also pray for your daughter too. I hope everything works out well for her. Thank Goodness for modern medicine.
I wonder how Carolyn is doing. Have you emailed her Curmudgeon? Is she posting elsewhere.
Hey Curmudge, do you have a Texas drawl? And do you wear boots and big hats? Also , do you use initials for your first name, like J.R. ?
We have so many deer around here. If someone wanted to purposefully raise them here, well, some folks may be annoyed about that. Too many deer, everywhere . Brother hit one recently with his car and was lucky he wasn’t hurt. </p>

<p>Son is still swelling and has been up a little longer today but feeling really bad. I didn’t know his head could get so big! And I’m keeping him informed about your daughter and her progress, which he is interested in too.</p>