*sigh* should I just give in and take the drugs?

<p>This is about me and my life, yes egocentric :(</p>

<p>I’m very anal about avoiding anything synthetic. I slogged through years of depression without seeking treatment because I’m uneasy about artificial substances that might change my personality; I avoid caffeine, and similar energy drinks, because the thought of dependency makes me queasy; and I even realized that I resist study habits and organizational techniques that feel unnatural to me because I’m a staunch believer in “natural” abilities and innate temperaments. I’m amazingly stubborn and conservative.</p>

<p>A few months ago, I was diagnosed with idiopathic hypersomnia - basically, I have the tendency to sleep too much, such that I’m usually described as lethargic and unfocused. In other words, I’m borderline narcoleptic; the idiopathic part just means that doctors have no idea why I am this way. My sleep doctor highly recommended that I take “wakefulness” pills, which, while FDA approved and supposedly safe, are idiopathic themselves because doctors have no idea why they work. Treating an unknown disorder with an unknown drug does not appeal to me.</p>

<p>I left the consultation with a promise to make my decision later, but the doctor left me with a chilling reminder that “most people with this disorder will be categorized as lazy and indolent, and most lead frustrating and unproductive lives”. I’ve considered her words carefully over the past few months and raised my awareness of my fluctuating states of being by consciously studying myself.</p>

<p>As someone who avoids large amounts of sugar to avoid the high-low rush, I have come to the disturbing conclusion that I subject myself to the same vicious cycle every day by NOT doing something about my disorder. While everyone is, to a degree, a slave of their energy levels, my master is particularly harsh. When most people are experiencing a natural low in their wakefulness in the early afternoon, I sleep during class as a routine. Reading books and watching TV can lead to my dozing off in less than half an hour, physical activity is hard to initiate and maintain, and the incessant state of lethargy that I’m in inhibits me on the most mundane level so that I find conversations tiring and others find me unreceptive and cold even. Though I know it’s an unprovable stretch, I cannot help but ponder and speculate that my personality (aloof, introverted, taciturn) and activities (mostly ADD-clicking all over the Internet, an exercise that combines physical complacence and mental distraction) have been predetermined by my sleep condition.</p>

<p>Today, I read an article about a famous mathematician who, though consistently reliant on caffeine, Prozac, and amphetamines, produced some of the most brilliant work in his field. Yet, when challenged to abandon his chemical aids for a month, was unable to produce any work at all; he could, then, attribute his success almost entirely to his willingness to use any tool at his disposal to generate a mental edge. The entire Industrial Revolution and Enlightenment, I read, could be traced back to the new prevalence of stimulants. Man equipped with caffeine, let alone the rest of the pharmaceutical spectrum, essentially opens up his life to a wide array of possibilities. </p>

<p>Am I just being a stubborn fool, unwilling to cope with the inevitability of change, to my own strong detriment? I have intellectual potential, most of it untapped, and the most accomplished people in human history uniformly attribute their acclaim to their work ethic, persevation, determinatinon, etc. that all lead back to one thing: energy levels.</p>

<p>have you researched the particular medication you are being prescribed? Possibly find others that have taken it and get their feedback. </p>

<p>I have never had any positive (or negative) effects from prozac, and the other depression related meds. However, what you are describing sounds like it is more than just a mood disorder.</p>

<p>How long do you need to take the drug for effects to be felt. Some drugs take weeks, some happen right away.</p>

<p>I don’t think it’s a sign of weakness if you need medication to function “normally”. I really don’t like that word because normal is a relative thing.</p>

<p>My problem is I function SOOOOO much better with coffee, but I think it stains my teeth and drinking a substitute, like Mountain Dew, in the am is just weird…</p>

<p>But if you don’t like your sleep doctor’s advice, see another sleep doctor.</p>

<p>I too think it would be advisable to get a second opinion. </p>

<p>However, could you try other things? For example, imaybe a limited amount of caffeine WOULD help, and that MIGHT be better than the drug. You might want to start with tea, which has caffeine, but as I understand it, has more of a “time release” formula–doesn’t give you as much of an instant JOLT as coffee but lasts longer. </p>

