How do you talk to a friend who is in denial about her son probably being on the autism spectrum?

<p>This thread follows after the long discussion over in the Adam Lanza thread. This is not that case. But, that case reminds me both of the isolation parents have when they are examining this type of issue and of the conflicts between parents in dealing with an “atypical” child. Long post…</p>

<p>My very good friend has a boy, 12, who most everyone we know would say is on the spectrum. We have known him since our kids were all very close together in kindergarten. He has stayed sort of stuck; socially odd while all of their cohorts have matured. He has a very rich interior life and a very physically awkward external one filled mostly with a couple of fixations. Middle school has not been easy for him. The parents, both highly educated of the “holistic” bent who eat “clean” etc, and strongly believe (as do I) in the love of quirky/individualism. </p>

<p>They have changed schools a few times trying to find a good fit for their son. But there is no good fit; the “fit” is actually getting worse every year. They’ve tried special diets (eliminating sugar or red food dye etc) but have not seen a medical doctor or therapist about this. There is no diagnosis. Her husband is an immigrant (programmer) and even when she seems steeled every so often to come to terms with “something might be wrong” he is not. </p>

<p>My friend is stuck in the “day to day.” And I, and a few others, have been too chicken to say anything direct to her. Sure we have talked about school and what she has heard from a teachers who tiptoe (to my ears) around it that there is an issue and her response is either to explain that they just don’t understand him or to go direct to “no meds, no way.” There is no room where she will explore the in between which is so odd because she is a scientist by training.</p>

<p>When the new school approached her about “testing” including giftedness I endorsed that and when she reported no giftedness I asked if they did other testing and she said no. She doesn’t seem to want to talk about it. She alludes to the fact that even if she could get there (to a place of considering something is “wrong” with her son) that she’d then have to fight her husband over it. But all conversations that head in that direction are headed off very quickly.</p>

<p>She knows he doesn’t fit in with other kids and is sometimes bullied. She knows he is very reactionary and sometimes gets really really angry/frustrated or has other disturbing outbursts. She knows he lives mostly inside his head (not regular introvert stuff) but like fixated on Harry Potter or Minecraft as if those are the most REAL things to him (knows everything there is to know and directs most conversations to those two things). At 10 or 11 he literally sobbed for hours because he couldn’t go away to Hogwarts. But because he has a couple old friends he can invite to his bithday and who still want to hang out with him (at least for limited amounts of time because he doesn’t really interact but more is doing “parrellel play” usually involving video games) and he is clearly smart, she mostly sees him as just a little bit different and other kids as “mean.” </p>

<p>I feel like I owe it to her to say something. To encourage her to get him assistance while he is still relatively young. To tell her husband that this is not negotiable, that it needs to be checked out. That there are likely resources for the boy and his parents. This is a bright beautiful kid who I am certain could find a niche. But I know bringing up will hurt her. And I know she will feel judged. And defensive. And when we talk (a couple talks a week usually) she just needs to unload rather than to be piled on. </p>

<p>Thoughts? Advice? Been there done that? What would you do?</p>

<p>Edited to add: If she saw behavior in my kid(s) that made her wonder about cutting or bulemia or sexual abuse or something that she felt I wasn’t paying attention to, wouldn’t I tell her “of course you should tell me” so why is it so hard to actually do it?</p>

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<p>Without referring to or hinting anything about the kid, would it be possible to tell her what an interesting article you found?</p>

<p><a href=“The Geek Syndrome | WIRED”>http://www.wired.com/wired/archive/9.12/aspergers_pr.html&lt;/a&gt;&lt;/p&gt;

<p>I have been on the receiving end of news I did not want to hear (daycare told us they didn’t think our son could hear.) It made me very angry to hear this. However, they were right. So just be prepared in case she will be angry with you for saying it, and very defensive, at least in the beginning, though later she may come to agree. I don’t think you should tell her how to handle her husband. That is not really your business, and people deal with things differently. I think offering her resources of other parents of similar children to talk to could be helpful (e.g. support groups, local special education parents groups, on-line groups…) Maybe come at it from this gentle angle of a support resource next time she brings up any problems with her child?</p>

<p>OMG. I’ve just skimmed that and it’s amazing. </p>

<p>As the mom of a 25 yr old son with autism, here are my thoughts:</p>

<p>I would ask her to join you for a walk and say something along the lines of: Are you concerned about "J"s behavior? I notice that each year in school he seems more different than other classmates his age and it seems HE does too. Do you think he may have Asperger’s?</p>

<p>Listen to her response. If she shuts you down, just ask her why not. Is she afraid of a label, actually getting a diagnosis, that he will be separated, etc. There must be a reason. If she appears grateful that you brought it up, you can tell her that school districts employ or contract autism consultants and all she has to do is call and say she would like her son evaluated. </p>

