Support for LateToSchool

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<p>[Living</a> with Lung Cancer…Through My Eyes by Lori Monroe - Presented by National Lung Cancer Partnership » About Lori Monroe](<a href=“http://www.nationallungcancerpartnership.org/blog/?page_id=2]Living”>http://www.nationallungcancerpartnership.org/blog/?page_id=2)</p>

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<p>[Lung</a> Cancer Information - National Lung Cancer Partnership. Women. Research. Change.](<a href=“http://www.nationallungcancerpartnership.org/page.cfm?l=stories]Lung”>http://www.nationallungcancerpartnership.org/page.cfm?l=stories)</p>

<p>In thinking about DC, and in thinking about your daughter’s future, imo think not only about the serious obstacles you describe. Imo think also of her strength, her talent, her resourcefulness, her resilience, her determination, her imagination, her spirit.</p>

<p>In thinking about the possibility of her being alone, imo think also about how well you can prepare her for that possibility, just as you have prepared her so well, and in so many other ways, since she was born.</p>

<p>^^^ So many well-said things in these posts above. Thamk you ALL for your contributions to this very valuable thread.</p>

<p>LTS, I too like your solution

best.</p>

<p>But in thinking of my own reaction to your dilemma regarding your D, I guess my own inclination would be to have a solid sit-down talk with her, expressing my concerns and filling her in on the data you have researched. Give her the full data dump but then of course acknowledge that the only statistic that really matters is the one that applies to you. We all know that you are a category of one!</p>

<p>The tell your D that you want for her what will be best for her in the long term. Share your concerns about that and ask her to make her own decision based on her own feelings, but to consider that your knowing that her life will go on productively and happily is a significant source of happiness to you. </p>

<p>In other words, that you hope that she will make the decision that will be best for her in the long term, whichever it is. We certainly don’t know that, and she can only make her best call.</p>

<p>It is quite possible that in D.C. there is a job well suited to her, a guy more right for her even than the one she is with now, etc. Perhaps that is not the case. Either decision could be the “right” one, and the other will simply be the road not taken, or perhaps the road taken at another point.</p>

<p>But please do not feel the burden of helping make the decision for her, either way. Share all you know and feel with her, and trust her to make a choice best for herself. You have raised her to be able to do that, I am sure.</p>

<p>I so feel for what you are going through and as I say can only imagine what you are dealing with, but respect you tremendously for how you are handling it.</p>

<p>I am so sorry you have had such very painful times lately, but am glad that your life has held so much overall satisfaction for you. </p>

<p>My thoughts will be with you.</p>

<p>latetoschool: You encapsulate so beautifully what all parents face, though for you it is so much more immediate and condensed, and yes, two city problem intensifies these conflicts.</p>

<p>Our children painfully (to them I mean) grow away from us. This disturbed my very sensitive little boy so much, and he worried so much about our being parted, that I had to tell him that we could never be parted, not be anything. That our souls were joined in such a way that we would always be together. Only this assurance gave him the courage to live.</p>

<p>And I really believe (it’s hard to say this because I have made my career out of not believing) that your daughter will be watched over; no matter what outcome she will not be in a situation in which she is unable to cope or fine support. You will be here,or her friends in Miami will be there, just waiting for her with open arms, or new friends in DC eager to include her in a life they build together will be there. Or all three. I feel that she has some of your resilience, and surely love is the best food for growth, and she has had so much love.</p>

<p>And I see you in your suit being victorious. Nothing ends ever.</p>

<p>[The</a> Bonnie J. Addario Lung Cancer Foundation » Survivor Hall of Fame](<a href=“http://www.thelungcancerfoundation.org/living-with-lung-cancer/]The”>http://www.thelungcancerfoundation.org/living-with-lung-cancer/)</p>

<p>Thanks for all of the very nice, kind posts; I appreciate it. </p>

<p>This morning I had my doctor’s appointment and follow up from Friday’s scans. Unfortunately the PET shows progression, and this is in first line treatment. From everything I have read about small cell, this is fatal news. My oncologists wants to do MRIs to figure out what are the two new areas (two of them, about 1.0 cm each) however, I have evaluated the entire situation, and have decided that this new information forces me to take immediate action. Scariest of all he won’t even have a new course of action until MRIs come back, and, as of now, they’re not even scheduled. At the rate small cell grows this is a horrifying position for me to be in. So, I will leave for Washington tomorrow, to continue my life - and my medical care - there. </p>

