Not for anyone squeamish about medical matters

<p>Please stop right here if you are! And apologies in advance to anyone who thinks this is all way TMI.</p>

<p>I really have been doing better lately in a lot of ways. (Not that I would necessarily have used the word “thriving,” as my friend Helen Boyd recently did on her website!) Even though I’m still exhausted most of the time –- something that was very obvious to James when he was home at Thanksgiving, and, I’m afraid, seems to worry him a lot – and often end up napping most of the time on weekends.</p>

<p>The thing that concerns me the most right now is that I have to have a biopsy first thing Monday morning, inside where I had surgery this past summer, in an area that has never really healed, and still looks visibly “wrong" despite more than a month on Keflex. Plus, for the last six weeks or so, it’s caused excruciating pain whenever I engage in the post-operative care that I still have to do daily for about 45 minutes, because the stent passes by and presses against that area (sorry if that’s TMI!). Lately, it’s started to hurt all the time. I was examined by a gynecologist (not the nurse practitioner) a couple of weeks ago and she said I had to have a biopsy; when I asked what it could be she refused to speculate and said she had no idea, although she did say that it didn’t look like any kind of yeast infection. It’s been kind of hard waiting this long to have the biopsy, especially with all the pain I’m in, but I’m lucky, I suppose, that I only have to wait until Monday – originally, I was told that the first available date wasn’t until December 28, and it was only after I got so visibly upset that I almost started to cry that they managed to fit me in for December 7. </p>

<p>I’m trying not to worry <em>too</em> much, and am hoping that it’s just some kind of infection that wasn’t responsive to the Keflex (or to the cipro that I take every day to try to keep the Crohn’s Disease under control – which, thankfully, it has been of late). Even though I have a long history of awful and unusual complications, and fully expect to have the phrase “This is very unusual; we’ve never seen anything like this before!” inscribed on my tombstone, I think it’s rather unlikely that even I could have developed something <em>really</em> bad within just a few months of my surgery. Still, I can’t help being worried a little. Not to mention that I’m not looking forward to the pain of the procedure (or, more accurately, the pain and discomfort afterwards, since they’ll inject some kind of local anesthesia for the biopsy – an injection which will undoubtedly be painful itself!). Or to waiting however long I’ll have to wait for the results; I’m not even sure how long that takes. </p>

<p>I really wish I hadn’t mentioned this to James when he was home at Thanksgiving, because he’s very worried and has told me he had trouble sleeping after I told him. But I was visibly a little down, as well as being obviously exhausted and in pain, and he asked me what was wrong, and I sort of needed to share this with someone, and couldn’t help telling him (without going into too much detail, of course). I wish I hadn’t; I should have waited until I get the results and, hopefully, can reassure him that it’s nothing too severe. But what’s done is done, and I did reassure him as well as I could.</p>

<p>If anyone has had a biopsy before, in that area or elsewhere, did it bleed a lot afterwards? I really hope there isn’t too much bleeding afterwards, because I’m assuming that I’ll be going to work. The last time I had any kind of minor out-patient procedure in that area was this past January, when I needed a small repair that required a couple of stitches, as the final repair to all the complications I had over a period of more than 5 years in the process of healing from the preliminary genital surgery I had in November 2003. The nurse put some gauze on it, and I went to work, and had to work late, and all of a sudden about 9 pm I felt something and looked down and realized that the bleeding from this “minor” procedure had soaked completely through and had gotten all over my legs and soaked the (fortunately black) pants I was wearing! I cleaned up as well as I could in the bathroom, but it was still an experience I don’t want to repeat. </p>

<p>I also had to have an out-patient surgical procedure in that area in 1997, microscopic “Mohs” surgery to remove a carcinoma from something called Bowen’s disease. Fortunately, it was “just” a skin cancer and turned out not to extend too far below the skin, but in the middle of the surgical process I was told to get dressed and sent to sit in the waiting room while they examined the preliminary results under a microscope to see if they needed to remove more to make sure they got everything (they eventually did need to do that). Within half an hour of beginning to wait, I realized there was blood all over my pants, which, unfortunately, were khaki-colored! The nurse asked me if I’d brought an extra pair of pants (yeah, right!), and then was nice enough to give me a robe and try to wash them out for me. At least I didn’t go to work that day, although it was still rather stressful to have to walk immediately after the surgery was done from the hospital at 30th and 1st to Port Authority on 40th and 8th (no sign of any cabs or buses), and then take a bus home from New Jersey. My ex, who had the day off from work, was apparently “busy,” and declined to accompany me or pick me up afterwards, so I was on my own. (I lied at the hospital and said I had someone to pick me up; I was too embarrassed to admit the truth.) One of many signs that our marriage wasn’t working!</p>

<p>Anyway, I’ll come equipped on Monday with a supply of sanitary pads. Still, I’m not looking forward to the possibility that history could repeat itself in terms of the immediate aftermath. Not to mention that I can’t help worrying, at least a little, about what’s wrong. Really, I just want them to figure it out so they can treat it. I’m tired of things not being right, and I’m tired of being in such pain every day. It’s been a long time.</p>

<p>Sorry for complaining so much; I didn’t intend to go into things quite that much, but once I started typing it sort of all came out!</p>

<p>Donna</p>

<p>Oh man, Donna. That sucks. You just can’t catch a break, can you? I can’t think of anyone who deserves good news more than you do.</p>

