Parents caring for the parent support thread (Part 1)

Not all elderly are negative. There is an idea that our prominent traits get magnified when we age.

My BFF’s situation with her mom’s AL was that they simply weren’t qualified to fully assess what was going on when a resident fell or had odd symptoms. Not even the RNs. There were times when they called 911 after a fall- and times when they called BFF, then said, you need to take her to ED, we can’t be responsible if this is something that needs treatment. She described it as them erring on the side of caution. (And I’m guessing, some concern for liability.)

It sounds like the hospice involvement takes some of the responsibility (or is it the liability?) off the AL shoulders.

My condolences gouf…what a difficult time for you. I hope you are taking care of yourself.

I just want to say that I just finished truly launching D’s. I am now dealing with daily calls about parents. FIL in NH in TX and mother is in AL in PA. Really OK but not my idea of free time.
Got a question - if FIL slips out of his chair or bed (stroke one side) and slides to the floor we get a call to let us know, 5 AM etc. about one every other day. Are they required to call us to let NOK know? We asked about restraints (should have used the word posey?) but they said they do not use them. Ideas? FIL has some kind of bed alarm but not sure what else they can do. We are 1000 miles away and moving him at this point is not practical closer to us. He is not injured but they feel that they need to tell us each time.

RMH- so obvious it has probably been tried: bed rails. The longer ones may pose hazards of their own, though. NH may be required to notify; my father’s nursing home once called to report a scratch (no broken skin or pain) that wasn’t there the day before. Don’t think they would have called for that in the middle of the night.

Falling out of bed = bed rails. My son used to fall out of bed and we put a rail on the bed (they sell ones that are temporary and can fit on any bed.

Chair issue is more difficult. What kind of chair? Could he hold on himself to a walker while sitting?

I feel like there should be some kind of answer to that. If you don’t know the room setup, maybe you can Skype them and look at it, or have them send you a video from a phone?

I think a basic walker is one of those things that people ignore as a safety assistant. Yes, it is used for walking but can be something to rest on while sitting as well. Even when on the potty for example.

Just got home from moving my folks into a senior community. They are in a lovely independent living apartment - brand new kitchen, balcony, lovely community with lots of activities. I took them to orientation, we tried the mailbox key and they got their swipe card for meals. Pretty much exactly what I did when I took S to college!

Here is my summary and advice for anyone looking at this task.

I did not start early enough packing. I live an hour away and if I could have gone down once a week and decluttered a closet and packed up non essentials it would have been great. We did some purging before but not enough.

On Tuesday I arrived at their house and staged things. I put stickers on all the furniture to be moved and different ones on all the items to remain at the house (it is not on the market yet). Wednesday I had a packing company come that I hired in desperation last week, after I realized I would never get to everything. For example, my mom really purged her china cabinet and gave away a lot of items but still had her nice china and wine glasses. For some reason, until last week, I thought if I had a couple of boxes and a few newspapers I could pack up that baby in an hour or so. WRONG.

The professional packers needed 4 hours with two workers to pack the china cabinet and all the breakable kitchen items. And they had all the supplies. Nothing broke, they did a great job. In my case, worth the money.

On Thursday we went to orientation and signed the contracts. It was a LOT of information and it was good that I was there as mom and dad had trouble retaining all of it after a bit. We then had lunch in the community’s club room and came home where I finished packing up pots and pans and organizing each room for the movers. I tried to keep all the items to go on the truck together and away from the items that were staying.

Friday - moving day! The neighbors had invited mom and dad to go out to breakfast and hang at their house while the house was packed up. BEST DECISION EVER. They would have been in the way and sentimental and worried about everything the movers touched.

I cleaned out the fridge and packed up the last of the food while they loaded the truck. I loaded my car with some more personal and sentimental stuff, plus our suitcases packed with 2 days of clothes and medicines, just in case.

We arrived at the apartment at lunchtime. The community sent up lunch for us and we got to work. The movers moved everything in, following my directions of where it went. TIP - plan out the floor plan way in advance and think of things like cable outlets, light switches, and most important - mobility and maneuverability around furniture for elders who may use a walker in the future.

By then my husband and kids had come and my daughter attacked the kitchen. She posted notes on each cabinet listing what was inside so mom could easily find her way around. My mom is not organized or intuitive in those aspects, so we set her up in a logical way in hopes that this would reduce the stress she feels when she can’t find medicine bottles or utensils.

