How Do You Know It's Mono?

<p>So my S has had a high fever for two days now, cresting at over 104 degrees. He’s got some tiredness and a sore throat, but basically it’s just the fever. I took him to his pediatrician this afternoon, who did a rapid strep which was negative. He didn’t do any bloodwork or anything for mono, even though S admitted he’d been exposed. Possibly. (Kid doesn’t want to discuss his kissing history with his mother.)</p>

<p>Those of you whose kids have had mono, what was your experience? When did they get a diagnosis? Because I am kind of frustrated with “It’s probably a virus, let’s wait and see.”</p>

<p>Any help appreciated, thanks in advance!</p>

<p>My very non-expert opinion…</p>

<p>People are exposed pretty often, so that’s not a huge issue re: mono. If it continues, insist on the test and then get re-tested. Bring him back to the doctor if his fever breaks over 104 degrees, if his fever doesn’t respond to normal methods to get it down (Tylenol, lukewarm or cool baths, etc.), if he gets dehydrated, if he gets new symptoms, or if he doesn’t start getting better in a couple of days. </p>

<p>It’s normal for sick kids to be very tired. It’s not normal for kids to sleep for 16-20 hours a day, which is what you see with mono. </p>

<p>Even if it’s not mono, if he doesn’t get better soon or if he develops new symptoms, you should bring him back in. </p>

<p>Does your son get fevers that high normally when he’s sick? Most adults don’t seem to normally get fevers over 102 or 103. Kids tend to get higher fevers than adults. Temperature should usually stay at or below 104 degrees, though. Anything over that you should take very seriously.</p>

<p>My son was on antibiotics for a sore throat. The soreness got worse in spite of the medication. He described the feeling as something akin to gargling with glass. At that point the doctor is pretty sure you have mono.</p>

<p>A corticosteroid of some sort gave him quick relief. He never was all that tired and couldn’t sleep because of the extremely sore throat.</p>

<p>Take him for blood test. It’s important to know if he has it or not as it affects the liver–and certain precautions should be followed post illness.</p>

<p>Both of mine have had it–one fairly seriously with two weeks of missed school. The other one probably got it from his brother over Christmas holidays–before brother was diagnosed. He never knew he had it. (I feel slightly guilty that I probably yelled at him to get out of bed and get to school when he was telling me he was sooo tired. No fever though).</p>

<p>If the symptoms (fever and sore throat) persist beyond another day or two or if they get seriously worse even in the next 12-24 hours, I would definitely get him re-tested for strep and a blood test for mono. My S is visiting for a week and overnight developed terrible sore throat (with white pus things on the tonsil) - went to urgent care and got both the strep and mono tests. It was strep - but I’m glad they checked for mono too. The nurse told us that strep tests are often false negatives - especially the initial ‘rapid’ tests. Hope your S feels better soon!</p>

<p>HeliMomNYC: we had a rather traumatic experience with mono, from which I learned some lessons, and can maybe share with you. Toward the end of my D’s first year of college, she got real sick… bad, bad sore throat, fever, vomiting, and exhausted. She went to her school’s student health center, told them she’d been exposed to mono in her sorority house, and they wouldn’t do the blood test. They did a strep, which came back negative. After their getting my daughter’s permission to talk with them, I called the health center and asked why they wouldn’t test her… their answer, “There’s been a lot of viral stuff going around; that’s probably what she has.” I’m thinking, “Mono IS viral.” Anyway, they wouldn’t do anything, and over the course of a couple of weeks, she got better… just in time for finals, and packing to move back home. Within eight hours of being home, she ended up in my bedroom in the middle of the night crying, saying the same awful sore throat was back (so sore she couldn’t swallow her own saliva, and had to spit in a cup). I sent her to our family physician the next day, they did a blood test, and said she had mono, and that she was probably having a relapse.</p>

<p>As you can imagine, I was furious, and shot off some letters to the health center; of course I never heard back from them. It infuriated me that she’d had mono all that time and despite our pleading with them to test her they wouldn’t. There are lots of precautions they give to kids who get mono, especially as it pertains to ::ahem:: drinking alcohol, and physical activity. Because the liver is more fragile during a bout with mono, any blow or knock to the liver can be dangerous, so people are usually told no physicial activity for at least six weeks. If my daughter had known she had mono the first time around, she would have taken it easy for a much longer period, probably eliminating the chance of relapse when she got home. She spent most of that summer getting over the mono, then fighting other bacterial and viral infections that I’m sure she picked up because her immune system was shot. So she never got a summer job - it was pretty miserable. </p>

<p>Lesson learned on our part: if you feel as if the student health center is being negligent, send your kid to an acute care center or something similar. Since we live 700 miles from her college, and we’d had no reason to question the student health center (they were very attentive when she broke her foot fall semester of her freshman year), we hadn’t done our research ahead of time. By the time she returned for her sophomore year, we had a list of possible doctors/clinics she could go to (that were in our insurance network) if anything similar happened.</p>

<p>Anyway, my daughter’s biggest complaint was the god-awful sore throat, and extreme exhaustion, although she had a decent fever, too; it was fairly manageable alternating Tylenol and ibuprofen. </p>

<p>Interestingly, at this health center, they don’t do rapid strep tests; only 48 hour ones. Our physician’s office does both the rapid and 48 hour one because often the rapid comes up negative (it’s early in the illness), then the 48 hour one comes back positive. So he may still have strep.</p>

