Support for LateToSchool

<p>LTS, when my hematocrit gets too low I get short of breath – but number runs low anyway – so what would be a crisis hct count for some is normal for me. However, when my potassium and/or magnesium are too low I get major muscle cramping. I’ve learned to pay attention to those symptoms, as I wound up in the ER one time when I got the flu and those numbers crashed. Low potassium and/or mag can trigger a heart attack – not the usual flu side effect!</p>

<p>When I was on interferon, I had white counts in the 2000 range and felt fine. My doctors were amazed I could still function.</p>

<p>Some folks do just fine with low numbers. After tracking my various counts for a few months after dx (I set up a spreadsheet and graphed them), I learned what is “normal” for me. I can certainly understand your concern about he shortness of breath. Do I recall you saying you were having scans again soon? I hope those results are good and that gives you some reassurance. Given your continued performance levels, though, I think you are still healthier than a good number of us web-surfers!</p>

<p>Dear LTS:</p>

<p>PLEASE do not take lightly the concerns about mold spores. Given your recent history, my admittedly unsubstantiated opinion is that you should hightail it out of that apt and never look back.</p>

<p>~mafool</p>

<p>mafool’s post gave me an idea - if you have any trouble getting out of the lease, LTS, I’m sure that one of your doctors would write a letter to the effect that you should not be exposed to mold and mildew in your condition.</p>

<p>LTS, let me add my voice to the choir: molds are nasty, nasty, nasty things! A firend suddenly developed severe asthma symptoms, and medications were of little help. Only by chance it was discovered that because of improper ventilation, their basement-like apartment slowly developed mold problems. The family moved out, and the “asthma” was gone. Thank god she was a generally healthy person, and she recovered well. I know that it would add to the hassle you are already in the middle of, but do consider moving out. Humid, warm places without sunlight are breeding grounds for fungus. There aren’t really any effective therapies for fungal infections in cancer patients, so please, please be careful!</p>

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<p>–Tom Kite, 1992 U.S. Open champion</p>

<p>and another</p>

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</p>

<p>[The</a> martial art of relaxation](<a href=“http://www.post-gazette.com/pg/06124/687229-55.stm]The”>http://www.post-gazette.com/pg/06124/687229-55.stm)</p>

<p>Ditto on the mold issue! If the wallboard has gotten wet, those sections need to be removed and replaced. You <em>will</em> have mold, if you don’t already – it just takes few days for it to show.</p>

<p>I’m so sorry to hear that this happened. Like the song goes, “You will Survive”, even though it’s tough going right now.</p>

<p>Sending warm, dry thoughts your way :)</p>

<p>Thanks to everyone for the warnings; I am looking hard for a new place. Have a couple of appointments this weekend; I am working hard on getting more…</p>

<p>Very challenging, this…</p>

<p>Here is a mantra.</p>

<p>St. Regis, Four Seasons, Ritz Carlton…</p>

<p>Just for the weekend. Look for a new place later:).</p>

<p>Somehow I have a feeling that procrastination and self-coddling aren’t in your genetics LTS.</p>

<p>^^^Right. </p>

<p>LTS, please, do not wait. </p>

<p>I am not comfortable bossing anyone I don’t know personally or anyone who has not asked for it, least of all YOU! But this is not something to mess with. You do not want mold spores in your lungs. I will presume to say that odds are good that some time in a hotel will not empty your bank account. You are moving heaven and hell to beat this disease; the least you can do is remove yourself from a potentially toxic envirnoment. Especially one so potentially dangerous to your lungs.</p>

<p>Forgive me, please, if I presume too much. Wierd business, this internet community. But good.</p>

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<p>–Abraham Lincoln</p>

<p>LTS- your homeowner’s insurance may cover your possessions in a rental, it often does for college kids. So, check with them- the complication is the deductible may apply and the computer may require a rider to be covered; of course with your shoe budget you might exceed the deductible :D</p>

<p>LTS,
Your policy may also cover a portion of the hotel bills if your place is uninhabitable – and somehow, I don’t see that your doctors would have a problem backing you up on that one. :)</p>

<p>Is it possible for your D to come up and help you this weekend? That might be logistical <em>and</em> emotional comfort for you right now.</p>

<p>and some more</p>

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</p>

<p>[The</a> 2nd Annual Lung Cancer Fundraiser Slated for November 5th at Cooper River Park. | Business Wire (October, 2005)](<a href=“http://www.accessmylibrary.com/coms2/summary_0286-9758678_ITM]The”>http://www.accessmylibrary.com/coms2/summary_0286-9758678_ITM)</p>

<p>And if you don’t want to pay the St. Regis rates, go to an Embassy Suites. Or try Priceline - you can get top hotels for bargain rates. Lots of information on biddingfortravel.com.</p>

<p>I think that mold takes a couple of days to develop. I hope you will get out now, and not sleep there another day. Take only things that can be dry cleaned or washed in hot water. Get help from friends or your daughter.</p>