I created a dedicated space and drawer for information. I stocked it with pens and pencils, notepads, and the charger for her iPad and phone. I also put the community’s directory and calendar there next to the phone. I am hoping she continues to use this as a central place for information since she will need to learn so many new things and details (fitness class times, dining hours etc)

To my amazement, the four of us managed to unpack about 75% of the boxes on Friday. We loaded books back into their bookcase, clothes in the closet, and food in the cupboards. We had dinner brought in again and collapsed about 8:00.

Today we finished it all. Realized we needed some things and made a Target run. I left them there in good shape. I think they will do well, but there will be some bumps. My dad, who has a mild brain injury, did ask when he was going home, but just once. But then he caught on.

Random tips for future movers:

Don’t forget the TV remotes. The packers packed up the TVs but did not take the remotes. I ran back to the house for them.

Bring your own toilet paper. Everything was pristine but there were no paper goods.

The movers would not take the mattress pads and comforters on the beds because they were not packed or bagged. It didn’t occur to me to pack them since we had to sleep in them the night before. I should have had a box or heavy duty bag ready for them. Instead i had to throw them as-is into my car.

Don’t forget extension cords and surge protectors. Mom and dad’s were very old, very short, and even had adaptors on them. I did not trust them so we bought more at Target.

Consider lighting in the new place. We did not realize we would need a floor lamp of some type in the living room. It was smaller than the old house’s and so we could not take the end table which held a lamp. Also the dining nook was ready for a hanging lamp/chandelier but we did not have one so it is dark in there at night until I can buy one.

Definitely plan to have your parent(s) occupied for part of move day. It is just so much work and mentally it will be tough on them. Plus they are probably not able to do much physically. I brought them into the apartment when it was time to ask them where they wanted certain things.

Have a bottle of wine or beer in your fridge for when you get home. You will need it.

It was one of the most emotionally up-and-down weeks of my life. I haven’t spent that many nights sleeping at my parents’ house since I was single. We pushed each others buttons, but then I also enjoyed having large amounts of time to visit. I loved that my daughter helped my mom sort through her jewelry box and learned all about the items mom had from her mom, and my son listened to my dad tell him about the various things he had collected from his career.

Whew, did not intend for this to be so wordy, but it was kind of cathartic to write down. Hope it helps someone.

Great post, surfcity! Glad it went so well for you and your parents.

Bravo, surfcity! Huge accomplishment and great tips. Kudos to the brilliant neighbors, too. Really helps to not have parents watching every aspect of the move.

When my parents moved to continuing care near us (and 2 Hours away), their arrival time allowed for most stuff to be unpacked, the beds made and lights plugged in. It made it home much faster, as far as I could tell. Yes, little decorative items were placed over time, but they were tired and things were in place.

I breathed easier once they were appropriately situated and I hope you do, too!

We also kept mom out of the way when we moved her. We had my sister pick her up before the movers showed up and brought her back once we were mostly unpacked. Moving takes way longer than we expected. Her ccrc required someone stay with her 24/7 the first few days to help with the transition. It sounds fairly common to have some anxiety and confusion at first.
It was the best decision we made in choosing this place. There is no way moving in with one of us would have been as good as this, my mom needs a team of people and services and is more than a full time job.

My mother, well fed at her new IL place, is now having issues with her type two diabetes counts. Alas. She’s super smart, but self indulgent (“I want/I don’t want to…”) Has an appt with a nutritionist coming up but I need to send her some info about eating. Her’s is outdated and advice has shifted.

LF, check out this article if you haven’t seen this info before:
http://jama.jamanetwork.com/article.aspx?articleid=896023

Doctors are now saying that the frail elderly should not worry about strict glycemic control, and should have less stringent goals. The benefits of the tight control, according to the article, may be outweighed by the considerable burdens.

Great article @“Cardinal Fang” Common sense at last!

Thanks, CF. I just called and read her some info about her night hunger and the new food revisions (she didn’t realize she can eat certain things under today’s guidelines.)

This place gives them a choice of two meals daily. I think she’s eating breakfast on her usual schedule, has her own light lunch, but that dinner at 4pm is probably wrecking havoc around bedtime, then overnight. And it snowballs. They don’t have a diabetic meal plan, so she’ll talk the the chef about a few options. And she’s taking a handful of the sample menus to the nutritionist, for help. Mentioning these bits for anyone who is checking IL or AL. We think about decent food, maybe forget a bullet like timing.

