<p>^In our family, H carries something called IHS which means a thickening right at the valve of the heart; doctor’s nickname it “Fat Heart” but it’s rather specific.</p>
<p>An older brother noticed he was getting winded and it was diagnosed; then all 5 brothers had it checked; some had it, some didn’t. With that on the medical history, S’s school wouldn’t clear him to enter any competitive sports until he’d been seen by a pediatric cardiologist, with EKG’s and all, since of our 3 kids, only the youngest had a glimmer showing up on his baseline EKG. </p>
<p>We were told, “This is the kind of thing you see when an athlete in top form suddenly collapses mid-game, with no prior problems evident.”</p>
<p>We had a dilemma in 9th grade, because he wanted to try out for soccer (new school, new community). The problem solved itself, however, because in tryouts he saw the other kids were prepped to pratice so much harder than he, with his AYSO fun times, that he couldn’t even keep up with the running. He cut himself from the team before the coach could. </p>
<p>He made friends through theater and A’s in gym just by showing up on time with his gym clothes on. Interestingly, at such a competitive school (with state winning soccer team) their PE grading policy was based upon participation and very simple indicators of effort, rather than achievement.</p>
<p>A researcher in Toronto, where my BIL lives, is currently looking for those with this diagnosis in order to identify a chromosome that would rule out the genetic inheritence, so kids wouldn’t all have to take those EKG tests, as all my 3 now have.</p>
<p>We only know this about our family because of the hyper-awareness of the one BIL. He got winded and fainted carrying the Torah around, LOL, part of his job, which led to the diagnosis in his 40’s. Otherwise, we as parents wouldn’t even know ANY of this. </p>
<p>It is also easy to miss when the heart thickening is at the valve. My BIL happened to cough during the procedure and THEN it showed up. At that point it went into a medical journal, to advise other doctors to ask the patient to cough once during the test. BIL brags he has a cough named after him (it is).</p>
<p>These things can really get by even the most diligent doctors and families.</p>