<p>Piggle’s mom posting</p>
<p>My youngest was diagnosed with Growth hormone def & put on Gh replacement . Her medications need to be kept refergierated / chilled . Can anyone recommend good insulin coolers which will keep the medications cool at least 8-10 hours ?</p>
<p>We got the “Fridge to Go” by Fare. Actually we got it from the growth hormone supplier. Usually though we could time the injections so that we didn’t have to carry any already mixed, so it didn’t have to be refrigerated in transit. Any place that sells diabetic supplies should have a travel cooler for meds.</p>
<p>We are going for two weeks. I was not sure how to keep the 2 week vial supply chilled in 8 hour flight .</p>
<p>We have Tev tropin- we mix 5mg powder with 1 ml solution( will last for 3 days )</p>
<p>Thanks for the suggestion</p>
<p>Frio Pack</p>
<p>My son has used these to refrigerate his insulin for long distance travel for years.</p>
<p>Do you have the pens? Has a vial always lasted only 3 days? Just curious–that seems so often to have to mix and prime the pen. </p>
<p>My D has been on Lilly Humatrope for 11 years. She was part of the inital Lilly Toddler study at her 3rd birthday. We’ve always made new pens at ~8-12 days, depending on her current dosage. Lilly’s come in 6, 12, and 24 mg cartridges, so as the dosage increases, one can get the higher mg cartridges and still go quite a few days.</p>
<p>I’ve always just used a little 6 pack cooler and a couple of the little blue hard plastic chillers that freeze. Never have had a problem.</p>
<p>Definitely recommend having a current prescription from the Dr. Security can be a hassle. I’ve gone round and round sometimes. A few times they demanded that it was insulin, not growth hormone. I finally said “yes” to shut them up and moved on down the line. I try to pre-empt by giving it all to them up front–they are definitely going to notice the needles anyway.</p>
<p>Good luck with your travels!</p>
<p>We don’t have a pen. She has a dose of 1.6 mg ( .32 ml ) day for 6 days.
We make a new " batch " every third day. </p>
<p>Our insurance refused to cover the treatment since her stim results came as borderline & we pay out of pocket($$$) . So I am very careful with the drug & try to use upto the last drop.</p>
<p>I am also dreading the TSA procedures- Even if we explain about growth hormone, I don’t think they will understand…</p>
<p>We never had a problem with airport security regarding the growth hormone. We traveled several times over the three years my S was taking it. We had a letter, but nobody was interested in reading it! They didn’t care about the needles or the vials or anything else. Just waved us through. We used to have to mix up a vial about every three days. If we were traveling on a Thursday and we were due to mix a vial on Wednesday we just declared Wednesday a night off and waited to mix it when we reached our destination. So no need to refrigerate.</p>
<p>I would suggest carrying a letter from your doctor stating the condition your child has and a list of the medications/equipment (e.g. syringes) you are carrying.</p>
<p>If you are going overseas, I would check the regulations for each country you will go through customs at. For example, we were surprised to find that Australia specifically mentioned syringes and the need to carry documentation that you need them.</p>
<p>I don’t think my son has ever had a problem with TSA or customs–he wears an insulin pump and twice has travelled with up to a 12-month supply of equipment, insulin, syringes, etc. He has always carried a letter from his doctor and told the TSA people before going through the detector what he is carrying.</p>