Not for anyone squeamish about medical matters

<p>Donna, I don’t know the details of your story but I wish you the best and I’m glad to see that you have so many good people supporting you in your journey. Take care.</p>

<p>The biggest flaw and most hurtful behavior that I see on CC are comments of those who tap into their own bottled anger against a person or group of people or situation and take all that anger out on one anonymous poster when you can’t know or feel the reality of what that one poster is going through. I’ve said this before on another thread but I wonder if people really say such hurtful things face to face to people in real life or is it just the internet that makes bullying behavior easier.</p>

<p>First, I appreciate the kind comments from people, very much.</p>

<p>Second, to AnuddahMom, I know you’ve been very supportive of me. And I do understand where you’re coming from. So I’m trying to remain calm.</p>

<p>But this is really upsetting me. At a time when I’m already anxious enough over my medical situation! And my klonipin prescription has run out! (I’m waiting for my doctor to send me a new one. I have really major anxiety issues sometimes, for which the anti-depressant I take, which does significantly reduce my continuous low-level anxiety, doesn’t always help.)</p>

<p>You could have PM’d me to raise the issue of what happened in my marriage, which obviously isn’t the subject of this thread. I could have explained some things privately which might have given you a somewhat different viewpoint, but I’ve made a decision not to discuss them on a public forum, and I feel that you’ve put me in a position of trying to explain the situation with a hand tied behind my back. It makes me very uncomfortable.</p>

<p>What I find it particularly upsetting is the implication that I don’t give “equal respect, regard, and consideration” to trans partners or their issues and concerns. I simply don’t think that’s so. I’ve been a member for almost six years, and a moderator for about three years, on what I believe is the only forum on the Internet that gives equal voice and equal standing to trans women, and to their present and former spouses and partners. It was founded by and is run by my good friend Helen Boyd, whose spouse is a trans woman, and who’s written two books focusing on partners of trans people and their issues – in one of which she actually wrote about me, and both of which I reviewed and commented upon in draft form. Helen is probably the leading advocate in the country for partners of trans women. (She also runs a yahoo group exclusively for trans partners in which they can talk in private.) I don’t think it’s unfair for me to say that I’m considered one of the biggest supporters and defenders of trans partners on that Internet forum. And I can promise you that for every sad story you’ve ever heard, I’ve heard 100. (By the way, I’ve heard quite a few sad stories in my time from trans people themselves about how they were treated in or after their own marriages; the worst, by far, are the nightmarish, tragic cases in which they are deprived of their children, and prohibited from even seeing them – something that used to be sanctioned by the judicial system, but, thank God, doesn’t happen so much anymore.) You don’t have to educate me about the difficulties of being married to a trans person, or about the fact that some trans people treat their spouses and families badly. Really. I know all about it. But none them was my story, and I’m still not sure why you felt it necessary to imply that it was. I am not here to serve as a representative of all trans people, for any purpose, and I’ve never presumed to do so. I would appreciate not being treated as if I were. I’m just me; one person.</p>

<p>In any event, the position you seem to be taking here is that I’m uniquely disabled from ever making an offhand venting comment here about my former spouse – in this case about something that happened 11 years ago that came to mind when I was talking about my medical history, something that had nothing to do with my transness and that upset me at the time as it would have upset anyone – without first figuratively tugging my forelock and offering some kind of simultaneous mea culpa about how my transness presumably hurt her. Certainly other people here have made comments about things their former spouses did (far more pejorative comments, and far more serious things), without your reprimanding them for failing to bring up their own contributions to the end of the marriage, or for being disrespectful. Even though none of us is perfect so far as I know, and most divorced people would, I hope, agree that the failure of a marriage is rarely the responsibility of one person alone. Believe it or not, that’s also true of marriages in which one spouse is transsexual or otherwise transgendered. Can you at least see a little bit that your position is effectively privileging all non-trans people over me, and treating me as if I have some kind of scarlet letter?</p>

<p>I’m not even going to address the “getting out of my way” comment. That’s not how I look at things. Again, this thread is not supposed to be a dissection of my marriage, so all I’ll say is that we did each other “favors” if you want to put it in those terms. We gave each other our son; it wasn’t a one-way street. And, yes, it wasn’t working. For me, either. For reasons that really had little or nothing to do with transness. And if she hadn’t decided to end the marriage when she did, yes, I would probably have ended the marriage myself eventually, but certainly would have tried to stay as I was, and continue the marriage, for longer. For our son’s sake, mostly. Since he was only 10 at the time. And was the primary reason I had continued the marriage to that point in the first place. As may have been true for my ex as well. But I do still respect her, and do not spend my time badmouthing her, <em>because</em> she’s my son’s other parent. And because once upon a time I loved her very much, and we were happy for a while. </p>

