<p>Glad you felt you could turn to CC for strength and support. I’m hoping that your husband continues to feel relief on this new medication and that his current (or future) team of doctors finds a long term solution. All my best wishes and thoughts.</p>
<p>I hope you get some good news tomorrow. Try to get a good nights sleep.</p>
<p>Sending prayers and healing thoughts your way.</p>
<p>papengena, God’s blessings and cyber hugs to you and your family.</p>
<p>papengena, I just now have read this thread and you are so in my thoughts and prayers.
I’ve been where you are twice. And if its any help he’s in the next room sleeping like a baby! The last time was four years ago and he’s been great. Through it all I just keep telling myself -he’s still here, thank God! And you did the right thing to tell your kids, this is a family issue and they should not be left out of any of it. I’ll be keeping up with this thread, please keep us posted. And sleep well, you’ve got to keep a good face on, for him and the kids.</p>
<p>My thoughts are with your family, papangena. Wishing your H all the best.</p>
<p>Hi everyone. I did get to speak to one of the doctors today…the one my husband calls a kid, lol. He is actually very aware of what my husband is going through. He asked me if I had any feelings about what is going on…and I did tell him that I had my husband call his cardiologist 2 weeks ago, to make an appt, which was actually for tomorrow. I was concerned about the stress/anxiety I knew he’s been under, due to business concerns. The doctor said, well we questioned him about that, and he didn’t feel he was under additional stress etc. Once I told the doctor just how much, he said that could explain this las “layer” of heaviness he’s having on his chest. His enzymes are returning to normal, so they were perplexed about the chest heaviness. Husbands concern is, if he has to learn to live with this level of “heaviness” how will he recognize symptoms of a heart attack??? Makes alot of sense to me!! Today they increased his time released nitro, and added xanax. I did ask for a referral to Cleveland Clinic, which the Doctor said he’d discuss with the team, but he’d need to be released before getting the referral.</p>
<p>He feels the same so far, but they just started the new dosage/med at about 5pm. He may come home tomorrow or Wed.</p>
<p>You are all awesome for caring about us:) It does help me knowing people out there understand and care.</p>
<p>Bless you all</p>
<p>Good luck. We’re all pulling for you. I hope the Cleveland Clinic isn’t half a continent away.</p>
<p>Papengena:</p>
<p>It sounds like the doctor is hopeful; I’d still would advise getting more opinions, perhaps from doctors at the Cleveland Clinic?</p>
<p>I did not read the whole thread, but I wanted to add my support to Papengena and also mention that the Cleveland Clinic will do long distance consultations using copies of diagnostic testing your husband has already had. [Chat</a> with a Heart Nurse](<a href=“http://my.clevelandclinic.org/heart/chat_with_a_heart_nurse.aspx]Chat”>Make an Appointment with a Heart Care Specialist | Cleveland Clinic)</p>
<p>Oh Thanks Schmoo!! I did get that ball rolling, about Cleveland Clinic today. I guess hubby has been a bit foggier then I realized, so he’s getting signals crossed. I will try to call that number tomorrow to see how to proceed with Cleveland Clinic.</p>
<p>Its not that awful a drive for us. We are in NW New Jersey…its about 7.5 hours…son goes to Oberlin Con, so we would actually have him nearby for support.</p>
<p>I feel like, we’re doing all we can at this point. I didn’t get to talk to the “real” cardio yet…but I am pretty sure he will be there in the morning. I’m really surprised he didn’t at least call my husband today:(…booooo to him!! lol, but I know he must be very busy. But in our world my husband is the most important patient there is right now, lol. Of course all families feel the same way.</p>
<p>I am feeling so much calmer…just knowing we are doing all we can. The Cleveland Clinic idea gave me a brand new hope. Even if the current doctors can’t help, at least they did say its a viable alternative. Thats ok with me!</p>
<p>Keep us in your prayers, I think its working!
f</p>
<p>I agree with everyone that Cleveland Clinic has an awesome rep, especially for heart and complicated heart issues. My cousin flew from HI to there for some valve work & I have heard wonderful things about the staff there.
Good luck pursuing this–take care while you persist in getting the best care for hubby!
Starion</p>
<p>Your resiliency is remarkable and inspiring. So glad that you are feeling calmer and able to handle what’s ahead. Continued best wishes.</p>
<p>I wanna exchange nicknames with you worrywart!! lol</p>
<p>schmoo…thank you for the link to the nurses line at Cleveland Clinic. I just left a message there for them, and should hear back tomorrow. After reading all the info on the website, I am so convinced that if nothing else comes along before hand, we will end up there!! I hope our insurance covers it, lol…at this point, I actually don’t care!!</p>
<p>papengena</p>
<p>I am so glad to hear that you are moving forward with the Clinic. It is a truly special place.</p>
<p>I thinks its important for them to see your H and make a determination on what can or can’t be done. A great majority of the patients they see are those that others have no answers for. Thankfully your Doctor isn’t letting his ego get in the way either because many don’t want to admit that something is beyond them.</p>
<p>If you need help getting in, I may be able to assist you if all else fails. Please let me know. Good luck.</p>
<p>papengena,</p>
<p>I am a Cardiac Surgery Clinical Nurse Specialist, have worked with all kinds of cardiac patients for decades. </p>
<p>I, personally, would not feel comfortable accepting that the ‘extra layer of heaviness’ was from stress. They should consider it angina till proven otherwise. </p>
<p>Besides the cardiac cath, have they done an MRA, transesophageal echocardiogram, perfusion scan??? These tests are called for in cases of continued angina. </p>
<p>Is he in the Coronary Care Unit? </p>
<p>If they release him without definitively assessing ongoing coronary artery flow and cardiac muscle function, I would get him to Cleveland Clinic ASAP. Also excellent are Hospital of the Univ of PA (HUP), and Johns Hopkins University Hospital. I agree that Cleveland Clinic is the best, but there are other extremely excellent cardiac hospitals in the Mid-Atlantic states. </p>
<p>You need to be someplace where ‘his’ cardiologist being on vacation does not change or in any way postpone a very proactive workup. Time = muscle if his heart is experiencing low level ischemia. </p>
<p>Keep us informed.</p>
<p>Just checking to see how things are going. I hope today sees continued improvement, and the DR is ready to send information to the Cleveland Clinic.
Best wishes.</p>
<p>papengena, I would gladly give up my moniker if I could only shed that trait. I hope you get that return call from the Cleveland Clinic today. (We’ll need a way to keep straight whether the clinic is CC or whether we on this board are.)</p>
<p>any news from papengena?</p>
<p>worrywart, the Cleveland Clinic is known by the initials CCF for Cleveland Clinic Foundation.</p>
<p>dsc6, fantastic advice!</p>