Srfcity, I am so impressed with the move! Things did not go half as well when I moved my folks. Much of it has to do with the fact they were a 4 hour plane ride away :frowning: On the phone, they seemed like they had everything under control. But, when I arrived, 2 days prior to the move day (house was sold, they needed to move that day), they was much disaster all around. There is a lot I would have done differently.

LF, the nutritionist is a good idea. But, maybe her sugar is poorly controlled as she is finally eating decently? Perhaps her medications should be adjusted instead of the diet changes? My FIL had crazy blood sugars much of his life. At a certain point, we stopped bugging him to stop eating the food he wanted. He lived many years after that pretty much of sound mind and body and died peacefully at 87.

For those of you who have elderly parents/relatives, you may find this product useful for them. A fellow CCer posted about it on the Eureka! thread.

https://www.carcane.com/
Carcane will help a person get out of a car more easily.

@bookreader thanks for the car cane link- I have forwarded your link !

The last day for mom’s medicare coverage in rehab is tomorrow. We’ve been trying to find the right place for her. She doesn’t qualify for AL due to being a fall risk, and she really isn’t able to take care of herself. Staying in her apt at the CCRC (where she’s in rehab as well) with full time care is cost-prohibitive. The SW at the facility recommended a person who will help find appropriate placings.

We met with the consultant on Saturday and visited the Cadillac of AFH; mom hated it. Since we can’t afford it for longer than 2.5 years, it probably wasn’t going to happen anyway. It does leave us without a place to stay. Mom is upset (rightfully so), scared, and worried. She finally agreed that an AFH is the only choice.

So, now on to the very difficult task of finding the right place. Rehab will let her stay in her room for a few days as long as we pay for it. If there was something terminally wrong with mom it would be easy to have her go to the expensive place. Instead we know that she could live for years whether she wants to or not.

She wishes one of us had a MIL apt for her, but our homes aren’t good for someone who is mobility-challenged. Mom can’t go up/down stairs and beds and baths are all on the 2nd floor. The 24/7 care wouldn’t be affordable even with owning something free and clear.

I’m furious with one of the sibs who has been away more than the rest of us put together. She’s selfish and doesn’t see that mom needs some companionship. It’s especially irritating because mom has helped her out financially for her entire adult life. I blew up at her last month & was kind of over it. It came up again last night & I couldn’t help myself. Ah. families.

I’m going to take a look at the carecane… if not for my mom, then for the in-laws.

@zeebamom sorry you are having these challenges. Hope you can find a place to move her to, even if it is for ‘respite’ while finding the more permanent solution. Even if you go to a hotel that has handicapped/first floor room with her. I would look where she won’t have her money run out so quickly, but otherwise after 2.5 years it will be going to NH with Medicaid paying the bill.

@zeebamom, tough times. Make sure you get some breaks and time for yourself. Just like the baby days, you have to HAVE TO schedule time to replenish yourself.

Spending other people’s money is scary for me. I have been conserving Mom’s money very carefully. After this last hospital scare, I have hired private care givers on top of the aides in the AL place. The AL place is just not doing enough for her, even at the highest level of care. I decided to cut back on them and put 4 hr of private care in place. Now Mom’s burn rate (income vs outgo) is $3000 a month. I am making the bet that she won’t outlive her assets, but what if I am wrong? There is only one year at this rate. She has land assets that perhaps I can borrow against, but things in her town are not selling. I make little victories (got the Dr. to cancel Crestor $100 / month) and Lipitor ($80/month) and thought I could spend it on care. Then the care level went up again. It is like a constantly leaking boat, both financially and emotionally, I can bail, but I can’t fix the leak.

What I sometimes wonder is if we really need a certified assistant or could independently find the equivalent of a babysitter (sorry for the word) for a bit less per hour. Of course then we’d worry about accountability. Eg, if they don’t show up or need a day off, no one to call for a replacement.

Btw, learned Predisone raises A1C and glucose testing levels. My mother’s last lab tests (a few months ago) were in range and since then she’s been on P for an achy wrist. So, she has plenty to speak with her new Tucson doc about.

True to form, she’s kind of finding lots of little bothers to tell me about, but the good news is apparently my brother calls her daily. One bother is that her elec wheelchair is on the fritz (not really a small problem, I know. They replaced the battery, now something about the charger.) But that’s right up my brother’s alley. he can talk to the tech and advise her. I also think he’s heading there later this month.