Parents Caring for Parents Support Thread (Part 2)

We were at my Mom’s yesterday for Easter. She is doing well, but this week will be tough with my Dad’s birthday tomorrow which is the first since his passing. I have flowers being delivered to Mom tomorrow. H, D2 and I stopped at the cemetery on our way home yesterday to put fresh flowers on Dad’s grave. I cry every time we go there.

My mom is finally going to get fitted for new hearing aids. I have been pushing her to do this since I was staying with her last summer after she was in the hospital for the infection related to her kidney stones. I suggested that she try Costco since so many people have been happy with the hearing aids from there. My mom is physically doing well and back to walking 3 miles a day. She has consultation with the doctor at UCLA this week about the large kidney stones in one of her kidneys. At the last visit the doctor wanted to wait and see before going forward with surgery. Mom had another ultrasound which the doctor will be discussing with her. My younger brother will be on the call with Mom so he can also hear what the doctor says.

D1 and SIL did not come for Easter at Mom’s since his parents came to our town from the east coast (100 miles from Mom) for the holiday. My mom is very excited that D1 is expecting a baby girl in October. My Dad would have been thrilled to have another great grandchild. It seems that with each milestone since my Dad’s passing I just feel so sad.

8 Likes

I had kidney stone surgery, and it is not easy. Is your mom a candidate for lithotripsy? I wasn’t because I didn’t know I had a stone until it was stuck in my ureter - but my friend has had lithotripsy a couple times, and it was easier on her body than surgery.

2 Likes

My mom had lithotripsy in the past for kidney stones. These stones are very large so they either need to remove them surgically from the kidney or possibly remove the kidney. If the stones have not moved since the last ultrasound I think the doctor will still hold off on doing surgery.

2 Likes

Girl, I feel ya. This week is the fifth birthday without my dad and the one-year anniversary of mom’s passing. How thoughtful of you to send your mom flowers.

6 Likes

They don’t want to move back up north so nowhere near us.

2 Likes

S2s wedding was the last time we were all together, and my dad was well. S1s wedding is this summer, and everyone is trying to not feel sad about the difference.

I have a recording of my dad (gone 16 months now) and I start it, to hear his voice because I want to…and I cry every time without “feeling” sad. It’s like my brain and my heart are on difference wavelengths. Hang in there. I don’t have any good advice other than to say it isn’t just you, and it’s okay to be sad.

8 Likes

(whining in progress)

Talked to my narcissistic 79 yr old dad today. Was returning his phone call from yesterday because when he called, we were en route to my sister’s for dinner and we didn’t get back home until after 11 pm his time.

Well, he was in a royally grumpy mood, which always comes out in prime passive aggressive mode. Petty & ridiculous (in my opinion) things that irritated him included:

  • how my cousin is throwing her mom (my dad’s sister) a party for her 90th birthday next month
  • how we all (him, me, my sister) all got invited to it. He’s not going. sister & I can’t go either because of work and Aunt lives in Midwest, so travel would be required.
  • how my cousin works 4 days a week and on day #5, she spends the day taking Aunt to the grocery store and other errands. He threw in a snarky comment about “that must be nice for her that she actually HAS a relationship with her mother.” Earth to Dad: If you weren’t such a tool and a jerk, my sister & I would do things like that for you, too. But we don’t want to do that when you act like a butthole.
  • how my soon-to-be-90 yr old Aunt asked him to send to her all of the rest of the pictures & other mementos my dad had about their older brother. Aunt is 11 yr older than my dad and their older brother was 15 yr older than my dad. Uncle was a pretty awesome guy, born with cerebral palsy, programmed Titan missiles for the Dept of Defense for almost 40 yr. Uncle & Aunt were really close. Aunt & my dad? Not so close. My dad has spent his entire life kind of hating her guts.
  • how he thinks that Aunt has “set up a shrine to Uncle” in her apartment. No, Dad, it isn’t a shrine. It’s a few photos and mementos of her dead brother. She’s almost 90. What do you care? YOU’RE NOT EVEN GOING TO SEE HER EVER AGAIN! So what does it matter to you? Besides, guess what? Here in the Southwest, people set up ofrendas in their homes in late Oct/early Nov around Dia De Los Muertos. I think it’s really nice to remember your loved ones who have had a “change of address.”
  • how he went to breakfast with a guy who used to live across the street from him. And how much he (Dad) hates the guy’s wife.
  • how Breakfast Buddy (who my dad couldn’t STAND when they were neighbors) & wife live in an assisted living facility now and how he thinks that “all of those places just want to make a killing from everybody, literally.” Here we go…conspiracy theory dad again.
  • how his wife’s son is in town visiting for Easter. Huh, ok, so you’re mad that your wife isn’t paying attention to you.

He almost spit nails when I suggested that he consider moving to a state that doesn’t have state income tax if retirement costs are a concern (he’d been complaining for a good 5 minutes about $7000/month for senior living places). He seems to think that my state (AZ) doesn’t have state income tax. Ah no, you’re wrong there, buddy.

Here’s what I don’t understand. He lives on the east coast. My sister & I are in AZ. His wife’s 2 kids? 1 lives in France and the other in DC. And both he & wife hate living in their state. They don’t have any other family nearby and with how rude and grating he & wife are, they’ve run out of friends because they alienate everyone.