<p>Now I’m really uncomfortable, because talking about this, especially in this vague way, was not something I ever wanted to do. In this thread, anyway. </p>

<p>Finally, I wanted to point out that referring to trans partners as “the straights,” by contrast to “the GLBT persons,” may be accurate for gay and lesbian people, but not so much for trans people. First of all, there are many women in lesbian relationships whose partners transition from female to male, and become straight men themselves, assuming that they’re still attracted to women. Whereas those women, who still identify as lesbian, are involuntarily deprived of their often hard-won lesbian or queer identity, and are suddenly perceived, to their dismay, as being straight. In other words, the precise opposite of your paradigm. Plus, of course, there are many trans women (even though I don’t happen to be one of them, so far as I know) who find themselves attracted to men, and consider themselves straight women every bit as much as their former spouses. So, really, that kind of terminology doesn’t always work in the trans context. </p>

<p>I’m really not trying to be confrontational. But I don’t think any of this was a necessary reaction to the comment I made.</p>

<p>Donna</p>

<p>Back for a moment to what was supposed to be the subject of this thread, someone who had similar problems herself after her own surgery suggested to me that there’s almost certainly a surgical seam underneath all that hyperplasia and granulation and inflammmation. And that if it didn’t heal or close up properly – which is certainly a possibility, given that there’s a place further up that I already know about where two edges that were sewn together never fused properly and will probably have to be surgically repaired at some point – that perhaps every time I dilate it pulls apart the seam, which might explain why it’s so excruciatingly painful for me to do that. It really does feel sometimes like I’m being torn apart down there. And it might also explain why there’s been all that granulation and hyperplasia, which could represent an attempt by my body to bridge the gap if there is one.</p>

<p>Of course, I have no idea how someone would figure out what’s going on underneath that place, and if there really is an unhealed surgical seam under there. I presume an X-ray wouldn’t work for something like that! A couple of months ago, the nurse practitioner applied a silver nitrate stick to some granulated tissue further up, and it did work to remove it, but that tissue wasn’t nearly as thick or inflamed as this, and, even so, I bled copiously for more than a week. Not an experience I’d really want to repeat!</p>

<p>Donna, I hope you know that people on CC don’t expect you to go into details about your personal life that you are not comfortable sharing. You are who you are and, if I can speak for all of us, we respect and admire you for that. We wish you well in your recuperation and hope your medical problems are quickly cured.</p>

<p>Here is the link to Helen Boyd’s site that Donna mentioned:
[url=<a href=“http://www.myhusbandbetty.com%5Den%7CGender%5B/url”>http://www.myhusbandbetty.com]en|Gender[/url</a>]</p>

<p>Looks like a beautiful effort, well done.</p>

<p>I think you are an intelligent person and you realize that my observation was a very simple and small request to speak of your ex-wife with kindness and consideration. That’s the sum total of my request. Be kind as you would have others be kind to you.</p>

<p>There is no anger, no extreme sentiments were expressed by me. There is no need for a global and outsize reaction to my comments. It’s fine for your team to spontaneously combust if they feel they need to, but I assure you, I will continue to support you and say nice things to and about you.</p>

<p>You raise an interesting issue in your final paragraph, and I’m glad you said it again. I think you explained that in the “Chaz Bono” thread, also. It sounds like you are well aware of the crisis of confusion that attends a marriage in which one member decides to transition. The straight spouse who finds that his or her spouse wants a gender reassignment ideally should be treated with the utmost respect for his or her feelings, but it sounds like you know that is not always the case. I wonder how most people would feel if they were in the shoes of those people. You just can’t imagine what it’s like.</p>

<p>Meanwhile, this thread is about your health concern, and I join the others in hoping it gets solved and you go on to happiness and good health.</p>

<p>Thanks. I simply felt that you were applying a double standard, and chastising me (even if mildly so) for something that non-trans people here do without ever being questioned. I hardly called my ex the devil incarnate, after all! But I think I’ve said what I had to say.</p>

<p>My team? LOL.</p>

<p>That’s actually Helen’s blog; there’s a link from it to her forum/message boards, but one has to be a member to read them. Privacy is very important, obviously. I’ve said things on there that I would never dream of saying here, believe me! (And have more than 7,000 posts there, which I’m a little embarrassed to admit is the second most after Helen. I do actually do things other than read and post on message boards. Promise!)</p>

<p>Helen’s been teaching at Lawrence, up in Wisconsin, for the last couple of years. So even she doesn’t post as much as she used to. I miss having her, and Betty, in Brooklyn.</p>

<p>Donna- Given the number of different medical issues that confront you- how confident are you that your doctors will be able to get to the bottom of this (forgive the pun)? It seems that you have more than your fair share of complications and pain. Do they take you seriously when you complain? I’m asking only because I wonder if it might be time to get a second or third opinion on what the trouble might be and how to fix it. </p>

