<p>Thanks for your kind words @nottelling. Without being Pollyanna, am just trying to share as many have generously shared with me. The glass half empty has always puzzled me, especially for folks who have what appears to be a pretty nice life. </p>
<p>The kids and I are and were going thru serious health challenges at the same time–from around 2000 thru today. Mine will persist and progress until I die, unless some marvelous breakthrough happens (that is currently not even anywhere near the horizon). </p>
<p>We have all empathized with one another, been sad at how much of social life and unremitting exhaustion both kids suffered. We were there for and with them. They and we still know kids who have it much worse. We flew our kids to clinics in Denver and NY for evaluations, where they met MANY kids in far worse shape. We bought video games to amuse our kids and left it for the med center for other kids. </p>
<p>Our kids were grateful they had each other and that H and I really seemed to get it and were always in their corner, with HS administration (who was unhappy with us and them about the frequent and prolonged absences), with docs and counselors who sadly didn’t get it, with family members who didn’t get it. </p>
<p>We cultivated an attitudes of gratitude as much as we could because I and they felt not much was to be gained by pity parties. To this day, D’s friends ask her when she’s feeling poorly if she’s REALLY ill or just having her “typical flare” exhaustion. It works for them and their friendships are going on 10 + years now. </p>
<p>Neither of the kids wants to talk of their sadness and loneliness of the past many years and mostly we are all looking toward better and happier times. We did have the kids see a few counselors but the kids said it was a waste of time and energy for them, as they’d be fine as soon as their health improved, and so it has been. We respected our kids choices not to have counseling. </p>
<p>We never made light of the tough times they went thru (and still have to varying degrees), and feel it has made them the strong, resilient and empathetic people they are. They have come to recognize and acknowledge this as well. </p>
<p>I try to lead by example as well and tend not to have pity parties, or if I do, they are very short-lived, as there is just too much to do. I like to think my example of thriving with my scary diagnoses and originally bleak prognosis has helped my kids cope well with their health issues. </p>