<p>My daughter was with me for this morning’s appointment; she will see to the packing and clearing out of our Miami home, get her job transferred, and follow me by the end of February. </p>

<p>This is of course very scary but…I’m not giving up.</p>

<p>Oh LTS, I am so sorry to learn this latest news.
Nevertheless I am once more so impressed with your capacity to deal with it in such a proactive manner. I am glad you will be relocating to D.C., where you will have the best access to the treatment and team you have decided upon. You will then be in the strongest position to make your treament your top priority.

NO surprise there! </p>

<p>My thoughts will be with both you and your devoted daughter. Please thank her on behalf of the many CC members who care about you.</p>

<p>LTS: With you. We are all looking this in the face together, holding your virtual hand.</p>

<p>LTS…
Words escape me. Your courage is astounding. Your D will follow her own path, led by your shining example of independence and fiery spirit and will. We will all be here to support you through the next phase of decision making.</p>

<p>LTS, My prayers go with you. I too am a single parent with a single daughter. I would regard myself as blessed if when my own journey reaches a point similar to yours that my daughter could or would be with me. Keep well.</p>

<p>LTS:</p>

<p>I am deeply saddened to hear this news.</p>

<p>Without diminishing its impact, I’m also reminded of something (from post #663) that Jon Kabat-Zinn tells patients - no matter what kind of shape they’re in or how dire their prognosis:</p>

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<p>There’s nothing Pollyannaish about this - it’s just the plain, simple, irrefutable truth.</p>

<p>LTS, re your posts #979 + #988 – I am saddened & frustrated to learn of the bad news with your latest scan. </p>

<p>This is a difficult post for me to write, because I want to say some things to you about your daughter – and it may sound insensitive to your own needs. It is not intended that way – I am trying to respond to the fears you expressed when you wrote: She will be left all alone in the world, in a city where she would not choose to be, except for me. There are no other surviving relatives and no siblings. Worse, she will be grieving the loss of her only parent. </p>

<p>Here is what I want to say: please have faith in your daughter, including her resiliency and her ability to make the best decisions for herself as well as to support you. The fears you express would be very realistic if your daughter were 9 – but as a young adult, already graduated from college: she has the foundation she needs to move on. I was about the same age as your when my mother died --suddenly and unexpectedly, from natural causes (a stroke). I survived. I was 24; my mom was 48. </p>

<p>My career was just starting and there were some changes forced by my mother’s sudden death… but career-wise & friendship-wise, they were good changes, not bad. Yes my whole world was rocked by the sudden loss of my parent, but odd as it sounds, I felt stronger, more ready to conquer the world. I was fortunate enough to get grief counseling that helped me understand my feelings and avoid feeling guilty over the new sense of empowerment I had – of course I loved my mother and would have given anything to have her back, but the loss of my mom also represented a new level of emotional freedom for me, a time when internally I truly became an adult, and when I also felt that as I had survived the “worst” that could ever happen to me (what could be worse than losing a parent?) – that there was nothing left for me to fear. </p>

<p>When you stress over your daughter leaving her network and connections in Miami for D.C… then I know you are not thinking straight – as obviously there is the potential for her to make extraordinary personal and career connections in D.C. So rather than hurting her, your illness may be the event that nudges her in directions that are potentially far more rewarding for her in the long run. You never know – but there will be new friends in DC, new experiences. As to her Miami friends: with cell phones, face book, and discount airlines, your d. will stay in touch with the true friends that count in her life… and these times will also reveal which among her friends are not to be counted on… I can tell you from my own experience she will know it is no great loss to move on from those “friends” who prove to be insensitive in this time of need.</p>

<p>As to your situation: I cannot possibly imagine the horror and despair engendered when you come face-to-face with your own mortality. But we each will die - for each of us, it is only a question of when and how. Last year at this time I was attending the memorial service for a 19-year-old friend of my daughter’s – the most vibrant, open, loving, happy young woman you can imagine – who was killed in a horrible freeway accident. </p>