If both of my kids lived on the other side of the country from me, there’s no way I would stay there. It’s stupid.

He is such a butthead. And grumpy.

He’s also probably mad that neither my sister or I are going to throw him an 80th birthday party next year. I mean, why would we? He’s rude, mean, angry, and don’t get me started on how disrespectful to my dead mother he’s been…how he’s tried to rewrite history to convince himself that erasing all of us from his life is ok if he tells everybody that my mom abused him (she didn’t by the way).

Why in the world would I throw an 80th birthday for a man who’s gone around telling everybody that my mom was abusive to him because she wouldn’t have marital relations with him while she was going through pancreatic cancer treatment? Not happening, buddy.

He’s been such a bad grandfather to my kids that proximity to him played a role in where D24 wanted to consider applying to college. And D26 feels the same way.

So all of that “honor your mother and father” stuff? I honor my parents by doing the opposite of whatever my 79 yr old dad would do.

12 Likes

I think you get amedal for returning his phone call when you know it will be the latest litany of complaints. It sounds like you have a good set of boundaries, but it must be frustrating!

6 Likes

Well. My mom had a pretty big (quarter wide and probably 1/2" high) squamous cell carcinoma removed from the back of her dominant hand about a week ago, at her dermatologist’s office. It had been there since February; her pcp gave her antibiotics and recommended a return if that didn’t help, and it didn’t.

The pathologist’s office sent her a letter recommending we see an oncologist who specializes in hands, since they are concerned they might not have gotten it all. She already has an appointment in July with the derm office that removed it. She is now in a serious panic. Yesterday she called all three of us, one at a time, to see if she is “contagious”. I explained (as did the others) that no, she is not. Who gave her that idea, we don’t know.

She wants to find a specialist. We said, let’s talk to your regular derm people (she’s had spots treated for probably 15 years, off and on) before we get all excited about surgery on a 92 yr old’s hand. She called me again today to see if I still thought she was not contagious. To be sure, she literally could not care less about dying from this. Just panicked over being told to see a new doctor. And this weird contagious thing. Local says he thinks she is self-conscious about the wound and is imagining people talking about it.

11 Likes

Personally, I wouldn’t wait 2-3 months to follow up on the skin cancer. Why not make an appointment asap with hand specialist? Or an oncologist and they can find a hand specialist who does oncology surgery. Maybe radiation would work. I’d be gathering information.

1 Like

Who knew that there were oncologists that specialize in hands.

I’m always surprised how specialized physicians are.

1 Like

Understood. She’s had multiple lesions removed from her legs in the past – they treat it with a chemo cream for about 6 weeks and then leave it alone to very slowly heal. She was a waterfront instructor all summer, every summer, for about 6-7 yrs as a young woman. Can still do handstands underwater :wink: My dad would tease her that she’d get tan if he shined a flashlight at her.

She sees an oncologist for her platelet disorder (makes too many, always has) but they don’t have a derm person. A hand/oncology/surgeon is only likely to be found hours away.

1 Like

A physician friend of mine did a summer marine biology summer-long course in the Bahamas as a 20+ college student, and now 60+ had a quite deep cancerous spot on her back. She is fair skinned but does tan.

DH and I go to dermatologist annually, and we both have had abnormal tissue treated. We feel good about having this monitored.

Interesting about hand/oncology/surgeon specialty.

For non-dominant hand and considering her age and preferences – with lesions removed in the past, it would have seemed that she would be seeing a dermatologist annually who would do a thorough skin assessment. Her hand lesion must have looked more like a bug-bite infection for her PCP to give antibiotics, and he may not have known about her other leg lesions in the past.

Wish her the best with follow up care. To me she has a lot of empathy to be concerned for those around her - somehow, she has ‘contagious’ on her brain.

Skin cancer is definitely something to be very careful with and treat aggressively! I’m sorry your mom is so concerned about contagion. I hope someone can help allay her fears that she is NOT contagious and that she gets the appropriate care.

1 Like

My parents have all been gone for over 20 years but I’m now dealing with caring for an older sibling. She has Parkinson’s and just was hospitalized and diagnosed with a bleeding ulcer. She has been at my house since she got out of the hospital. She is divorced and no children and I’m the only local sibling. I’m tired!

25 Likes

Is there a respite service available? That might help you get a bit of relief. I’m sorry—it’s hard caring for needy loved ones.

3 Likes

Wow, that’s a lot! Do whatever makes things simpler — doordash, instacart, scream into a pillow :wink:

2 Likes

That sounds hard. Don’t be afraid to ask for help from other sibs (from afar or maybe come visit) and your sister’s friends.

1 Like

Parents or not, you situation is very relevant for this thread - feel free to post when you need to sound off!

7 Likes

My late brother had a stroke, and my two other brothers and I were scrambling to figure out how we would be able to care for him. My boss at the time was fantastic, and he allowed me all the time I needed to be with my brother and research options. It was a lot. My brother had a second stroke before he ever left rehab and passed away, though. But I can absolutely understand how you are feeling right now - it’s daunting. Parkinson’s is one of those diseases that affects people differently, so it’s hard to know what the future will bring. Be sure to use this thread to get ideas and to just unload. :mending_heart:

5 Likes