What do I need to do before dying?

Sorry for both the blunt title and the length of this post. If you’re not interested enough to read through, but still have some suggestions for me, here’s a TL/DR: I probably have a year or so to live. What not-so-obvious details should I be sure to take care of that I may be overlooking?

Now, for the extended version! I have stage 4b cancer that has been in a tenuous remission for about 5 months. A CT scan yesterday revealed new lung mets, so I fear the countdown clock has begun. My situation is complicated by a number of factors, which I’ll briefly describe, if for no other reason than it may help me (or you) remember additional things I need to do while I still can.

I truly appreciate any tidbits anyone here can offer. While I’m a member of many different forums, I’ve always felt the parents here were the friendliest and most helpful. I’ve hesitated to post prior to now. If you’ve been around long enough to remember and still be saddened by the saga of SunriseEast, it felt almost like an imposition to ask everyone to do this again. I can assure you that I’m not nearly the writer or intellect she was, and I don’t want to compete with her legacy here. I would love, however, to capitalize on everyone’s collective knowledge to help me face this down with some semblance of clarity and organization. I can and will consult an attorney for the will, etc. What I’m looking for mostly is the little details

Base Info - My retired husband and I have been married just under 20 years. I am in my mid-40’s - He is much older than me - late 70’s. He also has cancer (melanoma In remission) and heart issues (pacemaker, stents). He has 3 grown children from his first marriage who I’m neither very close to, nor do we see more often than every 3-5 years. I have a 22yr old DS and together we have a 15 yr old DD. My S is commissioning (Army) and graduating in May -he leaves in July for active duty. D is finishing up her freshman year in high school.

I am currently working, but I was on leave for a year and a half during treatment. Everyone in the family is on my health insurance, although husband is eligible for Medicare. Son’s insurance needs will be covered by the army going forward. Daughter will need medical insurance of her own when mine is no longer an option. I do have life insurance through work as well. Husband is covered both under a spousal rider to my policy and a private policy. We owe a minimal amount on our house (50k-ish) with a couple hundred K in equity. We executed a quit-claim deed 15 years ago putting the house in my name. The mortgage is in his name only. My plan is to continue to work until I’m unable. I do have short and long-term disability, as well as ongoing full SS disability.

So, given the above, my overriding concerns are two-fold. 1) provide for everyone financially as best as possible and 2) help everyone navigate the undeniably shitty process of dealing with the premature death of their wife/mother, etc.

As far as #1 goes, there’s not much I can do besides make sure the will, taxes, mortgages, etc, are in order as best as possible. Son is the beneficiary of an IRA account rolled over from a previous employer’s 401k (enough for a sizable down payment on a house or to jumpstart his own retirement savings). Daughter has an equal amount in an UTMA account that will pay for 4 years at the local directional U, or elsewhere with the addition of scholarships or grants. I imagine her EFC will be somewhat low with only one 80 yr old parent on Social Security, so hopefully that won’t be a huge issue. Between life insurance, SS, his IRA and home equity, I’m pretty certain my husband can live out his remaining days in relative comfort. I’m less sure about that if he ends up needing long-term care, etc. but that’s a discussion we’ll have at some point.

So, for #2. The hard part. I try to keep the emotion out of it, but I feel horrible for my son who will not be here, and will have to deal with missing the last year or so of my life, all while establishing his army career, going through training, etc. We have an extraordinarily close relationship, and I lie awake at night trying to think of ways to make this easier on him. We’ve spent a lot of time talking about his first apartment, things he’ll need, teaching him to cook, and just general conversation. I’m sure I can’t cover everything, but would like to touch on most things. I’ve written down the recipes of all his favorite foods, gone through the house and identified things he’d like to have of mine, etc. What other special considerations are there for him, since he will be mostly gone?

I feel equally horrible for my daughter, who will have to negotiate a first boyfriend (unless she gets one soon!), prom, college searches and applications, graduation, etc, without her mom. We have already gone on some college visits, just so she could generally get a feel for different schools (but mostly so I could have a chance to go and so she’d have the memory of my participation, however brief). She, too, has a cookbook of my recipes, and has expressed her desire for certain possessions. We talk about her future and my general hopes and expectations for her. In addition to all of the pitfalls of daily adolescence, she runs the real risk of losing both parents while still a teen, and her brother (they’re the absolute of best friends) will be who-knows-where at the time. I can’t even begin to think how to prepare her for that. We have relatives in town she could live with if that happens while she’s still in high school. Even though she’s mature and responsible for her age and I know she’ll get through it, I can’t help feeling it’s a sad way to start your life.

What things can or should I be doing that I’m not thinking about? I’ve considered writing letters to both kids to be opened at particular milestones in their lives - graduation, weddings, births, etc. Is that really a good idea, or does it add unnecessary sadness to the event?

