Parents Caring for Parents Support Thread (Part 2)

Doctors MAY be able to provide helpful ROUGH guidelines but can be very wrong. I and several others I know well were given months or a year to live 20+ years ago. We are all still going strong, with our various health issues.

It is kinder if the doctors don’t encourage unrealistic hopes. My older bro was convinced 90+ year old mom could return to independent living after a hospitalization where she had difficulty walking or even standing. The doctor was a post-doc and very young and didn’t want to correct bro’s rosy predictions even tho everyone else thought it was pretty crazy. Doc’s inability to be more frank and honest with bro caused unneeded expenses and strife.

Anyway, so sorry for everyone dealing with long declines as well as sudden deaths. :sob::cry::blue_heart:

4 Likes

All true. But there comes a time as a caregiver that all you think about is that timeline. A ton of questions run through your head. Is it time? How much longer? Is it a phase? Should I tell family? Should I wait? What if I alert everyone and it’s a false alarm? What if I DON’T alert them?!

I’ve actually thought about this quite a bit. You call family earlier than later. At least they get that visit. It’s the quality of the visit not the timing. Much better to call the family before the funeral to visit rather than call them for the funeral.

2 Likes

Ugh, the impact of Dad losing his caregiver is sinking in. She took care of him (and my mom) for the last 4 1/2 years. She knew Dad like the back of her hand. She could just look at him and know if he was struggling. Last month, she knew something was off and discovered his oxygen level was very low, and insisted he go to the hospital. She is irreplaceable. Before she started, my parents had a string of women who were nice but it was “just a job” for them. Yvonne treated Dad like he was her own father. And Dad helped her out some with medical expenses.

My son who is getting married today spent a good bit of time with her when he was in Austin working for my dad. I’m not going to tell him the news yet.

1 Like

That’s a big loss! We had a caregiver like that for my mom for a few years and we were never able to get anyone quite like her again. It wasn’t until the very end of my mom’s life that we found someone who we were planning on hiring to help my dad, but he passed before that was needed. Caregivers like that are such a blessing. Peace to her family and all of you!

1 Like

I just found her Facebook page and over the years, she wrote nice things about my dad. She told my sister and me how much she liked him, but you can’t know if someone is just saying that. From her posts, I can tell that she was sincere. Oh, and I saw that she celebrated her 55th birthday a week ago today. :frowning:

MIL also had a gem of a caregiver - their personalities clicked and it was win-win relationship. Her caregiver had a stroke, survived hospitalization, but at home had a fatal stroke. This caregiver was the reason she was able to stay at home, although it was not a totally safe situation as caregiver only came some days.

Need to tell dad soon and help find another super caring person that clicks with dad/situation. None will compare, but one could potentially be a baseline start and have the situation develop into a better one.

1 Like

I’m sorry for your loss. What an amazing lady! So much to learn from her. May we all imitate her good caregiving example.

4 Likes

What a tragic loss…. to her family and to your Dad. I’m glad that you did find her though to make the past years better.

1 Like

My mom had 24/7 caregivers but none visited her once she moved from independent living to assisted living. Some of dad’s nurses came to his funeral. None of the nurses or caregivers came to mom’s funeral, though mom was a lot more caring and easier patient than dad. Dad was in the hospital for two weeks before he died so some of the nurses really got to know him and our family.

Mom was well-liked by her caregivers but the had to move on to other patients.

Finding a caregiver who really cherishes the patient and provides excellent care is such a bonus and sadly not easy to do.

@MaineLonghorn how is your dad handling this news?

Thanks for asking - hard to say from a distance. Seemingly pretty stoically, but that’s Dad. My sister is going to drop by his place on her way home from work today.

I’m hoping my son’s online marriage ceremony in a little over an hour cheers him up. We’re not telling my son yet, because he worked with her pretty closely when he helped take care of Dad in 2020.

@MaineLonghorn, I’m so sorry for the loss of your dad’s caregiver. I remember all the times she would identify an issue before it became a serious problem. There’s nothing like a caregiver who brings compassion and care, not just to your dad, but to your entire family. :broken_heart:

My FIL had a parttime caregiver for several years before he passed away. She was a delight and treated him like family. Her efforts gave FIL happiness and enjoyment at the end of hard and difficult life. She also made my BIL’s life (he was local to FIL) so much easier and was there when FIL passed away. She came to his funeral as well.

My mother’s sister and I have about had it with my mother. She has been so negative and lying lately that it is wearing on us. Background-mom moved to a retirement community the first of the month. She didn’t really want to move, but she could not afford her 2 bedroom apartment much longer. She decided on this community as she had a friend there and it was the most affordable in the area we were looking. The place it small and her furniture wouldn’t all fit, so we spent a month deciding what she could and couldn’t take. She was attached to everything, and fought about everything we had to get rid of. We finally made it through the downsizing and took things we knew wouldn’t fit, or she didn’t need (every 93 year old needs 2 sets of dishes and silverware, place setting for 16!)

The move was almost 4 weeks ago, and the first week was actually ok. Her friend came and got her to go down for dinner each night, introduced her to others, and they went to bingo and bridge, one night each. Then mom got sick with bronchitis and didn’t feel well, so didn’t eat much. While she isn’t coughing as much, she is weak due to no activity and not eating as well. She will have one good day, and then complain the next day she is horrible, yet when I go over there, she seems fine.