<p>With D2 heading off to college for her freshman year in August, I’ve already looked up local acute care centers and clinics in case anything similar happens; she has an occasional (once a year or so) flare-up of asthma that requires a nebulizer treatment (of course, never during regular office hours), so I’m well ahead of the game in telling her where else to go if her symptoms aren’t being taken seriously. She, too, will be 800 miles away from home! So it’s not like I can rush in and take care of her… which in a good way is good. It teaches them both how to manipulate the health care system, and to be assertive with their providers.</p>

<p>I hope your son feels better, soon. There’s not much worse than having a high fever in the summer time!</p>

<p>One of the things about the blood test for mono is that it will often not read correctly until approximately a week after symptoms first develop - which may be why his doctor decided not to do the test. If he doesn’t get better soon or gets worse, take him back (or elsewhere) and insist on the blood test.</p>

<p>I had a positive experience with my campus health center when I had mono, although it can be hit or miss. I think it’s usually the right place for a student to start if they are not critically ill, but if they are not receiving appropriate care, they should definitely find an alternative.</p>

<p>Thanks everyone for your responses. It’s 3:30 am now and I’m up with him…he couldn’t sleep because of the fever and sore throat, so I gave him Tylenol and now he’s having drenching sweats and can’t sleep because of those. I’ve never known him to have fevers like this except when he had strep, and he hasn’t had that for quite a few years. I’m just frustrated and worried because, darnit, i want a diagnosis! Logically, I think his doctor has probably treated him appropriately…I guess I just want that extra reassurance that experienced parental posts provide.</p>

<p>HeliMom, mono can be difficult to diagnose in the first week, and there are definitely false negs with rapid strep tests. If his fever has been resistant to Tylenol for 24 hours, and he can’t sleep, I would take him in to be retested for strep and possibly mono.
A classic symptom of mono, although it doesn’t appear until later, is swollen lymph nodes in the back of the neck - almost no other viral illness does that. Swollen and often tender.</p>

<p>helimom: Hope you are both asleep as I type this. Keep him hydrated even if he doesn’t want to drink. I had mono in college. Would drench the sheets with sweat every few hours. It was terrible. I just remember not wanting to eat or drink because my throat hurt so bad. Almost hospitalized because of the dehydration. I was pretty incoherent so take it easy on him. Stayed home. Lost 10% of my weight in two weeks. Hang in there. It’s nice he is home where you can baby him and keep an eye on him.</p>

<p>

The mono diet! Got to look into that one. ;)</p>

<p>Sympathies, HeliMom. S had two “mono scares” during freshman year. The first at his Katrina school (a wonderful school, btw; but they didn’t do a mono test despite him being exposed). This one turned out not to be mono - however, the “pain and suffering” was still pretty bad while it lasted.</p>

<p>The second was at Tulane during finals. He did get tested and it was mono, so he got excused from remaining finals (took the first one in the throes of the whole thing! - didn’t know he could take incompletes!), took incompletes, came home and rested and took them later. His case only lasted a couple of weeks with tons of rest and motherly catering to his fluid and food needs (couldn’t eat anything solid for a while; too much throat pain). He didn’t even seem to have much in the way of long terms effects - just slightly more fatigue than usual over the few weeks following recovery.</p>

<p>I suppose it’s possible that these Student Health Services have a “sixth sense” about whether to test for mono or not - after all, they’ve seen it a million times. Still, I wanted them to test for it when they wouldn’t. And I think I would have helicoptered in :wink: if his first illness had lasted much longer, or into a critical period like finals.</p>

<p>Good luck.</p>

<p>FWIW my son got excellent, instant diagnosis and treatment from his student health center. I had private doc backups arranged but he never needed them.</p>

<p>Another word…be very very careful with the Tylenol. Do not overdose it–it has a liver toxicity beyond the recommended doses. Acetaminophen might not be the best choice for mono treatment since mono puts stress on the liver. My weirdo opinion anyway.</p>

<p>(I know a girl who had to get a liver transplant after taking too many Tylenol on top of alcohol).</p>

<p>HeliMom - My friend’s teenage son (central New Jersey) was quite sick a few weeks ago with mono-type symptom and was tested for it. TThey were told by the doctors that they have been seeing quite a lot of it recently but, fortunately, he did not have it and he is now slowly recovering from whatever other virus he has. Best wishes for a speedy recovery for your son.</p>

<p>Good reminder, Cheers. Never mix Tylenol (etc.) and alcohol, and always stay within recommended doses unless instructed otherwise by your doctor.</p>

<p>White spots in the throat are present in mono, not strep, good indication. Nausea, extreme tiredness, lethargy, sore throat, etc. Good luck.</p>

<p>Be persistant. My son had a terrible senior yr. He first was sick in October where he had the high fever, sore throat, could not stay awake. I took him to the Dr and they did a strep test that was negative. They did send it out to be cultured and it came back as an rare bacterial infection that can cause sore throat. He was given an antibiotic and within a few days on it felt better. But had already missed 6 days of school. A month later the same signs came and went. Back to the Dr who then felt it was allergies. Another round of drugs and nose spray. One month later he was still sick off and on. They finally did the blood test in January that came back positive for Mono. By this time he had been sick off and on for 4 months. The Dr stands by the idea that the first infection was not Mono but I have my doubts. After the Mono he also had severe bouts of tonsilitis. He ended up missing over 20 days of school, and he is on block scheduling which is like missing 40. This is a kid who in previous years had missed a day or two each year. His grades suffered. If we had had the diagnosis earlier he could have had home hospital school. By the time we got the confirmation of mono I felt that he was on the mend and didn’t need it.</p>