<p>When D was little (she is 19 1/2 now), we noticed that in almost every photo of her, whether a candid or a studio shot, her right eye looked a little “odd”. Sometimes it was red-eye, but usually it appeared that she was squinting in that one eye. Never thought much about it - just thought that was how her eyes looked when she smiled. It was really not that noticeable to anyone but us. She started wearing glasses in middle school, again - not a big deal as both of us wear glasses/contacts and then she switched to contacts for HS. </p>
<p>Then she started driver’s ed and had a really difficult time, especially with her peripheral vision. She took extra road lessons and went for her road test at 16 1/2 and failed. I used to say “didn’t you see that car coming up on your right?” and she honestly didn’t. OK - we just thought that she wasn’t ready to drive - LOL! She started her senior year (still not driving) and in March of that year, went for her regular 2-year eye exam with her optometrist. Well, she failed the part of the test that they check peripheral vision and her doctor diagnosed her with a corneal condition called “keratoconus”, which is a degenerative disease of the cornea which causes it to bulge out and become misshapen. This condition usually first manifests in late teens - early 20’s - no known cure other than a corneal transplant. Yikes! </p>
<p>So, being that we are only 1 hour from Boston, we quickly got her an appointment with an ophthalmologist at Mass Eye and Ear who specializes in this disease. Over the past (almost) two years, she has been fitted with specially made hard contact lenses which has corrected her vision to as good as it will get. No more soft, disposable (inexpensive) lenses, her glasses won’t correct the vision as well as the hard lenses, but luckily, our insurance will pay for 1 pair per year. That first summer was horrible - the lenses popped out all of the time, she lost several (takes about 2 weeks to get new ones made) and we made many trips up to Boston. The week before she left for college (200 miles away), the doctor declared the fit to be correct and off she went. Last year, there were a few times where she lost or cracked a lens and she had to wait a few weeks to get a replacement, but thankfully, she has now adjusted very well and actually has gotten to the point where she has a spare set in case one is lost or cracks. </p>
<p>But, I often wonder if the “funny” eye we noticed back then was the beginning of this long odyssey?? Prognosis is a possible corneal transplant down the line, but right now, the eye is stable and the lenses are working. She also has the disease in her left eye, but not noticeable unless they actually take the mapping pictures of it. We are so fortunate to be in a position to take her to Mass Eye. As far as the driving - well she started driving again this past summer, took more road lessons, and failed the road test twice! But, at least we knew it was more a case of being a nervous driver rather than a vision-impaired driver. She is determined to try again over winter break! I don’t know if this was something they could have diagnosed when she was younger, but if I could do it differently - I would have taken her to have it looked at by a specialist. </p>
<p>I would suggest having the little one checked out - if for nothing else than piece of mind. Good luck!</p>