Yesterday we took her and her friend out for lunch to celebrate her birthday. For days leading up to the birthday, no matter where we suggested for lunch, she would complain about-the food is terrible there, they have nothing to eat other than salads, it’s too far, it’s too much food for lunch, etc. We decide on an Italian place that we have been to many times, and I know she has been once or twice with me in the past. I read her the menu from online, which she says much be new as they never had that before; it’s an Italian restaurant, and she insist they have never served pasta! We get they and she behaves which I knew she would as her friend was there, but she still insist this is a different menu than when she was last there.

The negativity is about everything and everyone. There is a scratch on her fridge-the maintenance man did that when he came to check her sink, the movers broke her scale because they didn’t wrap it-it wasn’t broken and I unwrapped it when unpacking the box it was in. The cable guy messed up her tv and she can’t get any channels-she is on the wrong input, but insist she didn’t touch anything. The lying is more extreme exaggeration, but she had done this for as long as I can remember. My uncle use to say, don’t let the truth get in the way of a good story!

I know my patients is thin with her as I went from 5 months of care giving my husband and then his death, to dealing with her; my aunt and uncle helped when she needed it while my husband was sick, so I pretty much was hands off and let them do everything. That said, mom is self sufficient, but the move was hard on her. She is still driving a tiny bit, just within a couple of miles from her place. She will do grocery and doctor’s appointment. Her new place has a bus that takes them to the grocery store, and my aunt and I will most likely do the doctor’s appointments just so she doesn’t drive. She know when the car goes, and it is on it’s last leg, she will no longer have a car. My husband always handled the maintenance on the car; I just realized the other day that it hasn’t had an oil change or air in the tires in close to a year. Don’t want it to break down while in the car, but maybe I will just ignore the care of it, and hopefully it won’t start one day!

Any suggestions on dealing with the negativity? Again, this isn’t entirely new and some may be age related. We try to change the subject, but when I get upset with her, I call her out on it, which I know is not nice. Yesterday was the first time she sort of said thank you to my aunt and I, and I know that was just because her friend was there. Not looking for a gold star, but I have busted my butt to get this move arranged and completed. While I don’t need to be curled in a ball in my bed, I would like to figure out my life. I promise my kids I would not do this to them, and they need to do what is best when the time comes. Of course, I don’t think my personality would have me be like my mother, but who knows as I age!

So sorry your mom is being very difficult (and also sorry that’s she’s never been easy). The timing rots. Sound like you’ve done an awful lot to help her - she’s quite fortunate, even if not all that appreciative.

I do wonder about her not remembering the Italian restaurant. It’s good you are keeping an eye on her, watching for possible memory declines.

Per the car, it will help her finances a bit once it does bite the dust. Hopefully she’ll be ready to give it up then.

1 Like

You described my father. Nothing was ever right or good enough and he complained incessantly. Super hard to be around the constant negativity.

I don’t have a solution but wanted to send some cyber hugs!

1 Like


You definitely deserve a gold star!
Hang in there!

6 Likes

Honestly, I would take a bit of a break.

She’s moved, she’s fine. You’re grieving and need a break. She can try and handle things on her own for a couple of weeks.

My mom is the same. Said all kinds of stuff that wasn’t true. Can be very negative and frankly very self absorbed.

Told me the last time I talked to her that she thinks she’s been a little selfish because she didn’t call her friend of 60 years when the friend was dying. Because she was so wrapped up in her problems.

No kidding.

Sometimes I need a break from all of it.

I think I get wrapped up with mom doing the right things. Going to dinner, going to the doctor. Seeing friends. Why is it my responsibility? Why do I feel like I have to help with this?

1 Like

I don’t think I’ve responded on this thread before…so…

One thing I learned with my aging mother, and especially in her last few years…there was no point in disagreeing. It just made her more negative. So…I just agreed with her (even when she was totally wrong) because most of the time, it didn’t really matter at all. And agreeing totally ended that part of the conversation.

My mother also insisted from time to time that something had changed…when it had not. I just would say something like “I know…it’s hard when things change, but this nis what’s here now”. And that usually ended that negative conversation.

I also agreed when she said outrageous things like “people are looking in my windows”. Oh no…would be my response. Let’s pull the blinds. My mom was on the third floor. No one was looking in her windows.

It took me a long time to get to the point where I could agree with things she was being negative about…when it didn’t matter at all. And really, that helped my sanity.

18 Likes

@snowball I totally agree about taking a break.

I am on a forum for parents dealing with their own aging parents in Brooklyn, NY. This is how I responded:

"I think [some of the acting out by elderly parents] may be fear of the unknown, i.e., further disability, failing memory, possible loss of partner (or partner’s loss of them), death much sooner than anytime before. I totally get it about anger at parent(s) for not tackling mental health issues–I feel like my late dad and stepmother spent their whole lives skating on the surface of feelings and behavior. My dad had a hemorrhagic stroke while in the hospital for something else. He had no issues about the existence of an afterlife–he had always, AFAIK) been an atheist. But in the hospital where he was in hospice, once I told him that his stepmother’s son was stepping up to the plate and that his grandchildren, especially my daughter who was local, would be fine, he was able to relax.

“Of course one would hope that peace would come to all our elderly parents long before their lives ended. Perhaps doctors/assisted-living social workers/hospice workers can make good suggestions–not just for sons/daughters but also for the old person themselves. Youtube videos? Engaging films? Something they might be likely to read or watch. And I highly recommend therapy for adult children. My therapist (who, alas, retired with the pandemic) transformed my life, especially concerning feeling comfortable with dad/stepmother.”

Take a break! But just in case this is helpful to you or anyone else here…

–oldmom, late-life LMSW

5 Likes

I agree about taking a break. And therapy if you haven’t done it.

3 Likes