<p>Congress…hmmm…I am disappointed in this congress…I am not sure at all that congress has an immediate role in any solution related to health care, and even when it works out that they do, reform will be a very long time in coming. In any event I am in the House or Senate buildings with some frequency, although with very different committees and for very different reasons, and, I am wondering if it would surprise anyone here to know that there are some key staffers of members of congress who still haven’t unpacked yet because they are still arguing over office space (when the majority party loses, they have to give up their bigger, better offices to the incoming party who was in the minority) - anyway, I think reform begins today, and at the grassroots level. Congress will simply have to catch up whenever it can - hopefully when we have a new president. I for one need to stop talking about it and start doing something about it. I’m thinking about just starting to give people money wherever I find suffering specific to lung cancer, even if it’s in a disorganized, haphard way. </p>
<p>Today, my oncologist called as promised - he spoke to doctor who is the head of the radiation oncology department; this man has been in his position for nearly 40 years it turns out. He has agreed to review my films and my file; my oncologist told me to call him tomorrow to make an appointment. I didn’t wait; I called his private number this afternoon (which caught him by surprise - how did I get it, he was dying to know) - anyway, we spoke for some time, and he reassured me about the safety of wbr, he has been radiating brains for 40+ years, and said, no, dementia, etc., doesn’t happen. </p>
<p>So I said, well, what about the Wake Forest study - the one that says that 50% of persons who receive wbr end up with dementia at the two year mark. Oh and what about the MD Anderson study that says 30% develop gait problems, can’t walk, talk, or stay awake very long, and become incontinent. Oh and what about the UCLA study that says everyone grows extra limbs followed by horns and third eyeballs - excuse me sir I’m exiting a taxi let me just pay the driver here…</p>
<p>So now he’s even more amazed (“you initiated this call in a taxi???” “yes, I just returned from New York”…“oh, you went to Memorial Sloan Kettering then?” “NO. VERY unfortunate assumption on your part. I work. Full time. Haven’t missed a day since diagnosis. I have been in client meetings all day. And I intend to continue to have client meetings all day long, every day, regardless of if I live only a few more weeks, or many more years, which is EXACTLY why I am so concerned about how much radiation my brain gets and that is why we are having this conversation…”) anyway, when he catches up to me he wants to talk about patient loads at his facility vs. Wake Forest, etc., and he insists that particular study might be true for Wake Forest, but has no relevance to me, or to his institution.</p>
<p>We ended the call as if we were good friends and he cannot wait to meet me. Now he’s curious. We have an appointment tomorrow afternoon - at a minimum, I have him assigned to my case now. </p>
<p>So I don’t know where this goes or what happens next. I don’t see the difference between patients at Wake Forest or patients at any other place. I cannot imagine what geography has to do with wbr. Perhaps he will be able to explain it to me tomorrow. </p>
<p>Meanwhile, I really do appreciate the support, friendship, kindess and information offered here. This is a very difficult experience. Thank you - all of you - for your contributions.</p>