I’ve written down all the accounts, log-ins, passwords, day-to-day crap I can think of. I find myself “instructing” people a lot in how I do those things that “mom” always does, knowing they’ll be clueless after I’m gone but still need to get things done. I’ve added POD notations to my bank accounts so my husband can access the money (we maintain separate financials). We’re taking a last family vacation in June, probably to the Caribbean. I thoroughly spring cleaned the house and decluttered 15 years of crap over the last few months, so they don’t have to wade through all that. Both the kids and I are atheists (husband is not) so the details of the funeral/service are still up in the air.

But still, I have this hugely inescapable feeling that I’m forgetting important details, and I won’t remember until it’s too late and I’m physically or mentally incapable of taking care of it. I’m not scared of dying. Mostly I’m just indescribably sad that I’m about to put them through this, and that I’m going to miss seeing them turn into the amazing adults I know they’ll become. Any suggestions to make this easier on them would be greatly appreciated. Thanks for reading.

Jcc, your post saddens me. I wish you the best.

I like this idea. Maybe even use videos so your kids can see you and hear your voice.

You should do whatever you want. If my parents wrote letters or made a video, I would read the letters or watch the video.

I wish you and your family the best.

Jcc, don’t feel bad that you can’t compete with sunriseast. No one would expect you to but are happy that you want to share with us.

Unfortunately I don’t have much advise and it sounds to me that you are doing a great job already.

One thing you are missing, yourself! Be good to yourself, take care of yourself. You are important too, something moms forget about all the time.

There are no words.

One thing that you haven’t mentioned is guardian and trust arrangements for your D, in the event that she loses her father at a young age. I think that is something you and your H should discuss together. One piece of advice we got was to remember that the guardian and the financial trustee do not have to be the same person, and it can be very wise to separate the roles.

I recently ran across an article in the Feb. 2015 Arizona Attorney magazine which may be helpful. It was written by an attorney when his wife was told she had 3 months to live and they had two younger kids. The article, “3 months estate planning before emergency strikes” is by Deangelis and begins on page 12. It inspired my husband and I to have some conversations and make some plans.

One thing I would add, that I didn’t see but may have missed, is you need to make your will clear regarding how your children will take under the will. Will his child from a prior marriage be included? If your estate goes fully to your husband what will his estate plans be?

Have you considered at what stage you can/will file for disability? Do you want to do so, if you can, while you are still fairly able bodied? Do you know what the likely progression is and how it will effect your day to day life in the next 6 mo, 3 mo, etc? Do you want to make plans for a special trip with your children, for example? I know my life insurance policy has a clause regarding payments when you are terminal w/in 1 year.

You may want to get a family portrait done. I know that others have recorded videos for their children. I too think I would do this and probably want to be, in my OCD way, “this one is for when you are thinking about getting married” this one is when you have your first child. Etc.

Wishing you and your family the very best possible time together.

Edited to add: you may want to start a phone tree/web page that updates everyone as to your status etc. A friend of mine died of lung cancer and she felt it was helpful, especially as otherwise she would spend tons of time retelling the same information (and often having to comfort the one hearing the news). Make sure a loved one has the passwords so that they can update it for you. It could be helpful also for letting people know when is/isn’t a good time to visit, when you aren’t feeling up to company, etc.

This American Life had a podcast episode about a mother who left letters for her daughter - you might want to check it out and see what you think: http://www.thisamericanlife.org/radio-archives/episode/401/parent-trap

@jcc, I am so sorry to hear of your diagnosis. You are being very brave to think of your family, but I agree with the above that you also take care of yourself at this time, physically of course, but also mentally/emotionally/spiritually.

D1 was friends in high school with a girl who had lost her mother several years before. Her mom was featured on Oprah and some other shows because she had the great idea to make videos of herself giving her daughter advice that she wouldn’t physically be present to offer, but wanted to be sure to impart. I always thought that was such an amazing thing to do. I don’t know how she got through them, but she left many many videos which covered all kinds of topics.

This brave lady and her husband wrote a book together on preparing for the end of life, in which they discuss many practical things that maybe not everyone thinks of in advance. I think it is only available through third parties on Amazon, but it might be worth a try.

It’s called Living With the End in Mind; A Practical Checklist For Living Life to the Fullest By Embracing Your Mortality.

http://www.amazon.com/Practical-Checklist-Fullest-Embracing-Mortality/dp/0609803816

I wish you well.

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Other than that, you are amazing to be thinking of others.

Having a good friend who worked with late state lung cancer up until a month before she passed, I have to say that please do your best to consider stopping working, but taking on something else to keep you busy (don’t just lie around if you don’t have to, I think that is what my friend was afraid of).

I also agree with Caring Bridge or some other website that you don’t update, but a friend does for you with your permission.