<p>If you need someone to come and get you, you can call me and I will be there. Remember, I work right in the area. I’ll PM my number to you.</p>

<p>Sending good thoughts for the best possible outcome. :)</p>

<p>Oh Donna, I’m so sorry you are in pain. Medical technology (theoretically) evolved significantly since 1997, so I’m keeping my fingers crossed that your procedure will be uneventful.</p>

<p>Donna, sending best wishes for everything to go well!</p>

<p>Donna,</p>

<p>You definitely can’t catch a break! I am so sorry.</p>

<p>I have no wisdom to offer you, except that I have had to be on long term antiobiotics before for different ailments, take them correctly and they don’t “work” to solve the problem they should. I have had to switch mid-course, at times.</p>

<p>Hopefully it’s something minor. </p>

<p>Hang in there!</p>

<p>Maybe the stent is not correctly placed and the area above has ulcerated due to the improper placement. It could be putting pressure on the nerves also causing some of the pain.</p>

<p>James would have been madder if you had not told him so forget about that guilty thought. How about drugs for anxiety to help you deal with all that you are dealing with?</p>

<p>My thoughts will be with you. Any sort of biopsy sucks. That’s an area of major blood flow, so yes, it may well bleed afterwards. Bring sanitary pads and a change of clothing with you.</p>

<p>And please arrange for a ride home, whether it’s a taxi or a friend. Take ZM up on her offer.</p>

<p>Thanks, all – btw, busyparent, you’re thinking of a very different kind of stent. The kind I use isn’t something surgically installed, and is a separate object used daily for, um, dilation after the kind of surgery I had. Otherwise, the surgical results don’t last. I didn’t want to get too graphic!</p>

<p>ok got it.<br>
could be still be something related to the surgery–a stitch that didn’t dissolve and is ulcerating through. A biopsy is always a worry but the area may be the result of constant ulceration that due to the nature of the moist environment and necessary daily treatment has not been able to heal. The biopsy may be curative if it gets rid of the ulcerated area.</p>

<p>That’s what we will visualize over the weekend anyway. </p>

<p>You should deal with the pain though with meds. Pain that is not medicated can become chronic even when the source of the pain is gone due to changes in the brain pathways. Something else to worry about :slight_smile: so take your pain meds.</p>

<p>sometimes being a woman is a pain. welcome to the club.</p>

<p>I sent you a pm.</p>

<p>I’m not sure why, silverstersmom, but I didn’t get it. And I know I have room in my inbox. Maybe try again? Thanks.</p>

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</p>

<p>I don’t know about being a pain, but it’s certainly more complicated physically in some ways! Not that it isn’t worth it. For me, anyway.</p>

<p>Donna, no experience that helps and not a doctor or nurse, but do know a bit about Crohn’s and am wondering if they’ve ruled out a fistula. In women, fistulas can get into that area along with the other areas, etc. and cause problems. Since we’ve already established this isn’t for the squeamish, I felt it okay to post this. I would just make sure that’s not part of the picture along with possibly something else. It’s probably not that, but I thought I’d mention it.</p>

<p>Yeast infections and blood soaked pants, yup, you’re a woman! Not that your biopsy is a laughing matter at all, but one has to keep a sense of humour in these situations. You can laugh or cry, so might as well laugh, but any time there is a group of women together talk invariably goes to girly complications and you’re having them!</p>

<p>I hope this is something easy to resolve!!! Yay, ZM, for being available to help out.</p>

<p>Sending good thoughts and prayers your way, Donna. This is really a royal pain in the a@@ (well, close enough!). </p>

<p>I’m sorry about the pain. Of course, James is worried- but you did the right thing in telling him. It sounds like there will be bleeding and pain after the biopsy- can you ask for painkillers for post procedure? </p>

<p>Take ZM up on her offer- let people help you. I know you’re strong, but there’s no need to be a martyr.</p>

<p>I sent another pm. I think my first was sent to Donna L.</p>

<p>Hang. In. There. No one ever said this was going to be easy. OTOH, who the hell decided this had to be so hard??</p>

<p>I wish I could come and help, but unfortunately that’s not possible this time. I will be thinking good good thoughts all day long on Monday.</p>

<p>Well. I’m back at the office. That was fun. When the doctor gave me the usual warnings about the two injections of local anesthesia she gave me (because she decided to take two biopsies in different places) – “you’ll feel a sting and then a little burning” – I must say that it didn’t quite capture the reality of the experience!</p>

<p>I was able to get a taxi almost immediately – a good thing, because I really did feel a little wobbly while walking, and, in fact, still do.</p>

<p>I was told that the results will take 1-2 weeks to come in. The sooner the better.</p>

<p>It’s hurting a little now, because the anesthesia has started to wear off. Hopefully, it won’t get much worse. And equally hopefully, there won’t be too much bleeding, even though I came equipped with enough supplies for an army! The doctor applied something that’s supposed to help prevent that.</p>

<p>Although the sheet of instructions they gave me does have the very helpful advice that “if you bleed through a maxi-pad in two hours or less, this is not normal. Please go to your nearest emergency room.” I’ll definitely keep that in mind!</p>

<p>Anyway, thanks so much for all the support, and all the offers of help. You are all extremely kind and generous to me, and it means a great deal.</p>

<p>Donna</p>

<p>Just catching up on this, but continued best of wishes to you, Donna.</p>

<p>Glad it is over and you can go to work.</p>