<p>I know that it must be incredibly frustrating to have these problems with no real solution offered thus far. I haven’t had nearly the complicated medical situation that you have had, and yet I cringe when I hear the doctor say, well, this is unusual…</p>

<p>Yes, my gynecologist does seem genuinely concerned, and like she wants to help me. And she did say that she’s forwarding the biopsy results to a pathologist who specializes in inflammations of that area. And I did leave her a voicemail message today about the theory that was suggested to me that maybe there’s an unhealed surgical seam under there. So I guess I’ll have to wait and see what happens. Even though this has been going on for a couple of months now, and it is pretty frustrating.</p>

<p>As for the “this is very unusual” thing, I’ve heard that so many times in the last 30 years or so that I’m basically resigned to it. I dream of the day when I can find out that I have something wrong with me that’s boringly typical!</p>

<p>So. Some good news, finally. After the other pathologist had no new thoughts, and just to see if it might help, my gynecologist finally decided to prescribe something called vagifem. It’s an estradiol tablet that comes pre-loaded onto an applicator and you insert it once a day. I think it’s often prescribed for women who are post-menopausal or have had hysterectomies – essentially the physical and hormonal equivalent of my situation – and it’s supposed to be pretty safe because it isn’t oral and not much gets into the bloodstream. (Of course, I’ve already been taken oral estradiol daily for the last 9 years – much less than I used to, at this point – and probably will always have to. But that certainly hasn’t helped with this particular issue.)</p>

<p>In any event, after only one week of taking it, things are really starting to improve greatly. The inflammation and induration and pain have all decreased considerably, although not entirely, and most of the built-up hyperplasic tissue has already sloughed off. (When I first saw that, I almost panicked, until I realized what it was!) So I think I’m going to keep taking this for some time to come. I only wish someone could have thought of this two or three months ago; it’s been very unpleasant.</p>

<p>Oh, good… I’m so glad it’s getting sorted out. Things are always such a mess when they’re a mess down there. (Ugh, I thought yeast infections were bad…)</p>

<p>Glad to hear things are improving, Donna!</p>

<p>Hooray!! Glad to hear someone found the magic bullet.</p>

<p>Thx!</p>

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<p>Yup. I was duly warned that vaginas are way more complicated; I was under no illusions that it’s all rainbows and vajazzle!</p>

<p>So glad things are improving for you–it must be SUCH a relief! Thanks for sharing the good news!</p>

<p>“Rainbows and vajazzle”?! Hmm… There have been many occasions when I’d rather have the handy gadget for picnics. (But not since I found the Australian Whizaway! [Welcome</a> to whizaway.com - Home of the Whiz - Whiz Freedom](<a href=“http://www.whizproducts.co.uk/en/whiz_freedom.aspx]Welcome”>http://www.whizproducts.co.uk/en/whiz_freedom.aspx))</p>

<p>“Rainbows and vajazzle”?? Oh my.</p>

<p>I thought you were going to say “rainbows and puppy dogs.” I’m not sure what “vajazzle” is.</p>

<p>Uh-oh. I just googled it.</p>

<p>Apparently, it’s something Jennifer Love Hewitt does.</p>

<p>Whizaway.com – sometimes I just cannot imagine my life without CC. So do hospitals use this whiz thing or is it just for the great outdoors? As for googling vajazzle and Jennifer Love Hewitt – that was an instant e-mail to DD to check out. It is hard to fathom publicly admitting doing that.</p>

<p>Actually, upon further perusal, the whizaway seems like an absolute godsend for women in wheelchairs or who have other physical limitations. What a great idea.</p>

<p>There’s a thread about vajazzle, linking to the salon article: <a href=“http://talk.collegeconfidential.com/parent-cafe/850194-vajazzle.html[/url]”>http://talk.collegeconfidential.com/parent-cafe/850194-vajazzle.html&lt;/a&gt; </p>

<p>Just what every woman needs, I think! Next we’ll see celebrities showing them off on the runway.</p>

<p>As far as the whizaway is concerned, there are quite a few devices made for that purpose; I suspect that they were originally invented for use while out hiking, etc. </p>

<p>Maybe I’ll get one at some point for the next time I’m in a situation where I might have to use a really unsanitary looking public toilet. Other than that situation, I can’t say I’ve missed the ability to do that without artificial assistance. I was actually a little surprised at how immediately I got used to things functioning the way they do now, given the completely irrational concern I had that I wouldn’t be able to figure it out!</p>

<p>Uhhhhhh – Donna, if there’s one thing I know about you, it’s that you’re smart. Believe me, stupider women than you figured THAT out when they were only two years old!</p>