<p>None of us can count on living forever – but we can make the most of our lives while we can. As horrible as it is that you have been struck with this disease, you are fortunate that you are currently in good enough shape so that you are able to care for yourself and – outside of the frequent hospital visits – lead a fairly “normal” life. You can have fun with your daughter and for now make the most of the rest of your time with her, whether that time is measured in weeks or months or (as we hope) years – and that is what you should do, every day that you can. </p>

<p>So please… understand that your current surface good health is a gift to your daughter – and that no parent can give their child the gift of everlasting life or immortality. What you have done is raised your daughter to adulthood and given her the foundation to build a good life for herself – and right now she also has been blessed with the knowledge that she needs to prioritize and cherish her time with you. Those of us who lose our parents unexpectedly often are left with regrets – if only we had returned that last phone call, if only we hadn’t had that last argument. – so as painful as it is on both ends, knowledge is precious: it allows us to plan, to make amends where needed, and to build the memories that will sustain the continuation of life. </p>

<p>My mother passed away 30 years ago, but she is still with me – she comes to me in my dreams, where she now is younger than me. Sometimes I catch a glimpse of her in the mirror. I have always been sorry that she never knew her precious grandchildren, and that they cannot know her — but at the same time I know that she lives on through them. </p>

<p>I know that is not much comfort to you – but I am trying to help you see things from your daughter’s perspective – to understand that the most important thing you can give her now is your companionship and the memories that will sustain her for the rest of her life – and to know that she will always find comfort and support in those memories. So if you truly want to help and support her, then please understand that for her – every “sacrifice” she makes for you at this time in her life is a gift that will give her solace and strength for future.</p>

<p>Again, I am hoping that this post does not seem in any way insensitive to the horror and fear you must be feeling when you contemplate your own future. There is nothing I can possibly say to address or ease that pain. I just want you to stop feeling guilty about the impact of your illness on your daughter. It is no more of an imposition for your daughter to move from one city to another to be with you than it was for you to stay home and change her diapers all those years when others your age were out partying; it is the things that we do in our lives out of love that ultimately enrich and sustain us.</p>

<p>LTS: Continuing thoughts with you and your daughter.</p>

<p>I will try to stop the tears long enough to send virtual hugs your way, LTS. Your last post gave me chills. Yes, we all will die … but to be staring it in the face must be so difficult to wrap your mind around. I can only think of the word “enormous” to describe all that is happening to you. You are so fortunate, though, to have an opportunity to prepare yourself and your daughter for what may happen (although I do pray that you will be one of the few who wins the battle). Of course you worry about your daughter, but you are giving her everything she needs to deal with whatever transpires. If she chooses to give back to you, please accept it without worrying. She is an adult & she knows what she is doing. It’s bittersweet, but you should be proud that you raised a child who is so unselfish.</p>

<p>So very sorry to read this latest news. Prayers and every good wish go with both of you to DC.</p>

<p>Another ‘reads often, first time poster’ to this thread.</p>

<p>LTS, I will include you and your Daughter in my prayers. In addition to medical successes, I will pray for continuing courage and strength for both of you as you make your transition to DC.</p>

<p>LTS: I am so sorry that the news is not good. I would echo what calmom says…my mom comes to me in dreams, too, and she has been gone for almost 23 years. You will forever be very much in your daughter’s life and heart. Hugs and comfort…Lorelei</p>

<p>I’m another long-time reader of this thread, first-time poster. I have to admit that I first clicked on it because my teenaged boys are chronically late to school, eating their cereal in the car on the way. Turns out it’s about a much bigger part of life.</p>

<p>We just started to take down our own Christmas tree today! What a very small worry in the face of bigger things. All my best to you and your daughter. Love and peace be with you.</p>

<p>LTS: Echoing the theme of dreams, my second child, my son, told me that Grandpa Chuck came to him in dreams all the time although he had passed on nine years before his birth. Both kids have a vibrant relationship with the grandfather whom they never met on this plane. It is one reason they dropped my H’s name (they had a hyphenated last name) and legally took mine only.</p>

<p>However, you are here with us, and we with you and with your D as she is with you. Blessings.</p>

<p>Words fail me, but feelings do not. Soldier on. We are with you in spirit and prayer.</p>