My 27 yr. old daughter was diagnosed today and is really feeling down, as it doesn’t sound like much can be done about it. The worst part is the vertigo. Does anyone have any words of encouragement?
I would imagine that knowing the diagnosis will be helpful to her going forward. The cause of vertigo can sometimes be difficult to pinpoint and since vestibular migraines often don’t have the traditional migraine headache they can be tricky. But now she can look for triggers, feelings, auras and such and hopefully be able to prevent or control the episodes better in the future. Hoping she finds relief soon
This may not be of help to you and your daughter, but stress greatly increases the frequency of migraine. Hormonal changes can be triggers, too. I would track the incidence of vertigo, see if there’s any connection with her menstrual cycle. I would also consider a preventative daily medication, like propranolol. And consider if severe stress and anxiety are contributing - if so, consider a trial of an SSRI medication, like sertraline. I’ve seen people who’ve managed to greatly decrease the incidence of vestibular migraine by decreasing stressors (too heavy an academic load), daily propranolol, and sertraline. Also, if the menstrual cycle is identified as a trigger, going on a same dose every day oral contraceptive, like the progesterone-only pill, or the 90 day straight combination pill, can help, so that there essentially is no longer any hormonal cycle, but the same dose of hormone every day. If there are complicating issues, such as untreated upper respiratory allergies, getting them under control can also help avoid triggering vestibular migraine.
No substitute for Dr’s input, but by way of encouragement, know someone who keeps their vestibular migraines under control by avoiding both caffeine and alcohol. She also keeps hydrated and makes sure to get enough rest; these steps have virtually eliminated her troubling episodes of dizziness snd nausea. Best to your daughter.
Glad you brought up hydration. A neurologist emphasized to D1 just how important that is, when she had a long run with migraines. Also, aiui, alcohol can act as a diuretic, some hormonal reaction, and caffeine may also have a mild diuretic effect.