<p>If he is evaluated, she can take that information and develop a plan. She can opt for nothing, everything, or something in between. I crafted a plan for our son with the school that I thought suited HIM best. I worked closely with the AI consultant because 15-20 years ago there just wasn’t much available as resources and I wasn’t willing to leave it up to the team members at the IEP. I knew way more than they did; that’s why I liked having the AI consultant there EVERY time.</p>

<p>Is he an only child? With a diagnosis/evaluation she can work with the school to get him a circle of friends, students who are chosen to be with him at lunch, recess, in some classes and told why. Often these are girls (who are more accepting), but they become role models for him and also protectors. Empathetic boys can also be helpful. A great “friend” can be a student with an autistic sibling. D1 befriended a boy in 1st grade because she knew he was like her brother and “needed” someone. D2 was the friend contact for an autistic boy all through elementary/middle school, someone to go to when he “needed” a kid. These boys knew my girls were “safe” and their parents reinforced the relationship.</p>

<p>In my profession (dentist), I see a lot of kids and I will say to the parent: are you concerned about her behavior, her speech. Then I base my response on theirs. Often the parent is in denial and I just say that I see a lot of kids, mention my autistic son and that 3 of my kids were in speech therapy before kindergarten and that their child exhibits similar issues. Some are so grateful that I look up student services for their school district and give them the phone number.</p>

<p>My husband was in great denial about our son, so I just did everything on my own. Even now, he has a hard time with the autism word, but our son IS autistic and functional, far exceeding the dr’s expectation. He will never be independent, but he can care for himself, hold an entry level service job (nursing home) and has a high school diploma.</p>

<p>Just my opinion, but I hope it is helpful.</p>

<p>Here’s an article about a woman who diagnosed her own husband:
<a href=“http://www.asha.org/Publications/leader/2012/120703/In-the-Limelight--Asperger-Diagnosis-Brings-Couple-Closer.htm”>http://www.asha.org/Publications/leader/2012/120703/In-the-Limelight--Asperger-Diagnosis-Brings-Couple-Closer.htm&lt;/a&gt;&lt;/p&gt;

<p>Tempemom, Your post shows so much compassion and understanding. I say, go for it. Your friend knows you want only the best for her. It is absolutely true that the younger the person goes for help, the better it is. </p>

<p>I rarely find I am telling parents anything that have not already observed. I’ve shown them articles about child’s condition, and how their child fits so many of the criteria. Emphasize how they want their child to be happy and successful.</p>

<p>Just today, I was speaking to an aunt, who says her niece’s daughter is too smart for any of the private and public schools she has attended. This girl has parents in denial, and it was important to break through the family delusion. </p>

<p>I was a career special education professional with a particular expertise. I made it a practice NEVER to discuss special needs issues with my friends or relatives UNLESS they had very specific questions that they initiated. Even with that, I was very careful and more often would suggest a qualified professional for them to see, or talk to.</p>

<p>It is quite one thing for a daycare provider, teacher or doctor to deliver these types of messages. It’s actually their jobs to do so. But as a friend and/or relative…I would be careful.</p>

<p>Your friend knows there is something different about her child…and she likely has the same suspicions as you. She is also probably frightened regarding the implications of a disability.</p>

<p>Support her as your friend…she needs that. </p>

<p>I am a very blunt person in real life (online too) but have learned the hard way that discussing something like this with a friend is likely to backfire. I have had success with one and only one technique- next time your friend brings up an issue regarding her son- either a problem with the school, or looking at alternatives for next year, or whatnot, you can say, “I have a colleague who had a problem like yours-- and I know she got a lot of practical help and emotional support from talking to XYZ, who is an educational consultant (or an expert in adolescents, or a leader in alternative learning strategies-- find a euphemism relevant to the topic at hand) and I’d be happy to get the phone number for you”.</p>

<p>The response will either be- “oh great, maybe it’s time to get a third party opinion- we are too close to be objective” or “I don’t need an expert telling me how to raise my kid”. You can take it from there.</p>

<p>But I don’t think anything approaching a direct observation that her kid is struggling is going to open a door. And may shut it for good. And truth be told- unless you have at your fingertips the names of several great professionals to recommend, telling her she has a problem without offering a solution doesn’t move the needle on her dilemma much. Empathy is great, but then what???</p>

<p>Personally, I think it would be a big mistake for you to bring the autism/Asperger’s issue up with your friend. It’s quite likely that she and her husband know perfectly well about their son’s oddnesses and they are trying to deal with him as best they can. Maybe they just don’t want to talk about it with friends and neighbors, which is perfectly fine. Don’t assume that they are in denial just because they don’t share diagnostic information with you. At any rate, it’s not as if the behavior issues are going to go away overnight even with some kind of diagnosis. Sometimes maturity is the answer. I don’t see how being “on the spectrum” is really in the same category as developing eating disorders like bulimia. Asperger’s (f it is that) is not a stress-related mental illness and kids don’t end up in the hospital from its symptoms. </p>