<p>If it doesn’t work though and there’s no alternative, then it seems to me it’s fine to take the medication. However, I question how someone with this problem in a serious form could have gotten into Swarthmore.</p>

<p>I don’t have an issue with my doctor and I doubt that a change would inspire a different opinion because the testing performed is pretty simple and standardized (tell me if you want more information about it).</p>

<p>Again, I haven’t gone back yet so I still have no knowledge of how the drugs will affect me personally. It’s called Provigil, by the way. It’s supposed to take effect almost immediately, have no known side effects, does not have the addictive qualities of other stimulants. Sounds too good to be true right?</p>

<p>What do you mean by mood disorder? Obviously, sleepiness affects my mood heavily.</p>

<hr>

<p>Oh, I’m a very skeptical person, so believe me when I say that the test done was so straightforward that I could have performed it on myself. I could have determined very easily that I’m “objectively sleepy”, with the only difference being that I wouldn’t have the knowledge/instruments to rule out other factors - like apnea - and categorize myself as idiopathic. I have hypersomnia, so I suppose I’m in a gray zone, but I’m closer to narcolepsy than I am to normal, in the sleepiness spectrum.</p>

<p>I take it that you have been through the sleep studies where they measure your sleep to make sure that your body is going through its REM cycles, etc. If the brain isn’t really getting proper sleep at night, it could lead to the symptoms you describe.</p>

<p>I have taken inspiration from this thread to end my self imposed boycott of caffeine!</p>

<p>Surely you’re old enough and intelligent enough to decide whether you prefer being on the medication or not after a trial run? (And I’m sure you don’t need to hear the, “if this were your insulin level that was out of whack and not a brain chemical would you be so hesitant to follow the doctor’s advice?” argument.)</p>

<p>Are you diabetic? I complained to my doc for many years about sleepiness and urination problems. Everything misdiagnosed until I went on Atkins diet. Thousands of $$ in copays and unnecessary procedures and personal poor productivity.</p>

<p>I would suggest that you start giving the drug a fair trial – right now. The reason: You’re going to be leaving for college in a month or so, aren’t you? I think it would be better to try the drug and see how you do while you are still at home, under the care of a doctor you know, rather than at college, where you won’t be as familiar with how the health care “system” works.</p>

<p>ee33ee - My sympathies. Medical issues are a pain in the rump, aren’t they?</p>

<p>“egocentric” - good thing, because unless you’re really rich, the person who needs to make most of the decisions is Y-O-U. The doctors can do tests and lay out treatment possibilities, but in the end it’s you who tries them and keeps the diary regarding your experience with each. I have a relatively simple and straightforward blood pressure issue, and it still took three years and three doctors to arrive at a treatment approach that works FOR ME. So, my suggestion is to try a variety of approaches, and keep a detailed written diary. JMHO. Oh, and don’t be afraid to change doctors when your current one runs out of ideas. Good luck.</p>

<p>Try the medication.</p>

<p>It’s not going to “change your personality.” There are few meds that will actually do that. It’s much more likely that you will feel more like you than you ever have, and you will wonder why on earth you waited so long.</p>

<p>You can always stop the medication, you know; you can’t get back the time you waste by NOT trying the meds, however.</p>

<p>

</p>

<p>My thoughts exactly. And I like the point about insulin from ingerp. </p>

<p>I don’t mean to be insensitive. But, it seems like you’re trying to prove something by choosing to avoid remedies. </p>

<p>At the risk of oversimplifying: if you’re happy with your condition, do nothing.</p>

<p>What the hell are you waiting for?</p>

<p>how was your condition diagnosed. I agree with the person about having a sleep study done. </p>

<p>A mood disorder is a condition that exists but there is no definitive medical test for. Ie, it doesn’t show on a scan or blood test.</p>

<p>Sleep apnea isn’t a disorder. Depression is.</p>

<p>[Modafinil</a> ( Provigil )](<a href=“http://www.modafinil.com/]Modafinil”>http://www.modafinil.com/)
there is a generic of this medication
<< Modafinil is used experimentally in the treatment of “atypical” depression. Atypical depression is marked by hypersomnia, hyperphagia [over-eating], low energy, and rejection-sensitivity. The syndrome is actually quite common>></p>

