7.4k steps today. That’s the most since mid January! I am sore after the car ride though.
This is the first time my parents and I have had a face to face conversation about this. They’re taking it much harder than I am. Not entirely sure why yet. I think my mom partially blames herself and my dad is just worried about his baby. I think we’re all in a period of mourning and adjustment. This just wasn’t something any of us were expecting in my mid 20s. I think they know much better than I do how radically my life is probably going to change (after having gone through much the same thing with my mom).
I want to convey to them that I’m going to be OK but I don’t think they were convinced especially after seeing all my pill bottles lol.
I really can’t imagine what it’s like to watch one of your kids go through something like this… even if that “kid” is a mostly fully functioning adult
romani, parents and spouses naturally and understandably have an intense drive to protect their loved ones and there’s nothing stronger than a parent’s desire to protect their kid (regardless of age ). It must be terribly frustrating for your parents to want to do so for you but feeling unable to really do so. Be prepared for a lot of well intentioned attempts at micro-managing your health care; I find my self doing it all the time. You may find yourself very tempted to be very “close to the vest” about what is going on with you when you speak to your parents. Whether that’s a constructive approach or not really varies with the relationship. It is with my mother-in-law who makes every family travail about her. On the other hand, I find that the more communication I receive, the more I feel that things are at least understandable and being managed and controlled as best as possible. Not an easy position you are in!
Weights from 7-8 then Orangetheory from 8:45-9:45. They did something called a Tornado which went as follows: 1 min treadmill, 1 min transition, 1 min floor exercise, 1 min transition, 1 min rowing, 1 min transition … Repeat 9 times. Each floor exercise pod was different - burpees, lunges, TRX, hold a plank for a minute. On the treadmill, you can power walk at high incline or run (which I did, albeit at a snail’s pace). I do have a yoga class this afternoon I might do. Operation Healthy Hot Babe has begun, lol.
Brought my gym bag to hopefully carve out a 30 minute workout before the end of the day. NASTY weather rolling in for this afternoon/evening. A big presentation I have tomorrow to a bunch of docs has my shoulders hunched and stressed here at my desk - I need the stress reliever! But D2 is also home for the week and I’m trying to spend as much time with her as I can. We enjoyed a nice long walk yesterday (this one without the poky pup!) in 50ish degree weather.
Romani- I’m sure your parents must be very worried. No matter how old our kids are, we still worry night and day. I hope the meds get this all under control so you can get your health back!
Pizzagirl- what you are doing is incredible, but I hope “Operation Injured, Burned Out Hot Babe” hasn’t begun!
Low mileage February due to being sick for 2 weeks and the short month. 133.5 miles. Managed 3.1 miles this am before some rain moved in. I still feel weak, and am trying to hydrate more in case that’s the problem.
Romani, you will find your way to a new normal. It takes a while, and I find it changes constantly.
I am immunocompromised thanks to daily oral chemo. Peroodic CBCs (basic blood test) will help you assess how your body responds to the meds. You’ll learn how to read those reports in no time!
My numbers tend to be a little low, but I have never had to wear a mask. I wash my hands frequently, take vitamin C and a good time multivitamin. At one point on interferon, I had to take neupogen shots to raise my white count, but changing to a different chemo solved that issue.
Thrift stores also have used medical equipment. If I am doing a lot of walking, I have a hiking stick. My chemo caused a lot of bone and joint pain. Some days I can walk forever, some days it’s hard to get out of a chair.
For now I have to get monthly blood tests. I couldn’t remember what he was monitoring for but I know it was mostly related to the meds.
Bad day today. Woke up all sorts of sore and my body is quite angry with me. Guess I overdid it yesterday. But I have no regrets, it was nice to feel almost normal again
Looks like today is a lazy day. No better place to be lazy than a parents’ house though
I ran five miles this morning–two on the slightly shifty, uneven sandy beach and three back on the road. I’m getting plenty of steps in with additional walking, but they are small steps so it seems like they’re contributing more to mental than physical health Plenty of vitamin D therapy too. The eating has been good but excessive. I made the killer baked shrimp scampi from Ina Garten last night, and had fried calamari and french fries at lunch yesterday. Cannot resist the fruits of the sea, especially when they’re accompanied or prepared with butter!
Trying to talk myself into a run tonight, I should be doing 8 miles. But the rain has turned to snow (will this ever end?!) and according to the weather app the winds are 24mph. Not sure I am that committed!
Pizzagirl-you are incredible! I also hope you don’t burn out with all these classes. But maybe you’ll find one or two activities that really “click” and you’ll get hooked. Or maybe you’ll just continue to play them all - your energy is really impressive!
PlantMom-all that seafood sounds marvelous! Is your mom doing better?
Thanks, C3B. Yes, she’s doing better. She has just been overwhelmed with losing her spouse, being a mother, and the trials, aches and pains of growing older. I’m trying to be supportive while she’s getting her new normal on. It’s hard to be patient all the time, but I’m glad I’m here with her.
I made possibly the most decadent cake in history. The ingredients are astounding. And I ate more than a few slices. Feeling piggish and hitting the gym with extra verve tomorrow.
Speaking of cake (do we get kicked off if we talk cake on this thread??? ) S who is getting married said he and fiance are picking up a “to-go” sampler box from a local bakery tomorrow for wedding sampling. He asked if he could bring it here for opinions…well, YEAH…!
Cake can get you banished. Donuts, Doritos, Ice Cream and Oreos are acceptable.
Romani have you tried acupuncture? My wife has Epstein-Barr virus, an autoimmune disease that has many of the symptoms I think you are experiencing. Her acupuncturist is also an MD and he has done wonders for her. Unfortunately good acupuncturists are hard to find, expensive and typically aren’t covered by insurance. I go to him once a month to get an energy flow tuneup. I know you are going through a lot right now, but it might be something you might want to investigate in the future.
AlterG night tonight! 9 miles total. 4 minutes at 5:00. Signed up to do the indoor triathlon on Sunday. The pre-race crazies are already settling in my mind. I need therapy.
Hi ohio, no I haven’t yet but I am interested in it. Since this is still so new I’m still figuring out what options are out there.
I’m trying to plug into some Lupus and Arthritis networks around me so I can find recommendations for good local people. I have been fortunate beyond words that I have found a really great Rheum and Derm on the first go round.
Thank you all for the tips. I’m really taking them to heart.
March is off to a miserable start here! Wind, rain, cold. Ick. Just ick. When is our vacation?
Still playing with my Fitbit. It seems like it has a delayed hr response. I ran a couple of hills today trying to make it to the bus, and while I was clearly out of breath (those were mighty steep and relatively long hills!!), Fitbit showed hr under 100. Nope. It registers hr fairly accurately if the hr stays in one zone give or take a few heartbeats, but it does not do well with rapid changes.
). It must be terribly frustrating for your parents to want to do so for you but feeling unable to really do so. Be prepared for a lot of well intentioned attempts at micro-managing your health care; I find my self doing it all the time. You may find yourself very tempted to be very “close to the vest” about what is going on with you when you speak to your parents. Whether that’s a constructive approach or not really varies with the relationship. It is with my mother-in-law who makes every family travail about her. On the other hand, I find that the more communication I receive, the more I feel that things are at least understandable and being managed and controlled as best as possible. Not an easy position you are in!