<p>Mafool, thank you for your post, and please do not ever hesitate to serve it to me bluntly. I sincerely appreciate it and am making this my first priority. I am so angry anyway I don’t want to be there. My landlord means well and to her credit is trying but she makes things worse…trying to help, she washed everything that could have been wet, including my black tie attire and formal wear, so now even more stuff is ruined…to her enormous credit, she offered have a conversation about her paying to replace some things, but, considering that she isn’t requred to according to Barrons’ post and what I have since confirmed, and further considering that I don’t really feel like getting into the minuteau of what things are worth, what is the replacement cost of an evening gown, a laptop, etc., I blew it off and said let’s let this all go and move on. That way I can put all of my focus on what is priority. </p>

<p>My daughter and I kept missing each other yesterday but she will come up and help me…</p>

<p>NYMomof2, I saw your post as well, thank you, I hope to have this resolved by tonight or tomorrow. I did give my landlord verbal notice two days ago that I would be moving, but positioned it as my needing to be in D.C. in order to take advantage of the various evening events, etc.</p>

<p>I’m so glad that you’re getting out, LTS, and that your daughter is coming to help. I can’t believe that the landlord threw your evening gowns into the wash! It must have been awful to come home and learn that (1) she went through your things and (2) even more of your possessions are ruined. I’m glad that you’re moving on - you do not need to spend your time battling over this. Check on your home insurance to see whether you have coverage, and check on whether you can get a tax deduction for the losses - if so, then document everything, if not, then just move out and go shopping. Get the help of a personal shopper - don’t most high-end stores have them? - so that you can replace your clothes efficiently.</p>

<p>NYMomof2 it made me feel like crying all over again. I was also upset that some of my books were thrown away - she warned me that some of them had gotten wet and “probably cannot be read again” but to see them in the trash last night was really, really upsetting. I am possessive and territorial about my books, and, these titles in particular have to do with the war on terror and many are pro-Bush - my political beliefs are not a secret here but she has (without invitation from me) in the past criticized Bush, the GOP, the war in Iraq, the military, and Americans in general (I usually just smile and walk away from these things) - but anyway, to see my books in the trash, I just wanted to cry again. I love books, especially MY books, and I don’t care if they’re wet or dirty or the pages falling out…</p>

<p>Are you freaking kidding me?!! </p>

<p>WASHED evening wear??!!!</p>

<p>This is NOT OK. And I am very sorry LTS that this is added on.</p>

<p>One bit of advice is that there are private or specialist insurance adjusters. You need to file a claim with your homeowners insurance, and ask if their adjusters can handle ALL the details for you. If they seem not too proactive, get your own adjuster and tell them to handle EVERYTHING. They will take a cut of the settlement, but since something is more than you are shooting for $$ wise, it will be worth it to have them handle the ‘process’. A good adjuster will b happy to take stuff to the cleaners since then they handle the costs, for example. A really good one will find you a new place to stay, but it looks like you have that in hand.</p>

<p>You think the medical world can be a morass, well insurance can be worse. So just avoid taking that on and get an adjuster who can help.</p>

<p>Some very good, uplifting, positive news for a change - yesterday i went to an event, sponsored by the only association that I pay dues to belong to. I had the pleasure of face time with two cabinet secretaries, and was photographed while speaking to Newt Gingrich. All in all it was a terrific day. </p>

<p>Last night was the black tie event. I almost didn’t go, because of the issue with my clothing I had nothing appropriate to wear - I was stuck with having to go in my business attire. At the last minute I decided to go anyway - my suit was very nice and I paid a lot of money to attend this dinner, and besides, people would be expecting to see me there. </p>

<p>So I went, and almost immediately wanted to slink out the back door - everyone there was in formal wear; military personnel in mess dress. The other women were glamorous etc. and I felt frumpy and stupid in my business suit, but I didn’t leave, took my (assigned) seat; found myself seated next to a former Israeli head of state. </p>

<p>We had a terrific conversation, and he described to me how far back he went with the organization - it turned out that he has been involved with the organization for over 20 years, and heads up the intelligence missions to Israel (public private partnerships), and I managed to get myself informally invited to the next one. </p>

<p>Then, we were interrupted, and the master of ceremonies took the stage to introduce the ceo and president of the association - a man I have visited with in his office, but I haven’t seen him or spent any time with him in several months. </p>

<p>In any event, he was introduced with the components of his bio - including that he is a four star general, was shot down in Vietnam on his 105th flight mission, spent seven years as a prisoner of war, and is the only POW from that war to achieve four star rank. His various decorations are simply too numerous for me to even be able to remember, etc., and his appointments and leadership positions the same, but, they are so numerous that the master of ceremonies addressed them for over 15 minutes, or at least that’s how it seemed. </p>

<p>But the shocker was the last mention - the speaker said that for the last several months, he has been fighting cancer, and this, too, is a battle he is winning. Imagine my shock - as he thanked the master of ceremonies and took the microphone, he made some comment about the number and amount of drugs in his system, and anyway, I turned back to my new Israeli friend and asked “what KIND OF CANCER”, and, imagine my amazement when he said “lung”. </p>

<p>If true, I am going to see if I can talk to him, one on one, privately. I am very interested to learn, what are the components of psychological strength that a four star general and former POW brings to a cancer fight…how does that skill/drive/combat focus transition to a health care theator of operations…</p>