<p>goaliedad: They did that, but I am getting proper sleep at night - my sleep cycles are normal. It’s just that during the daytime I’m excessively sleepy.</p>

<p>arbiter: That’s hilarious but cool, if you’re being serious. What good is being a hard-*** about this stuff, really? We’re just screwing ourselves over.</p>

<p>ingerp: I made this thread 50% as a therapeutic tool to get my thoughts in order, 25% to see if anyone had any pertinent technical info I missed, and 25% as a rant towards people who have the same debilitating mindset I have.</p>

<p>Longprime: Isn’t diabetes one of the easiest things to test for? If so, I’m pretty sure I was already tested for that and am not diabetic. In addition, my diet is very very healthy and akin to the South Beach Diet, I would assume.</p>

<p>Marian: My thoughts exactly; I called the clinic already but my doctor won’t be back until August 6. I’ll give it a 1.5 week trial before college I suppose (I leave on the 17th).</p>

<p>Newhope33: Oh there isn’t a complicated tangle of possible treatments. Rather, there’s one treatment available and I’m pretty sure it’ll work. The issue is whether I want to take pills for the rest of my life, whether I want to trust my health and mind with a pill that not even its creators know inside and out, whether I want to treat the symptoms of a mysterious illness my whole life while ignoring the ultimate source (which is unknown, but it still grates).</p>

<p>owlice and dougbetsy and veryhappy: I know, my actions are kind of irrational. That’s why I posted a long rant haha.</p>

<p>sueinphilly:</p>

<p>Here’s the deal. I underwent a full sleep study that lasted for one night and one day. They hooked me up to many, many different instruments that went on my chest, around my face, on my head, and even down around my legs to measure everything from brain waves to air flow to leg movement. It was pretty comprehensive I would say, with technicians at computers monitoring my status throughout the night. The nighttime study was to get a baseline reading for my sleep habits and to make sure that everything is normal at night. Indeed it was. Everything checked out fine with the instruments. Then, during the day, they instructed me to nap 5 times, once every 2 hours or so, and then they would measure the time it took me to fall asleep each time as well as the other factors that they looked at at night. Well it took me, on average, 6.5 minutes to fall asleep each time - and this is an average of FIVE half hour naps throughout a SINGLE day - while 10 and above is the recognized norm and under 5 is the upper bound for narcolepsy. Thus, I’m closer to narcoleptic than I am to normal. And this is when I’m cooped up in a small building all day, with various wires hooked up all over my face/body, and suffering some severe cabin fever.</p>

<p>But their instrumentation still showed up as normal even during my naps. Idiopathic.</p>

<p>One of my first questions is whether it could be due to depression, which sue, I guess is a mood disorder, but they said “No, depression will make you WANT to nap all the time, but it won’t actually make you nap all the time”.</p>

<p>…Hey, OP…could you PM me the name of the drug ?? I have the same issue. Have you ever fallen asleep at a red light ? During a conversation with a friend, sitting in the same room ? At a party ? I can fall asleep within 5 minutes at any time !!</p>

<p>I go through most days in a gray fog, with such a low energy level I can barely function…yet I get the essentials done - not much more !!</p>

<p>Personally, I would at least try the meds - if they don’t work or you don’t like the side effects, you can stop.</p>

<p>northeastmom2: The drug is called Provigil, but check your PM box because I messaged you with other stuff too</p>

<p>so long as you don’t have psychosis, drugs won’t change your personality :slight_smile: I mean, ideally none of us would need to put “synthetic” things into our bodies, but I’d rather have an artificial heart than be dead, and I’d rather be on medication than been sleepy all the time!</p>

<p>I’d try taking the medication, just because it would be really difficult to continue your sleeping schedule during college. Sleeping during class in a small LAC? Not very good, doesn’t make you look that great. Even if you could explain your situation to your professor, you’d still either need to stay up or get the information a different way. And falling asleep while reading? I’m guess you’re going to have a lot of readings, so that’s probably not to your advantage either. </p>

<p>I know exactly how you feel, I try not to use a lot of medications either, but if you think that your sleepiness affects you that negatively (and would continue or be even more inconvenient in college), you should at least give it a trial run.</p>