<p>I have two examples. One friend came to visit and stay with us for a few days with her husband and 2 kids when both of our kids were about 3 or 4. My son at the time was in a language delayed pre-school, which she knew. She did ask me my honest opinion - did I think her d had any issues, her family all kept telling her she’d grow out of it, she was fine, etc. I just said - I can see why you’re a little worried and all I can tell you is to call your local school and ask how to have her evaluated. If it’s nothing you can move on, but if it’s something you can address it. She had her evaluated and the girl is long down the road of autism. She did thank me for being the only person who was honest.
My nephew has obviously had major issues since he was a baby/toddler. When he was about 4 I just told my mother in law that I thought we all needed to be prepared to support my sil when this boy when to school next year. I believe he’s got some big issues, and I can guarantee the teachers will be calling right away. Mil didn’t believe me, and told me that he was like that because his mom loved him so much, they had a “special” love. As if I didn’t love my kids - lol This kid has been having so many issues at school, but sil finally got him evaluated. She isn’t treating him, but she’s aware of his dx. Everyone in hubbies family thinks people need to just come to these conclusions on their own to do the right thing.<br>
I actually think sometimes people need a supportive ear. Surely this woman knows her son has issues. Maybe you ask her if she’s ever thought of getting him evaluated to help them find the right place for him. It can be tricky. </p>

<p>In all honesty, you need to decide whether it is more important for you to bring this up or for you to maintain the friendship. It is quite likely your friend will react much more negatively that you would wish. She may feel blindsided, or embarrassed, or angry , or that you are being judgmental. Even if you are coming from a place of love and concern, she may not view it that way. Is this something that is so important that you would sacrifice the friendship over it?</p>

<p>Something no one else has mentioned, but there isn’t really much in the way of “treatment” for being on the autism spectrum. It can make it easier for everyone around to understand what is going on when there are issues. And depending on the situation, it is possible to get some accommodations in the classroom. But there is no silver bullet solution to the issues of being on the spectrum just because the family gets a diagnosis.</p>

<p>If they do end up going for a dx and he does land on the spectrum, she is going to need a “real” friend now more than ever. So many parents of spectrum kids feel isolated, so having a “true” friend is a godsend. </p>

<p>Oh, and those “intense interests in a limited number of subjects” (and Harry Potter is a biggie) are called Special Interests. ;)</p>

<p>@TempeMom Other than your judgment that this kid is “on the autism spectrum,” you haven’t offered much more than this as a basis: “He has stayed sort of stuck; socially odd while all of their cohorts have matured. He has a very rich interior life and a very physically awkward external one filled mostly with a couple of fixations.” What makes this autism? Lots of kids are awkward, socially and physically. Being “quirky” or “individualistic” doesn’t make a kid autistic either. Not being “gifted” doesn’t mean anything immediately that requires a further diagnosis.</p>

<p>You haven’t said whether the kid is happy.</p>

<p>You haven’t said that he does things that are harmful to himself or to others.</p>

<p>You haven’t said whether he has interests or hobbies that he follows inside or outside of school. </p>

<p>You haven’t said whether the kid is getting decent grades, doing his homework.</p>

<p>I think you should step back a bit and consider alternative factors that could make him different.</p>

<p>There is plenty of treatment for students with autism.</p>

<p>Not much in the way of medication for the actual condition of autism… certainly there are medications for anxiety, attention issues, etc. that might be beneficial to some people on the spectrum. But there isn’t a pill (or pills) to make it all better…</p>

<p>Intparent…I was not talking about medication, and i dont think anyone else was. And I don’t recall reading that the OP or parent was looking for that. You said there were really no treatments for autism. My point, there are some very effective treatments for students on the autism spectrum. </p>

<p>But back to the question…would <em>I</em> initiate this discussion with a friend about their child? NO, I would not. </p>

<p>And if THEY initiated it, I would do as Blossom suggested, and recommend professionals who could give them assistance. </p>

<p>As coaches both my husband and I have dealt with kids who are on the spectrum and have parents who are so reticent about labeling that they don’t give teachers and coaches the resource and information that they need to most effectively help their child. I think it helps a child if the adults in those types of roles in their life have some understanding of why their relationships and reactions may be atypical. OP said that they have gone from school to school looking for ‘a fit’ when if they had some diagnosis and plan educators might be better able to work with them to give their son the best possible experience. </p>

<p>Every year when teachers send home the class syllabus to sign there is a field which asks if your student has any issues, concerns or special considerations that the teacher should know about to improve your student’s learning experience. Even if this child is not officially on the spectrum, acknowledging his communication and learning styles seems pretty important to me. Under the banner of ‘treatment’ one might include how they are treated by others . . . it makes a difference.</p>

<p>I recently read a back issue of Scientific American from the library with an article similar to the Wired article.</p>

<p><a href=“Are Geeky Couples More Likely to Have Kids with Autism? - Scientific American”>http://www.scientificamerican.com/article/are-geeky-couples-more-likely-to-have-kids-with-autism/&lt;/a&gt;&lt;/p&gt;

<p>Looks like you can only get a preview online.</p>

<p>To OP: I would tread incredibly carefully here. </p>