As for your son, even early in the Army he may be able to get some “compassionate leave” to go on a vacation with you and the family. I would suggest sooner than later - something to remember. I know it seems trite, but even a short time forgetting - and remembering - like two weeks - might go a long way to healing.

I agree with @Consolation that you need to decide who will be your D’s guardian if both of you die while she’s still a minor. However, as we all know, even an 18- or 19-year-old is not completely mature, regardless of what the law says, and if I were you I’d identify someone – maybe whoever is the official guardian until your D;s 18 – who will continue to be involved with both of your children’s lives even after they’re on their own. If you have a sister, a cousin, or a best friend, that would be the ideal candidate.

@TempeMom makes a very good point about making sure your $$$ doesn’t end up with your DH’s children, to whom you’re not close. You mentioned you and DH keep your finances separate. I’m assuming you are leaving everything of yours to your children and not to him. If that’s not correct and you are leaving something to him, you may want to see about putting it in a trust so that, upon his death, it reverts to your children. Otherwise your money may wind up going to his children.

I can’t imagine the sadness you and your family must be feeling. Hugs to you all.

I am so sorry you are facing this battle.

I would suggest you enlist certain people for specific duties. Like asking your friend who is great with planning events to kind of “follow” your daughter and stay in touch and volunteer for Prom Duties, Wedding Planner, baby shower hostess, etc. (Okay, maybe you get several people for these roles.) I hope you know what I mean in describing these tasks. People say all kinds of things at funerals, oh I am glad to help, just let me know, etc. But having arranged it while you are still living, looking someone in the eyes, that kind of arrangement should be more of a commitment that you can trust the person will follow through with and watch after your daughter when she needs a woman’s touch in her life.

Even if your husband lives on for a number of years, there are times a girl needs a female role model. Does your D have some trusted teacher, aunt, counselor that she can run to in times of emotional need?

My siblings and I are clearing out my mom’s house now (she is still alive, but at assisted living) and we have had a couple of issues come up regarding who gets what. My question is this…you pass away soon, and your children are not in a position to “take” physical things from the home. Your son will be off around the world with no permanent home, and your D is still in high school living in the home. But will your husband’s kids swoop in when he passes away and take things that you had earmarked for your own children? Not sure how to prevent that, and whether it would even be important to your kids. At my in-laws house, they have started taping index cards with names of kids/grandkids on the bottom/back of furniture as people talk about wanting this or that. Again, it may not be a big deal to your kids or to you. Just trying to think of possible frustrations to give you a chance to think through how to practically make your plans work smoothly.

I encourage you to think about things that would make you happy, too, not just the “to do” list you are mentioning. Watching the sunrise in a beautiful spot, taking high tea with your daughter at a fancy hotel. And ask your D what she would like to do with you? Fun things like cooking together, learning some kind of knitting/crocheting, or sitting and listening to you tell more about your family history, what life was like for you as a child.

And write those letters NOW. A friend of mine tried to do this for her friend, and the friend with cancer put it off til it was too late. The dying woman didn’t have enough energy to get through the sessions of letter writing. You can write one letter or several different ones for special occasions. Whatever works for you.

I admire your resolve to do what you can for your family, jcc.

When I lost my sister to cancer, I found some comfort in some taped messages and limited diary entries that she had written before the illness overcame her. I wish she had been able to do more …I often miss being able to reminisce with someone who was there when I was growing up, someone to help me remember events and keep details sharp.

So if I were in your shoes, I would get one of those computer programs that let you dictate verbally, then create written documents.

http://shop.nuance.com/store/nuanceus/Custom/pbpage.resp-dragon-home-bf-2013-digital?utm_medium=ps&utm_source=google&utm_campaign=dragon&utm_term=dragonfly%20program&cvokeywordid=41735&cvosrc=ps.Google.dragonfly%20program&gclid=CjwKEAjwo5OpBRDU64qO07OXq00SJADn5hYngrj7mRutnahQEi9tP5XAGkb1TpNsAqjsRkedV3dpdhoCIyrw_wcB

Family stories, fun memories, life lessons you've learned that you want to pass on.    Writing can be physically exhausting, but being able to dictate everything you want to say could be a blessing.    

jcc- Progression is really hard to take when you have cancer, especially if you’ve been enjoying a bit of remission and have dared to hope that maybe you can be the person to “beat” this disease, at least for a long time.

The main message I would give in this situation is, don’t let cancer rob you of the time you have left. Yes, it will shorten your life. But don’t let it take you down before it’s time, which may be longer than you think. No one has a expiration date stamped on the bottom of their feet.

If you are still feeling well, make each day count. Of course you want to take care of the financial end of things, which it sounds like you have under control, but now is the time to create as many memories as you can while you’re feeling ok with the people that matter. You still have a daughter at home, which is a blessing, really, as you have the opportunity to let her know how much you love her, every day. That knowledge is something she will have the rest of her life. Enjoy the little things. Spoil her (and your Dh) when you can. Make these next months, and very likely years, be full of love and appreciation for everything dear to you.

As far as you son goes, I’m sure he knows you love him and feels you will always be part of him. He is already carrying your love in his heart. He will be fine.

Your husband will be especially heartbroken; he probably never imagined that you would leave this earth before him. Let him know how wonderful your life has been with him, and how happy he has made you. Can you plan some special times for the two of you, even if it’s just walking in the woods after dinner? That will help him get through this.

I wish you all the best as you go forward with your planning. I am impressed by the sheer practicality of what you’re asking.

I like the idea of letters to your children, but I don’t like the idea of them only being available on specific dates. In your place, I think I’d write a series of small essays and bind them into a book that they could refer (and share) to as they chose. Dictating might well make sense. Silly stuff like “do you remember your first birthday party?” and practical stuff like “this is how I make that meatloaf you like” as well as “I’m sad I’ll miss your wedding and I don’t know the person you’re marrying.”

I also think asking specific friends to help your children through specific milestones is an excellent idea. When my kids were younger, they both had adult friends that they called “second mom”–women whom they felt they could trust with problems if their problems were with us (or were problems they didn’t want to bring home).

DH and I are dealing with the aftermath of his father’s death, and one of the hardest things has been dealing with his father’s widow (they were married twenty years, with the marriage beginning a year after DH’s mother’s death). His father’s widow is so devastated that she’s not particularly practical or focused, and things are consequently much more difficult than they should be. If you have a very practical and financially focused friend whom you trust (or a sibling), you might want that person to be in charge of the financial aspects of your death, rather than your husband.

jcc,

I cannot adequately describe my admiration for you. It appears that you have already taken many steps to lessen the burden on your loved ones and, as a result, lessened your worries that you have not put your affairs in order. If you have done the bulk of the work already, I would encourage you to turn your priorities to making those lasting memories for your family.

I send you and your loved ones my best wishes, and take good care of yourself.

Adding my voice to the cheers for your strong yet realistic attitude and clear compassion and thoughtfulness and putting others before yourself. Others have already suggested the audio/video. Very helpful. Family members want to remember your voice. Not just your written “voice”, but your real voice, so they don’t forget it’s sound and can hear it “one more time”.

One thing that you did not mention - does your husband have a POA for medical and financial issues? Since he does not have a close relationship with any of his older children, and your daughter is a minor, the two of you may want to consider a family friend to take on those responsibilities.

I am deeply saddened by your news and touched by your request.
My mother recently died of advance dementia. She had specific wishes regarding funeral/burial, and had prepaid all. She also (which I found pretty obsessive-compulsive at the time) had drafted her obit. Although I edited it, it was helpful to have a variety of milestones so easily accessible. And, I knew I was following her wishes.
If you have not already done so, consider writing a living will.

I hope you find some of the info above helpful. Through your words and concerns, I can tell that you are an amazing person, wife and mom. <3

On the subject of children and possessions, I had a friend whose mother died of cancer when he was about 17. His father gave his considerably older married sister anything she wanted, then sold or threw out almost everything else. He was left with no mementos of his mother and none of the family things he grew up with. Later, when he had his own apartment and eventually married and had a household of his own, he would have loved to have such things. He felt it keenly, then and later. Arrangements could have been made, even if they consisted of storing some things in a relative’s attic.

I admire you tremendously.

Thinking of you, and truly sorry you have to face this struggle. I admire your courage and practicality.
My 49yo brother died recently in a freak accident. Family completely unprepared. It has us thinking about how to be prepared for our own deaths. So much good advice here, and so considerate of you to want to ease your family’s burden.
Do plan your memorial service if you want one. Your family will feel better knowing that the event was as you wanted. So many little details that people will agonize over besides just burial/cremation (What photos? what music? readings?) Just write it down so they know. Write your own obituary.
A relative of mine lost both parents by the time she was 19. From my observation, it is important that your daughter have a mother-figure–someone who can provide guidance and discipline if necessary. (Not someone who will pity and spoil her–I’ve seen this happen). And someone to be in charge of finances (in the event of your H’s death/incapacity) until she is a responsible adult. (The young lady I know made some very poor financial decisions around 19-23, so that is something I’d want to prevent if my kid were in this situation.)
Also, consider if there is anything you need to say to anyone. Do you need to thank someone? Do you want to apologize for anything? A neighbor who was dying of cancer went around the community and did this. It gave him peace of mind that he was leaving everyone on the best terms.
Right now I’m feeling sorry that my brother isn’t here to enjoy this beautiful spring (his birthday was on Easter). Take it all in and appreciate the beauty of every day and every season. Wishing you the best.